Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

Investigating child self-report capacity: a systematic review and utility analysis

(2020) Katherine B. Bevans et al.   QUALITY OF LIFE RESEARCH

Development of mini-SSPedi for children 4–7 years of age receiving cancer treatments

(2019) Deborah Tomlinson et al.   BMC CANCER

Mode Equivalence of Health Indicators Between Data Collection Modes and Mixed-Mode Survey Designs in Population-Based Health Interview Surveys for Children and Adolescents: Methodological Study

(2018) Elvira Mauz et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Validation of the “Pain Block” concrete ordinal scale for children aged 4 to 7 years

(2018) Jin Hee Jung et al.   PAIN

Validity of Simplified Versus Standard Self-Report Measures of Pain Intensity in Preschool-Aged Children Undergoing Venipuncture

(2017) Anthony S. Emmott et al.   JOURNAL OF PAIN

Internet-administered Health-related Quality of Life Questionnaires Compared With Pen and Paper in an Adolescent Scoliosis Population

(2017) Michael Nitikman et al.   JOURNAL OF PEDIATRIC ORTHOPAEDICS

COSMIN Risk of Bias checklist for systematic reviews of Patient-Reported Outcome Measures

(2017) L. B. Mokkink et al.   QUALITY OF LIFE RESEARCH

Exploring self-rated health among adolescents: a think-aloud study

(2016) Junia Joffer et al.   BMC PUBLIC HEALTH

Health-related quality-of-life outcome measures in paediatric palliative care: A systematic review of psychometric properties and feasibility of use

(2016) Lucy H Coombes et al.   PALLIATIVE MEDICINE

The under reporting of recruitment strategies in research with children with life-threatening illnesses: A systematic review

(2016) Briony F Hudson et al.   PALLIATIVE MEDICINE

Mode effects between computer self-administration and telephone interviewer-administration of the PROMIS® pediatric measures, self- and proxy report

(2016) Brooke E. Magnus et al.   QUALITY OF LIFE RESEARCH

Agreement Between Verbal and Electronic Versions of the Numerical Rating Scale (NRS-11) when Used to Assess Pain Intensity in Adolescents

(2015) Elena Castarlenas et al.   CLINICAL JOURNAL OF PAIN

Development of the web-based Spanish and Catalan versions of the Euroqol 5D-Y (EQ-5D-Y) and comparison of results with the paper version

(2015) Noemí Robles et al.   Health and Quality of Life Outcomes

Qualitative Evaluation of Pediatric Pain Behavior, Quality, and Intensity Item Candidates and the PROMIS Pain Domain Framework in Children With Chronic Pain

(2015) C. Jeffrey Jacobson et al.   JOURNAL OF PAIN

Agreement between prospective diary data and retrospective questionnaire report of abdominal pain and stooling symptoms in children with irritable bowel syndrome

(2015) M. M. Self et al.   NEUROGASTROENTEROLOGY AND MOTILITY

A smartphone version of the Faces Pain Scale-Revised and the Color Analog Scale for postoperative pain assessment in children

(2015) Terri Sun et al.   PEDIATRIC ANESTHESIA

Evaluation of the Intermittent Exotropia Questionnaire Using Rasch Analysis

(2015) David A. Leske et al.   JAMA Ophthalmology

Refinement of the Symptom Screening in Pediatrics Tool (SSPedi)

(2014) C O’Sullivan et al.   BRITISH JOURNAL OF CANCER

Electronic Versus Paper-Based Assessment of Health-Related Quality of Life Specific to HIV Disease: Reliability Study of the PROQOL-HIV Questionnaire

(2014) Martin Duracinsky et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Development of the pediatric advanced care quality of life scale (PAC-QoL): Evaluating comprehension of items and response options

(2014) Tara Elise Morley et al.   PEDIATRIC BLOOD & CANCER

Comparing patient and parent recall of 90-day and 30-day migraine disability using elements of the PedMIDAS and an Internet headache diary

