Article
Pediatrics
Bethany Adams, Sally K. K. Thornton, Graham Naylor, Ruth V. V. Spriggs, Ian M. M. Wiggins, Padraig T. T. Kitterick
Summary: Children with hearing loss, especially those with bilateral or unilateral hearing loss, experience greater fatigue compared to children with normal hearing. Specific measures of listening-related fatigue are more effective in detecting fatigue in children with unilateral hearing loss.
FRONTIERS IN PEDIATRICS
(2023)
Article
Health Care Sciences & Services
Anne Kaman, Christiane Otto, Janine Devine, Michael Erhart, Manfred Dopfner, Tobias Banaschewski, Anja Gortz-Dorten, Charlotte Hanisch, Michael Kolch, Veit Roessner, Ulrike Ravens-Sieberer
Summary: The study evaluated the psychometric properties of the German version of the PROMIS Parent Proxy Short Form v1.0-Anger and provided normative data. The PROMIS Anger Scale demonstrated good psychometric properties, making it recommended for use in research and practice.
QUALITY OF LIFE RESEARCH
(2022)
Article
Nursing
Danyu Li, Xuqian Zong, Qingmei Huang, Fulei Wu, Yueshi Huang, Youhong Ge, Wen Zhang, Changrong Yuan
Summary: The study aimed to assess the psychometric properties of PROMIS-25 in Chinese parents of children with cancer. The results showed that PROMIS-25 had good reliability and factor structure, and met the assumptions of item response theory. It can be an effective tool for evaluating symptoms in children with cancer.
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES
(2023)
Article
Oncology
Verena Paul, Laura Inhestern, Jana Winzig, Mona L. Nasse, Konstantin A. Krauth, Stefan Rutkowski, Gabriele Escherich, Corinna Bergelt
Summary: This study aimed to develop an empirical and multi-perspective understanding of emotional and behavioral problems in leukemia and brain tumor survivors and their siblings. The concordance between child self-report and parent proxy-report was also examined. Results showed significant differences in emotional problems and prosocial behavior between survivors and siblings compared to a normative sample, highlighting the importance of psychosocial services in regular aftercare that addresses the needs of both survivors and their siblings.
Article
Pharmacology & Pharmacy
Ana M. Escribano Duenas, Monica Martin Garcia, Begona Tortajada Goitia, Jose Javier Arenas Villafranca
Summary: Self-administered augmentation therapy is a successful alternative for individuals with alpha-1 antitrypsin deficiency, providing increased independence, satisfaction, and no interference with clinical stability.
FRONTIERS IN PHARMACOLOGY
(2023)
Article
Oncology
Deborah Tomlinson, Erin Plenert, Grace Dadzie, Robyn Loves, Sadie Cook, Tal Schechter, L. Lee Dupuis, Lillian Sung
Summary: This study aims to qualitatively describe reasons for disagreement in ratings of bothersome symptoms between child self-report and parent proxy-report. Through the analysis, themes were identified explaining the discrepancies, such as differing perception, understanding difficulties, lack of communication, projection, and discrepancies. Enhancing communication between children and parents about symptom reporting may reduce some of the disagreements identified. Future research should focus on methods that encourage communication between children with cancer and their caregivers.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Psychology, Clinical
Gabrielle F. Freitag, Hanan Salem, Kristina Conroy, Carolina Busto, Molly Adrian, Christina P. C. Borba, Amelia Brandt, Phuonguyen V. Chu, Annie Dantowitz, Alyssa M. Farley, Lisa Fortuna, Jami M. Furr, Julia Lejeune, Leslie Miller, Rheanna Platt, Michelle Porche, Kendra L. Read, Sara Rivero-Conil, Romina D. Sanchez Hernandez, Philip Shumway, Jennifer Sikov, Andrea Spencer, Haniya Syeda, Lauren F. McLellan, Ronald M. Rapee, Dana McMakin, Donna B. Pincus, Jonathan S. Comer
Summary: There is a need for brief, non-commercial questionnaires of youth anxiety. The PROMIS Anxiety scale short forms have been found to be free and publicly accessible measures of youth-reported anxiety. This study evaluates the performance of the PROMIS Anxiety scale in a sample of treatment-engaged anxious youth.
