Article
Oncology
Meagan S. Whisenant, Oluwatosin Bamidele, Charles Cleeland, Loretta A. Williams
Summary: Cancer patients value the importance of communicating various aspects of the disease and treatment experience to the oncology team, as well as supporting systematic PRO assessments. They express concerns about the length of PRO questionnaires, the importance of response options available, and willingness to complete PRO measures frequently.
ONCOLOGY NURSING FORUM
(2021)
Review
Health Care Sciences & Services
Andreas Knapp, Lorenz Harst, Stefan Hager, Jochen Schmitt, Madlen Scheibe
Summary: With the advancement of digital health technologies and telemedicine, patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) have become increasingly important in the evaluation of telemedicine. Studies have shown a growing trend in the use of PROMs and PREMs, especially in high-evidence studies where PROMs are more frequently utilized.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2021)
Article
Medicine, General & Internal
Samantha Hornsey, Beth Stuart, Ingrid Muller, Alison M. Layton, Leanne Morrison, Jamie King, Karen Thomas, Paul Little, Miriam Santer
Summary: Both patient-reported outcome measures showed high internal consistency and reliability in statistical analyses. Skindex-16 and CompAQ demonstrated good evidence of construct validity. Qualitative study revealed diverse views on usability and acceptability, with no PROM showing superior performance.
Review
Oncology
Niamh McKigney, Fergus Houston, Ellen Ross, Galina Velikova, Julia Brown, Deena Pravin Harji
Summary: This study aimed to identify the patient-reported outcome measures (PROMs) currently being reported in locally recurrent rectal cancer (LRRC) and to appraise the methodological quality of studies using these measures. Thirty-five studies including 1914 patients with LRRC were identified. None of the PROMs have been validated for use in this cohort of patients.
ANNALS OF SURGICAL ONCOLOGY
(2023)
Article
Oncology
Catriona Parker, Andrew Wei, Danny Liew, Ella Zomer, Darshini Ayton
Summary: Patient reported outcomes (PROs) are crucial in modern patient-centered care and clinical trials, providing valuable information about patients' experiences of health. However, selecting an appropriate PRO measure remains challenging for clinicians and researchers, as using instruments developed for different patient populations may lead to under-reporting or missing important items. Ongoing research and improvements are necessary to enhance the development and selection of PRO instruments.
SUPPORTIVE CARE IN CANCER
(2022)
Review
Medicine, General & Internal
Alba Nicolas-Boluda, Anne Oppenheimer, Jerome Bouaziz, Arnaud Fauconnier
Summary: Patient Reported Outcome Measures (PROM) allow capturing patients' perspectives on their condition in the context of endometriosis care. Despite their extensive use in research and clinical trials, PROMs are rarely used in clinical practice. The development of digital tools can help facilitate the integration of PROMs into routine endometriosis care, improving patient-centered communication and quality of life.
JOURNAL OF CLINICAL MEDICINE
(2021)
Article
Respiratory System
Daniel B. Oakes, Megan J. Baker, Charlie McLeod, Barbara Nattabi, Christopher C. Blyth
Summary: This study aimed to identify and characterize patient-reported outcomes and PROMs used in pediatric ALRI studies and summarize their measurement properties. A total of 18 articles met the inclusion criteria, including 12 PROMs. The findings showed that these PROMs lack validation for children and have insufficient content validity for use with First Nations children.
EUROPEAN RESPIRATORY REVIEW
(2023)
Review
Oncology
Mary M. Vargo
Summary: This review examines the current measurement tools used in cancer rehabilitation, with a focus on evaluating function. The SF-36 and EORTC-QLQ-C30 are commonly used patient-reported outcome measures in cancer rehabilitation research. Newer tools such as PROMIS and AMPAC, which incorporate item response theory and offer options for computer-assisted or short form administration, are increasingly being used, particularly PROMIS Physical Function SF and PROMIS Cancer Function Brief 3D. Objective measures of function in cancer patients are also important. The utilization of clinically feasible tools for screening and monitoring rehabilitation treatment efficacy is crucial for further research and improved clinical care for cancer patients and survivors.
CURRENT ONCOLOGY REPORTS
(2023)
Review
Pediatrics
Madeline R. Horan, Jin-ah Sim, Kevin R. Krull, Justin N. Baker, I-Chan Huang
Summary: This review describes the generic and cancer-specific PRO measures for pediatric cancer populations and summarizes their characteristics, translations, content coverage, and measurement properties. It highlights the importance of considering psychometric properties and content coverage before implementing PRO measures in childhood cancer research or clinical care. Routine PRO assessment in pediatric cancer care can improve clinical decision-making and quality of care.
Article
Orthopedics
Carley Vuillermin, Katherine Eisenberg, David Williams, Ashley B. Tartarilla, Andrea Bauer, Peter M. Waters
Summary: This study evaluated the PRO measures of PODCI and PROMIS for BPBI patients and found high convergent validity between the two measures. PROMIS showed better discriminant validity and shorter completion time compared to PODCI.
JOURNAL OF BONE AND JOINT SURGERY-AMERICAN VOLUME
(2022)
Editorial Material
Dermatology
C. C. Zouboulis, P. V. Chernyshov
Summary: The study by R. Sommer et al. published in the Journal of the European Academy of Dermatology and Venereology in 2021 focused on a specific topic in the field of dermatology.
JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY
(2021)
Article
Health Care Sciences & Services
Joel J. Gagnier, Jianyu Lai, Lidwine B. Mokkink, Caroline B. Terwee
Summary: This study developed a set of 71 consensus items for reporting guidelines for primary studies of measurement properties of PROMs, with 35 common items and 41 specific items. These items will guide researchers on including necessary information in their reports, improving completeness of reporting for these important studies.
QUALITY OF LIFE RESEARCH
(2021)
Article
Oncology
Sarah Nicole Hamilton, Eric Tran, Cheryl Ho, Eric Berthelet, Jonn Wu, Kimberly DeVries, Vincent LaPointe, Angela Bowman, Minette Lagman, Robert Olson
Summary: Electronic PRO collection during H&N cancer RT is feasible. H&N cancer patients experience significant symptoms during RT, with the most severe symptoms reported being dysgeusia, pain and mucositis. Oropharynx cancer patients reported the highest symptom scores during RT.
SUPPORTIVE CARE IN CANCER
(2021)
Review
Health Care Sciences & Services
Mikko Uimonen, Ilari Kuitunen, Oskari Pakarinen, Matias Vaajala, Rasmus Liukkonen, Hannes Tukiainen, Ville Ponkilainen
Summary: This study examined the methodological basis behind the conclusions of PROM validation studies. The results revealed that PROM studies often had insufficient sample sizes and focused on a limited number of validity subfields, raising concerns about the deterministic conclusions regarding the validity of PROMs.
JOURNAL OF CLINICAL EPIDEMIOLOGY
(2023)
Article
Clinical Neurology
Vanessa L. Merker, Andres J. Lessing, Irene Moss, Maureen Hussey, Beverly Oberlander, Traceann Rose, Raquel Thalheimer, Tracy Wirtanen, Pamela L. Wolters, Andrea M. Gross, Scott R. Plotkin, REiNS Int Collaboration
Summary: The survey of REiNS members showed that providing sufficient opportunities for patient representatives to engage in research tasks and fostering a respectful, inclusive atmosphere were key to their satisfaction and impact. Patient representatives were perceived to improve the organization's research by directly contributing to research tasks and indirectly influencing other stakeholders, leading to the selection of more meaningful and relevant clinical trial outcomes. Challenges to patient engagement included scheduling difficulties and concerns about the level of scientific knowledge needed to effectively engage.