Article
Psychology, Multidisciplinary
Laura Lynne Armstrong, Emmalyne Watt, Elizabeth St John, Stephanie Desson
Summary: A Knowledge Translation Integrated (KTI) model was used to validate the Interactive Symptom Assessment (ISA), a video-based measure of mental health and well-being functioning for children. The measure demonstrated credibility, acceptability, and feasibility, and was found to be useful in clinical practices. However, participants recommended the creation of a short form and brief screening measures to enhance feasibility.
CURRENT PSYCHOLOGY
(2022)
Article
Clinical Neurology
Marta Olive-Gadea, David Cano, Marc Rodrigo-Gisbert, Marian Muchada, Estefania Montiel, Maria Baladas, Ester Sanchez-Gavilan, Carolina Paredes, Alvaro Garcia-Tornel, Marta Rubiera, Manuel Requena, Marc Ribo, Carlos A. Molina
Summary: Patient-reported outcome measures (PROMs) provide valuable information for assessing the long-term outcomes of stroke patients. This study used a mobile app to evaluate PROMs in patients with minor stroke or transient ischemic attack and found a correlation between patient-reported outcomes and clinician-assessed outcomes, although some differences were observed.
Article
Psychology, Clinical
Daniel Freeman, Laina Rosebrock, Bao S. S. Loe, Simone Saidel, Jason Freeman, Felicity Waite
Summary: The researchers developed a scale to assess positive self-beliefs, which can be used in research and clinical practice. The scale consists of 24 items, including four factors: mastery, strength, enjoyment, and character. The results of the study show that the scale is strongly connected to psychological well-being.
PSYCHOLOGICAL MEDICINE
(2023)
Article
Health Care Sciences & Services
Aida Lopez-Brull, Borja Perez-Dominguez, Sergio Hernandez-Sanchez, Alvaro Manuel Rodriguez-Rodriguez, Irmina Nahon, Maria Blanco-Diaz
Summary: This study translated and adapted the Vaginal Penetration Cognition Questionnaire into Spanish to assess beliefs and feelings about vaginal penetration in women suffering from Genito-Pelvic Pain/Penetration Disorder. The results showed that the Spanish version of the questionnaire is a valid, reliable, and consistent tool for assessing vaginal penetration cognition in these women.
Article
Psychology, Multidisciplinary
Mohammadali Amini-Tehrani, Mohammad Nasiri, Tina Jalali, Raheleh Sadeghi, Mehri Mehrmanesh, Hadi Zamanian
Summary: This study developed and validated a questionnaire on relational adverse childhood experiences in the context of home and school. The questionnaire showed good reliability and validity, making it a useful tool for studying relational adverse childhood experiences.
CURRENT PSYCHOLOGY
(2023)
Article
Rehabilitation
Adrian M. Svingos, Stacy J. Suskauer, Beth S. Slomine, Hsuan Wei Chen, Michael E. Ellis-Stockley, Rob J. Forsyth
Summary: This study aimed to determine the distribution of items on the Cognitive and Linguistic Scale (CALS) and explore the relationship between Rasch-derived Cognitive Ability Estimates and outcome trajectory parameters. The study concluded that the Cognitive Ability Estimates derived from the CALS may serve as an ideal outcome measure for evaluating interventions in pediatric rehabilitation settings for acquired brain injury.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION
(2022)
Article
Psychology, Multidisciplinary
Qi Liu, Ka-Yan Ho, Katherine-Ka-Wai Lam, Winsome Lam, Eileen-Hui-Lin Cheng, Shirley-Siu-Yin Ching, Getaneh Mulualem Belay, Frances-Kam-Yuet Wong
Summary: The study translated and adapted the FACIT-Sp scale for Chinese childhood cancer patients, and found that the Chinese version of the adapted FACIT-Sp is a reliable and valid instrument for assessing spiritual well-being in this population. This instrument can be used for routine assessment in clinical settings.