JOURNAL OF ANXIETY DISORDERS
(2023)
Article
Genetics & Heredity
Carolyn E. Schwartz, Roland B. Stark, David Cella, Katrina Borowiec, Katherine L. Gooch, Ivana F. Audhya
Summary: This study developed a condition-specific caregiver proxy-report measure for Duchenne Muscular Dystrophy (DMD) utilizing item banks from the PROMIS system, aiming to understand the impact of DMD on caregivers. The study sample included 521 DMD caregivers and showed strong psychometric characteristics in most domains. Future research will focus on assessing the responsiveness and validity of the measure over time and its comparison to DMD patient self-report.
ORPHANET JOURNAL OF RARE DISEASES
(2021)
Review
Economics
Christine Mpundu-Kaambwa, Norma Bulamu, Lauren Lines, Gang Chen, Kim Dalziel, Nancy Devlin, Julie Ratcliffe
Summary: This study aimed to identify and summarize published guidance and recommendations for child self-and proxy assessment of existing child-specific instruments of health-related quality of life. Overall, journal articles provided little guidance on child self-and proxy assessment, while instrument developers' websites provided more comprehensive guidance for specific instruments.
Article
Psychology, Developmental
David Cella, Courtney K. Blackwell, Lauren S. Wakschlag
Summary: This study provides an overview of the Patient-Reported Outcomes Measurement Information System (PROMIS(R)) Early Childhood Parent Report measurement development project and its qualitative methods. Through expert input, literature and measure review, and parent concept elicitation and cognitive interviews, 12 parent report instruments covering young children's physical, mental, and social health were developed. These instruments offer clinicians and researchers brief and psychometrically robust tools to evaluate young children's health outcomes.
JOURNAL OF PEDIATRIC PSYCHOLOGY
(2022)
Article
Oncology
Veronika Koutna, Marek Blatny, Martin Jelinek
Summary: In pediatric cancer settings, parents tend to underestimate the quality of life and posttraumatic growth (PTG) of their children, showing poor concordance with children's own reports. Parental reports of children's PTG are influenced by their own level of PTG, indicating that parents are not very accurate reporters of PTG in the child.
Article
Psychology, Clinical
Miguel A. Verdugo, Alba Aza, Maria Begona Orgaz, Maria Fernandez, Antonio M. Amor
Summary: The study analyzed the evolution patterns of QoL in a sample of persons with ABI over one year, and found that QoL improved, especially between baseline and six months. Patients scored higher than proxies, and patients with more recent injuries showed significant improvements in QoL.
INTERNATIONAL JOURNAL OF CLINICAL AND HEALTH PSYCHOLOGY
(2021)
Article
Chemistry, Analytical
Derya Unsal Ozturk, Aydan M. Erkmen
Summary: This paper investigates the application of a proxy-based sliding mode controller in MEMS gyroscopes. Experimental results demonstrate the evident superiority of the proxy-based controller compared to traditional sliding mode controllers.
Article
Audiology & Speech-Language Pathology
Ivette Cejas, Jennifer Coto, Christina Sarangoulis, Chrisanda M. Sanchez, Alexandra L. Quittner
Summary: This study developed the QoL-CI questionnaire for early childhood and adolescents, with each version consisting of 8 functional domains. The instruments were developed through phases of instrument development and stakeholder interviews to ensure clarity, comprehensiveness, and ease of use.
Article
Clinical Neurology
Amy L. Zhang, Donna B. Jeffe, Judith E. C. Lieu
Summary: The Hearing Environments-domain of the Preschool HEAR-QL can differentiate between children with and without hearing loss. Children with normal hearing had higher scores than children with hearing loss on both Total HEAR-QL and Hearing Environment-domain scores.
