From patients to partners: participant-centric initiatives in biomedical research

From single biobanks to international networks: developing e-governance

(2011) Jane Kaye   HUMAN GENETICS

Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm

(2011) Paul Wicks et al.   NATURE BIOTECHNOLOGY

Electronic Consent Channels: Preserving Patient Privacy Without Handcuffing Researchers

(2011) R. H. Shelton   Science Translational Medicine

Power to the People: Participant Ownership of Clinical Trial Data

(2011) S. F. Terry et al.   Science Translational Medicine

Web-Based Genome-Wide Association Study Identifies Two Novel Loci and a Substantial Genetic Component for Parkinson's Disease

(2011) Chuong B. Do et al.   PLoS Genetics

Genomic research and wide data sharing: Views of prospective participants

(2010) Susan Brown Trinidad et al.   GENETICS IN MEDICINE

Assessing the Privacy Risks of Data Sharing in Genomics

(2010) C. Heeney et al.   Public Health Genomics

Patients providing the answers: narrowing the gap in data quality for emergency care

(2010) S. C. Porter et al.   BMJ Quality & Safety

Web-Based, Participant-Driven Studies Yield Novel Genetic Associations for Common Traits

(2010) Nicholas Eriksson et al.   PLoS Genetics

Whose Personal Control? Creating Private, Personally Controlled Health Records for Pediatric and Adolescent Patients

(2008) F. C. Bourgeois et al.   JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION

Research ethics and the challenge of whole-genome sequencing

(2007) Amy L. McGuire et al.   NATURE REVIEWS GENETICS