FRONTIERS IN PSYCHOLOGY
(2022)
Article
Clinical Neurology
David A. Preece, Ashish Mehta, Kate Petrova, Pilleriin Sikka, Johan Bjureberg, Wai Chen, Rodrigo Becerra, Alfred Allan, Ken Robinson, James J. Gross
Summary: This paper introduces a brief 6-item version of the Perth Alexithymia Questionnaire (PAQ-S) as a measure of an important transdiagnostic risk factor for psychopathologies. The PAQ-S shows good psychometric properties in terms of factor structure, reliability, and concurrent/criterion validity. It can serve as a quick and robust measure of overall alexithymia levels.
JOURNAL OF AFFECTIVE DISORDERS
(2023)
Article
Health Care Sciences & Services
Reza Hajialibeigloo, Yaser Moradi, Hossein Habibzadeh, Rahim Baghaei, Vahid Alinejad, Mohammad Namazi Nia
Summary: This study developed a questionnaire to assess the educational needs of COVID-19 patients and determined its psychometric properties. The questionnaire showed good validity and reliability, making it a useful tool for providing better and more effective patient education.
HEALTH AND QUALITY OF LIFE OUTCOMES
(2022)
Article
Health Care Sciences & Services
Alba Lilia Brambila Montoya, Jessica Klockner Knorst, Isaac Murisi Pedroza Uribe, Ruben Alberto Bayardo Gonzalez, Thiago Machado Ardenghi, Carmen Celina Alonso Sanchez
Summary: This study cross-culturally adapted and evaluated the psychometric properties of the Mexican version of the Early Childhood Oral Health Impact Scale (M-ECOHIS), finding it to be a valid and reliable instrument for assessing the impact of oral health on quality of life in Mexican preschool children.
HEALTH AND QUALITY OF LIFE OUTCOMES
(2021)
Article
Medicine, General & Internal
Zi-Hua Jian, Chih-Ping Li, En-Chi Chiu
Summary: The study found that the CASI has good ecological validity, good convergent validity, and acceptable discriminative validity in people with dementia. However, caution should be taken when using the 5 domains that showed nonsignificant differences or ceiling effects in distinguishing people with dementia.
Article
Public, Environmental & Occupational Health
Charlotte C. Poot, Eline Meijer, Marjolein Fokkema, Niels H. Chavannes, Richard H. Osborne, Lars Kayser
Summary: The study aimed to translate and culturally adapt the eHealth Literacy Questionnaire (eHLQ) into Dutch and gather initial validity evidence. The Dutch version of the eHLQ demonstrated strong properties for assessing eHealth literacy in the Dutch context. It can be used by researchers, eHealth developers, and policy makers to identify eHealth literacy needs and inform the development of eHealth interventions to ensure equitable access and use of digital health technologies.
Review
Criminology & Penology
Sylvia Georgieva, Jose M. Tomas, Jose J. Navarro-Perez, Paula Samper-Garcia
Summary: This article examines the psychometric properties of child maltreatment assessment instruments and finds a lack of information in some aspects, making it difficult to determine which instruments have stronger scientific evidence. Further research and development of effective tools for early detection of child maltreatment are recommended.
TRAUMA VIOLENCE & ABUSE
(2022)
Article
Public, Environmental & Occupational Health
Jill Chen, Georgina Henry, Phyllis Butow, Ilona Juraskova, Rebekah Laidsaar-Powell, Joanne Shaw
Summary: The study aimed to assess the psychometric properties of the Concerns about Late Effects in Oncology questionnaire. The results showed good internal consistency but only partial support for construct validity and discriminatory power. Further development should focus on the psychological and functional impacts of late effects.
PATIENT EDUCATION AND COUNSELING
(2022)
Article
Psychology, Multidisciplinary
Vladimir Kosonogov, Olga Kuskova
Summary: The aim of this study was to develop and test the Russian version of the Emotional Contagion Scale. Through questionnaire surveys and data analysis, the study examined various dimensions and properties of the scale. The one-factor model of the scale showed the best acceptability, and women were found to be more emotionally contagious.
FRONTIERS IN PSYCHOLOGY
(2022)
Article
Psychology, Clinical
Liadh Timmins, Alexandra Pitman, Michael King, Wei Gao, Katherine Johnson, Peihan Yu, Debbie Braybrook, Anna Roach, Steve Marshall, Elizabeth Day, Ruth Rose, Paul Clift, Kathryn Almack, Deok Hee Yi, Katherine Bristowe, Richard Harding
Summary: This study compared bereavement outcomes for partners of same-gender and different-gender decedents and found that same-gender bereaved partners reported significantly more psychological distress, but there were no significant differences in complicated grief outcomes.