OTOLOGY & NEUROTOLOGY
(2022)
Article
Psychology, Developmental
Brittany Mann, Emma Sciberras, Jason He, George Youssef, Vicki Anderson, Timothy J. Silk
Summary: The study revealed that ADHD symptoms are associated with sleep problems and inhibition performance, with sleep problems having a more prominent impact on inhibition performance. Therefore, assessment and treatment of children with manifestations of ADHD should take into consideration the influence of sleep problems.
JOURNAL OF ATTENTION DISORDERS
(2021)
Article
Neurosciences
Soukayna Bekkali, George J. Youssef, Peter H. Donaldson, Jason He, Michael Do, Christian Hyde, Pamela Barhoun, Peter G. Enticott
Summary: This study confirmed that gaze fixation can modulate interpersonal motor resonance (IMR), with stronger effects observed when fixations occurred in biologically relevant areas. However, this effect was not consistently observed across different experimental blocks.
SOCIAL COGNITIVE AND AFFECTIVE NEUROSCIENCE
(2022)
Article
Psychiatry
Jason L. He, Georg Oeltzschner, Mark Mikkelsen, Alyssa Deronda, Ashley D. Harris, Deana Crocetti, Ericka L. Wodka, Stewart H. Mostofsky, Richard A. E. Edden, Nicolaas A. J. Puts
Summary: Individuals on the autism spectrum are often hypersensitive or hyposensitive to sensory input, which may be related to an increased ratio of excitatory to inhibitory signaling in autism spectrum disorders. Studies have found elevated levels of Glx in the primary sensorimotor cortex in ASD, associated with sensory hyper- and hyporeactivity symptoms as well as reduced feed-forward inhibition during tactile perception.
TRANSLATIONAL PSYCHIATRY
(2021)
Article
Psychology, Multidisciplinary
Brooke E. Magnus, Mauricio Garnier-Villarreal
Summary: Zero responses and their equivalents are common on measures of psychopathology, especially in community samples, resulting in high levels of zero inflation. Researchers propose a multidimensional zero-inflated graded response model (MZI-GRM) to better capture zero inflation on questionnaires by including correlated latent variables representing susceptibility and severity, showing better fit than existing models on capturing zero inflation across items.
PSYCHOLOGICAL METHODS
(2022)
Article
Psychology, Educational
Brooke E. Magnus, Yang Liu
Summary: This research uses a maximum likelihood approach to fit multidimensional zero-inflated models, finding that susceptibility and severity scale scores uniquely and differentially predict other health outcomes, indicating that symptom presence and symptom severity are unique indicators of psychopathology with potential clinical utility.
EDUCATIONAL AND PSYCHOLOGICAL MEASUREMENT
(2022)
Article
Neurosciences
Soukayna Bekkali, George J. Youssef, Peter H. Donaldson, Christian Hyde, Michael Do, Jason L. He, Pamela Barhoun, Peter G. Enticott
Summary: In a study involving a large sample, it was found that the relationship between interpersonal motor resonance and mu suppression is weaker than previously believed, suggesting that they may be unrelated indices.
JOURNAL OF NEUROSCIENCE RESEARCH
(2021)
Article
Clinical Neurology
Jason L. He, Mark Mikkelsen, David A. Huddleston, Deana Crocetti, Kim M. Cecil, Harvey S. Singer, Richard A. E. Edden, Donald L. Gilbert, Stewart H. Mostofsky, Nicolaas A. J. Puts
Summary: The study found that lower GABA levels in the supplementary motor area were associated with more severe and frequent premonitory urges in children with Tourette syndrome, but not with tic severity. This suggests that GABA neurotransmission plays a role in the experience of urges in children with Tourette syndrome.
