Development and validation of a patient-reported outcome measure for systemic sclerosis: the EULAR Systemic Sclerosis Impact of Disease (ScleroID) questionnaire

Development of a new patient‐reported outcome measure to assess activities and participation in people with systemic sclerosis: The Cochin 17‐item Scleroderma Functional Scale

(2020) C. Daste et al.   BRITISH JOURNAL OF DERMATOLOGY

Riociguat in patients with early diffuse cutaneous systemic sclerosis (RISE-SSc): randomised, double-blind, placebo-controlled multicentre trial

(2020) Dinesh Khanna et al.   ANNALS OF THE RHEUMATIC DISEASES

Psychometric performance of the PAncreatic CAncer disease impact (PACADI) score

(2019) Turid Heiberg et al.   PANCREATOLOGY

Prediction of progression of interstitial lung disease in patients with systemic sclerosis: the SPAR model

(2018) Wanlong Wu et al.   ANNALS OF THE RHEUMATIC DISEASES

Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study

(2017) Linda Kwakkenbos et al.   RHEUMATOLOGY

Functional disability and its predictors in systemic sclerosis: a study from the DeSScipher project within the EUSTAR group

(2017) Veronika K Jaeger et al.   RHEUMATOLOGY

Impaired quality of life in systemic sclerosis and patient perception of the disease: A large international survey

(2016) Camelia Frantz et al.   SEMINARS IN ARTHRITIS AND RHEUMATISM

Patient reported outcome measures in practice

(2015) E. C. Nelson et al.   BMJ-British Medical Journal

Patient reported outcome measures in practice

(2015) E. C. Nelson et al.   BMJ-British Medical Journal

Systemic sclerosis

(2015) Yannick Allanore et al.   Nature Reviews Disease Primers

A patient-derived and patient-reported outcome measure for assessing psoriatic arthritis: elaboration and preliminary validation of the Psoriatic Arthritis Impact of Disease (PsAID) questionnaire, a 13-country EULAR initiative

(2014) Laure Gossec et al.   ANNALS OF THE RHEUMATIC DISEASES

Updating the OMERACT Filter: Implications of Filter 2.0 to Select Outcome Instruments Through Assessment of "Truth": Content, Face, and Construct Validity

(2014) P. Tugwell et al.   JOURNAL OF RHEUMATOLOGY

Longitudinal Evaluation of PROMIS-29 and FACIT-Dyspnea Short Forms in Systemic Sclerosis

(2014) M. E. Hinchcliff et al.   JOURNAL OF RHEUMATOLOGY

2013 classification criteria for systemic sclerosis: an American college of rheumatology/European league against rheumatism collaborative initiative

(2013) Frank van den Hoogen et al.   ANNALS OF THE RHEUMATIC DISEASES

Development and preliminary validation of the pancreatic cancer disease impact score

(2013) Turid Heiberg et al.   SUPPORTIVE CARE IN CANCER

Defining cut-off values for disease activity states and improvement scores for patient-reported outcomes: the example of the Rheumatoid Arthritis Impact of Disease (RAID)

(2012) Maxime Dougados et al.   ARTHRITIS RESEARCH & THERAPY

Finalisation and validation of the rheumatoid arthritis impact of disease score, a patient-derived composite measure of impact of rheumatoid arthritis: a EULAR initiative

(2011) L. Gossec et al.   ANNALS OF THE RHEUMATIC DISEASES

Measures of systemic sclerosis (scleroderma): Health Assessment Questionnaire (HAQ) and Scleroderma HAQ (SHAQ), Physician- and Patient-Rated Global Assessments, Symptom Burden Index (SBI), University of California, Los Angeles, Scleroderma Clinical Trials

(2011) Janet Pope   ARTHRITIS CARE & RESEARCH

Discordance between Patient and Physician Assessments of Disease Severity in Systemic Sclerosis

(2010) M. HUDSON et al.   JOURNAL OF RHEUMATOLOGY

Work Disability in Systemic Sclerosis

(2009) M. HUDSON et al.   JOURNAL OF RHEUMATOLOGY

Elaboration of the preliminary Rheumatoid Arthritis Impact of Disease (RAID) score: a EULAR initiative

(2008) L Gossec et al.   ANNALS OF THE RHEUMATIC DISEASES

On the Use, the Misuse, and the Very Limited Usefulness of Cronbach’s Alpha

(2008) Klaas Sijtsma   PSYCHOMETRIKA