(2013) Geoffrey L Heyer et al.   CEPHALALGIA

Daily Diaries vs Retrospective Questionnaires to Assess Asthma Control and Therapeutic Responses in Asthma Clinical Trials

(2013) Adesua Y. Okupa et al.   CHEST

Subjective well-being measures for children were developed within the PROMIS project: presentation of first results

(2013) Ulrike Ravens-Sieberer et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Developmental Data Supporting Simplification of Self-Report Pain Scales for Preschool-Age Children

(2013) Carl L. von Baeyer et al.   JOURNAL OF PAIN

Is the Verbal Numerical Rating Scale a Valid Tool for Assessing Pain Intensity in Children Below 8 Years of Age?

(2013) Elena Castarlenas et al.   JOURNAL OF PAIN

Implementing patient-reported outcome measures in palliative care clinical practice: A systematic review of facilitators and barriers

(2013) Bárbara Antunes et al.   PALLIATIVE MEDICINE

Development of the Knee Injury and Osteoarthritis Outcome Score for Children (KOOS-Child)

(2012) Maria Örtqvist et al.   Acta Orthopaedica

Validation of the Numerical Rating Scale for Pain Intensity and Unpleasantness in Pediatric Acute Postoperative Pain: Sensitivity to Change Over Time

(2012) M. Gabrielle Pagé et al.   JOURNAL OF PAIN

Accuracy of Pain Recall in Children

(2012) Ashish Chogle et al.   JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION

Electronic and paper versions of a faces pain intensity scale: concordance and preference in hospitalized children

(2011) Chantal Wood et al.   BMC Pediatrics

Developing a Valid Patient-Reported Outcome Measure

(2011) N E Rothrock et al.   CLINICAL PHARMACOLOGY & THERAPEUTICS

Development and Validation of a Pictorial Nausea Rating Scale for Children

(2011) A. L. Baxter et al.   PEDIATRICS

Assessment of health care by children and adolescents depends on when they respond to the questionnaire

(2010) H. I. Jensen et al.   INTERNATIONAL JOURNAL FOR QUALITY IN HEALTH CARE

Kids’ Life and Times: using an Internet survey to measure children’s health-related quality of life

(2010) Katrina Lloyd   QUALITY OF LIFE RESEARCH

Innovations in measuring peer conflict resolution knowledge in children with LI: Exploring the accessibility of a visual analogue rating scale

(2010) Wenonah N. Campbell et al.   JOURNAL OF COMMUNICATION DISORDERS

Conceptual and methodological advances in child-reported outcomes measurement

(2010) Katherine B Bevans et al.   Expert Review of Pharmacoeconomics & Outcomes Research

Using factor analysis to confirm the validity of children's self-reported health-related quality of life across different modes of administration

(2009) James W Varni et al.   Clinical Trials

Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study

(2009) Debra E Irwin et al.   Health and Quality of Life Outcomes

Pilot Evaluation of an Instrument to Measure Quality of Life in British Children With Inflammatory Bowel Disease

(2009) Cassandra Anne Ogden et al.   JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION

Development of a digital Childhood Health Assessment Questionnaire for systematic monitoring of disease activity in daily practice

(2009) L. M. Geerdink et al.   RHEUMATOLOGY

Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement

(2009) David Moher et al.   PLOS MEDICINE

How many response levels do children distinguish on faces scales for pain assessment?

(2008) Céline Decruynaere et al.   EUROPEAN JOURNAL OF PAIN

The Internet is valid and reliable for child-report: An example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL)

(2008) Nancy L. Young et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Computer Face Scale for Measuring Pediatric Pain and Mood

(2008) Padma Gulur et al.   JOURNAL OF PAIN

Systematic review of health-related quality of life measures for children with respiratory conditions

(2008) Alexandra L. Quittner et al.   Paediatric Respiratory Reviews

Health-Related Quality of Life Measurement in Children and Adolescents: A Systematic Review of Generic and Disease-Specific Instruments

(2008) Maite Solans et al.   VALUE IN HEALTH