PSYCHOLOGICAL MEDICINE
(2023)
Article
Health Care Sciences & Services
Joanna M. Davies, Katherine E. Sleeman, Christina Ramsenthaler, Wendy Prentice, Matthew Maddocks, Fliss E. M. Murtagh
Summary: This study examined the association between socioeconomic position and the symptoms and concerns of older adult patients receiving specialist palliative care. It found that patients living in more deprived areas had higher scores on the communication and practical concerns subscale, indicating greater difficulties in these areas. However, deprivation was not associated with scores on the physical or emotional symptoms subscales. Targeting resources to address practical and communication concerns could be a strategy to reduce inequalities in end-of-life care.
PALLIATIVE MEDICINE
(2023)
Article
Infectious Diseases
Natalie St Clair-Sullivan, Kiersten Simmons, Richard Harding-Swale, Thomas Levett, Matthew Maddocks, Jonathan Roberts, Daniel Trotman, Deokhee Yi, Jaime H. Vera, Katherine Bristowe
Summary: This study aimed to explore the perceptions of older people living with HIV and HIV professionals towards frailty and routine screening for frailty. The study found that frailty was described as a series of losses around mobility, social inclusion, independence, and mental acuity. People living with HIV found it acceptable to explicitly use the word "frail" during screening if approached sensitively and provided with information and support. HIV professionals, on the other hand, had concerns about using the word "frail" for fear of causing distress or offense.
Article
Health Care Sciences & Services
Debbie Braybrook, Katherine Bristowe, Liadh Timmins, Anna Roach, Elizabeth Day, Paul Clift, Ruth Rose, Steve Marshall, Katherine Johnson, Katherine E. Sleeman, Richard Harding
Summary: This study aims to enhance person-centred care by incorporating discussions about sexual orientation and gender identity. Inclusive language and sensitive exploration of relationships and identities are core activities. Institutions need to support clinicians through provision of adequate training, resources, inclusive monitoring systems, policies and structures.
BMJ QUALITY & SAFETY
(2023)
Review
Health Care Sciences & Services
Laura Barrett, Lorna Fraser, Jane Noyes, Jo Taylor, Julia Hackett
Summary: This study aimed to systematically identify and synthesize qualitative research on parents' experiences of end-of-life care of their child. Through analyzing 95 eligible studies, it found that parents of children receiving end-of-life care have a profound need for support and to fulfill their parental role.
PALLIATIVE MEDICINE
(2023)
Article
Pediatrics
Mary M. Barker, Bryony Beresford, Lorna K. Fraser
Summary: This study investigates the incidence of anxiety and depression in children and young people with life-limiting conditions. The results show a significantly higher incidence of anxiety and depression among this population group, highlighting the need for psychological support.
PEDIATRIC RESEARCH
(2023)
Article
Geriatrics & Gerontology
Fliss E. M. Murtagh, Mabel Okoeki, Blessing Onyinye Ukoha-kalu, Assem Khamis, Joseph Clark, Jason W. Boland, Sophie Pask, Ugochinyere Nwulu, Helene Elliott-Button, Anna Folwell, Daniel Harman, Miriam J. Johnson
Summary: In this study, researchers evaluated the effectiveness of a new integrated care service in improving the wellbeing and quality of life of older people living with severe frailty. The results showed that the integrated care service improved wellbeing within 2-4 weeks and this improvement was sustained at three months.
Article
Health Care Sciences & Services
Hannah May Scott, Lucy Coombes, Debbie Braybrook, Anna Roach, Daney Haroardottir, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Fliss E. M. Murtagh, Bobbie Farsides, Lorna K. Fraser, Myra Bluebond-Langner, Richard Harding
Summary: This study aimed to identify the spiritual needs of children with life-limiting and life-threatening conditions. By conducting semi-structured qualitative interviews with purposively sampled children, family members, and health and social care professionals, the study found that children and family members had uncertainty about the meaning of life and leaving a legacy, while health and social care professionals recognized the importance of addressing spiritual concerns in providing child- and family-centred palliative care.