MOVEMENT DISORDERS
(2022)
Article
Psychology, Biological
Pamela Barhoun, Ian Fuelscher, Michael Do, Jason L. He, Andris Cerins, Soukayna Bekkali, George J. Youssef, Daniel Corp, Brendan P. Major, Dwayne Meaney, Peter G. Enticott, Christian Hyde
Summary: This study used continuous theta burst stimulation to investigate the role of the primary motor cortex in motor imagery. The results suggest that the primary motor cortex may not directly contribute to motor imagery.
Article
Multidisciplinary Sciences
Andris Cerins, Daniel Corp, George Opie, Michael Do, Bridgette Speranza, Jason He, Pamela Barhoun, Ian Fuelscher, Peter Enticott, Christian Hyde
Summary: Transcranial magnetic stimulation (TMS) is used to investigate neurobiological dysfunctions in neurological disorders. Short-interval intracortical inhibition (SICI) is a promising biomarker but its variability can be influenced by inter-individual differences in excitatory neural populations activated by TMS.
SCIENTIFIC REPORTS
(2022)
Article
Psychology, Developmental
Magdalini Asaridou, Ericka L. Wodka, Richard A. E. Edden, Stewart H. Mostofsky, Nicolaas A. J. Puts, Jason L. He
Summary: Sensory differences are highly prevalent in autistic individuals. However, few studies have compared their presentation between autistic males and autistic females. Results from this study suggest that while there are sex-differences in tactile perceptual sensitivity, these differences are not specific to autism. Elevated tactile sensitivity measures in autism are comparable between autistic males and females, indicating the potential for using certain sensory features as sex-indifferent markers of autism.
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS
(2022)
Article
Psychology, Clinical
Brooke E. Magnus, Yitan Chen
Summary: The presence-severity response format, which includes a filter question, has a substantial effect on people's responses and the psychometric properties of items. It results in a reduction in symptom reporting and loss of information about individual differences, particularly for people experiencing mild symptoms.
Meeting Abstract
Behavioral Sciences
Ayesha Javed, Jason He, Charlotte Blackmore, Jumana Ahmad, Nicolaas Puts, Emily Jones, Grainne McAlonan
Article
Psychology, Mathematical
Jason L. He, Rebecca J. Hirst, Rohan Puri, James Coxon, Winston Byblow, Mark Hinder, Patrick Skippen, Dora Matzke, Andrew Heathcote, Corey G. Wadsley, Tim Silk, Christian Hyde, Dinisha Parmar, Ernest Pedapati, Donald L. Gilbert, David A. Huddleston, Stewart Mostofsky, Inge Leunissen, Hayley J. MacDonald, Nahian S. Chowdhury, Matthew Gretton, Tess Nikitenko, Bram Zandbelt, Luke Strickland, Nicolaas A. J. Puts
Summary: The stop-signal paradigm is commonly used in research on inhibitory control, with the most popular version being the 'choice-reaction' task and an alternative being the 'anticipated response inhibition' task. While the latter is gaining popularity and has some advantages, there are currently no openly available versions of it.
BEHAVIOR RESEARCH METHODS
(2022)
Article
Psychology, Developmental
Katherine Howells, Carmel Sivaratnam, Ebony Lindor, Jason He, Christian Hyde, Jane McGillivray, Rujuta B. Wilson, Nicole Rinehart
Summary: This pilot study found that a community football program had a positive impact on the motor abilities of children with autism spectrum disorder, particularly in aiming and catching. Social impairments may play a role in affecting these abilities.
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS
(2022)
Article
Clinical Neurology
Daniel T. Corp, Jason He, Danielle Cooke, Ruben Perellon-Alfonso, Juho Joutsa, Alvaro Pascual-Leone, Michael D. Fox, Christian Hyde
Summary: This study found that MEPs evoked from inhibitory stimuli can be used as non-conditioned responses, expediting IHI data collection without the need for additional TMS pulses. This approach allows for more IHI data to be collected in the same amount of time.