A human rights approach to an international code of conduct for genomic and clinical data sharing

Pharmaceutical Knowledge Governance: A Human Rights Perspective

(2015) Trudo Lemmens   JOURNAL OF LAW MEDICINE & ETHICS

Data sharing in large research consortia: experiences and recommendations from ENGAGE

(2013) Isabelle Budin-Ljøsne et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

The Haystack Is Made of Needles

(2013) Sharon F. Terry et al.   Genetic Testing and Molecular Biomarkers

Patients would benefit from simplified ethical review and consent procedure

(2013) Mats G Hansson et al.   LANCET ONCOLOGY

The case for a cohort

(2013)   NATURE GENETICS

Preparing for Responsible Sharing of Clinical Trial Data

(2013) Michelle M. Mello et al.   NEW ENGLAND JOURNAL OF MEDICINE

An ethics safe harbor for international genomics research?

(2013) Edward S Dove et al.   Genome Medicine

Research Guidelines in the Era of Large-scale Collaborations: An Analysis of Genome-wide Association Study Consortia

(2012) Melissa A. Austin et al.   AMERICAN JOURNAL OF EPIDEMIOLOGY

Questioning the Limits of Genomic Privacy

(2012) Bartha M. Knoppers et al.   AMERICAN JOURNAL OF HUMAN GENETICS

Genetic Discrimination: International Perspectives

(2012) M. Otlowski et al.   Annual Review of Genomics and Human Genetics

Ethical aspects of participation in the Database of Genotypes and Phenotypes of the National Center for Biotechnology Information

(2012) Jeffrey Peppercorn et al.   CANCER

Toward a roadmap in global biobanking for health

(2012) Jennifer R Harris et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Using PhenX measures to identify opportunities for cross-study analysis

(2012) Huaqin Pan et al.   HUMAN MUTATION

From patients to partners: participant-centric initiatives in biomedical research

(2012) Jane Kaye et al.   NATURE REVIEWS GENETICS

To Share or Not To Share: That Is Not the Question

(2012) L. Ohno-Machado   Science Translational Medicine

De MinimisRisk: A Proposal for a New Category of Research Risk

(2011) Rosamond Rhodes et al.   AMERICAN JOURNAL OF BIOETHICS

Ethical issues in human genomics research in developing countries

(2011) Jantina de Vries et al.   BMC Medical Ethics

Data sharing: not as simple as it seems

(2011) Neil Pearce et al.   Environmental Health

Ethical and practical challenges of sharing data from genome-wide association studies: The eMERGE Consortium experience

(2011) A. L. McGuire et al.   GENOME RESEARCH

Biobanking and public health: is a human rights approach the tie that binds?

(2011) Eric M. Meslin et al.   HUMAN GENETICS

Genomic databases access agreements: legal validity and possible sanctions

(2011) Yann Joly et al.   HUMAN GENETICS

From genomic databases to translation: a call to action

(2011) B. M. Knoppers et al.   JOURNAL OF MEDICAL ETHICS

Power to the People: Participant Ownership of Clinical Trial Data

(2011) S. F. Terry et al.   Science Translational Medicine

Developing and implementing an institute-wide data sharing policy

(2011) Stephanie OM Dyke et al.   Genome Medicine

Towards a data sharing Code of Conduct for international genomic research

(2011) Bartha Knoppers et al.   Genome Medicine

‘Access Arrangements’ for Biobanks: A Fine Line between Facilitating and Hindering Collaboration

(2010) S. Fortin et al.   Public Health Genomics

Harmonizing Global Science

(2009) A. I. Leshner et al.   SCIENCE

Ethical and legal constraints on data sharing between countries in multinational epidemiological studies in Europe report from a joint workshop of the European League Against Rheumatism standing committee on epidemiology with the "AutoCure" project

(2008) A Zink et al.   ANNALS OF THE RHEUMATIC DISEASES

Life Cycle of Translational Research for Medical Interventions

(2008) D. G. Contopoulos-Ioannidis et al.   SCIENCE