PALLIATIVE MEDICINE
(2023)
Review
Health Care Sciences & Services
Andrew Papworth, Lucy Ziegler, Bryony Beresford, Suzanne Mukherjee, Lorna Fraser, Victoria Fisher, Mark O'Neill, Su Golder, Andre Bedendo, Johanna Taylor
Summary: This study aimed to investigate factors associated with the well-being of hospice staff using the job demands-resources (JD-R) theory. The findings revealed specific factors related to the hospice environment and role, relationships with patients and their families, and general factors affecting well-being in all work environments. Staff demographic characteristics and education level had no influence on well-being. Further research is needed in children's hospices.
BMJ SUPPORTIVE & PALLIATIVE CARE
(2023)
Article
Health Care Sciences & Services
Andrew Papworth, Julia Hackett, Bryony Beresford, Fliss Murtagh, Helen Weatherly, Sebastian Hinde, Andre Bedendo, Gabriella Walker, Jane Noyes, Sam Oddie, Chakrapani Vasudevan, Richard G. Feltbower, Bob Phillips, Richard Hain, Gayathri Subramanian, Andrew Haynes, Lorna K. Fraser
Summary: This qualitative study explores regional perspectives on the successes and challenges of coordinating and delivering end-of-life care for children in the UK. The findings highlight the importance of collaborative and network approaches, as well as effective communication, in facilitating good end-of-life care. However, consistent funding and staff education and training need to be addressed to improve the delivery and experiences of care.
BMC PALLIATIVE CARE
(2023)
Review
Health Care Sciences & Services
Carole A. Paley, Jason W. Boland, Martina Santarelli, Fliss E. M. Murtagh, Lucy Ziegler, Emma J. Chapman
Summary: This study systematically reviewed non-pharmacological interventions for cancer-related psychological distress and found that most studies using mindfulness interventions were effective in alleviating distress.
BMC PALLIATIVE CARE
(2023)
Article
Pediatrics
Joseph L. Ward, Rachel Harwood, Simon Kenny, Joana Cruz, Matthew Clark, Peter J. Davis, Elizabeth S. Draper, Dougal Hargreaves, Shamez N. Ladhani, Nick Gent, Hannah E. Williams, Karen Luyt, Steve Turner, Elizabeth Whittaker, Alex Bottle, Lorna K. Fraser, Russell M. Viner
Summary: Investigating the risk of severe illness in children and adolescents after SARS-CoV-2 infection is crucial for public health interventions. This study in England found that the risk of hospitalization for COVID-19 among children and adolescents remained low during the first 2 years of the pandemic, but those with multiple medical problems, especially neurodisability, were at increased risk.
Article
Health Care Sciences & Services
Andre Bedendo, Sebastian Hinde, Bryony Beresford, Andrew Papworth, Bob Phillips, Chakrapani Vasudevan, Emma McLorie, Gabriella Walker, George Peat, Helen Weatherly, Richard Feltbower, Catherine Hewitt, Andrew Haynes, Fliss Murtagh, Jane Noyes, Julia Hackett, Richard Hain, Sam Oddie, Gayathri Subramanian, Lorna Fraser
Summary: The objective of this study is to gather information on the professional team members, services provided, funding sources and population served for all consultant-led specialised paediatric palliative care teams in the UK. The findings show that only six services meet the minimum criteria defined by NICE. Most services provide symptom management, specialist nursing care, end-of-life planning and care, and support for discharges and transfers. Additionally, charity funding plays a significant role in funding the services.
BMJ SUPPORTIVE & PALLIATIVE CARE
(2023)
Article
Health Care Sciences & Services
Lucy Coombes, Daney Haroardottir, Debbie Braybrook, Anna Roach, Hannah Scott, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Myra Bluebond-Langner, Lorna K. Fraser, Fliss E. M. Murtagh, Richard Harding
Summary: This study aimed to identify preferences for the design of a patient-reported outcome measure among children with life-limiting conditions. The findings suggest that children have specific preferences for recall period, response format, length, and administration mode. It highlights the importance of involving children in the measure development process to enhance acceptability and uptake in clinical practice.
PATIENT-PATIENT CENTERED OUTCOMES RESEARCH
(2023)