Genetic Discrimination: International Perspectives

Beyond the patient: The broader impact of genetic discrimination among individuals at risk of Huntington disease

(2012) Yvonne Bombard et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART B-NEUROPSYCHIATRIC GENETICS

Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results

(2011) Robin Zoe Hayeems et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Willingness to Pay for Genetic Testing for Alzheimer's Disease: A Measure of Personal Utility

(2011) Ilona M. Kopits et al.   Genetic Testing and Molecular Biomarkers

Direct-to-consumer genetic testing: An assessment of genetic counselors' knowledge and beliefs

(2011) Kathryn T Hock et al.   GENETICS IN MEDICINE

Why is genetic screening for autosomal dominant disorders underused in families? The case of hereditary hemorrhagic telangiectasia

(2011) Barbara A. Bernhardt et al.   GENETICS IN MEDICINE

When They Hear What We Say: Ethical Challenges in Presenting Research Findings to the Huntington Disease Community

(2011) Yvonne Bombard et al.   Journal of Empirical Research on Human Research Ethics

A Population-Based Survey in Australia of Men’s and Women’s Perceptions of Genetic Risk and Predictive Genetic Testing and Implications for Primary Care

(2011) S. Taylor   Public Health Genomics

Factors associated with experiences of genetic discrimination among individuals at risk for huntington disease

(2010) Yvonne Bombard et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART B-NEUROPSYCHIATRIC GENETICS

Adoption and the communication of genetic risk: experiences in Huntington disease

(2010) Y Bombard et al.   CLINICAL GENETICS

Spinocerebellar ataxia: Patient and health professional perspectives on whether and how patents affect access to clinical genetic testing

(2010) Ashton Powell et al.   GENETICS IN MEDICINE

“In Sickness and in Health”? Disclosures of Genetic Risks in Dating

(2010) Robert L. Klitzman et al.   Journal of Genetic Counseling

Views of Discrimination among Individuals Confronting Genetic Disease

(2010) Robert Klitzman   Journal of Genetic Counseling

Privacy, health insurance, and medical research: tensions raised by European data protection law

(2010) David Townend   NEW GENETICS AND SOCIETY

Genetic discrimination in private insurance: global perspectives

(2010) Yann Joly et al.   NEW GENETICS AND SOCIETY

Disclosure of Research Results from Cancer Genomic Studies: State of the Science

(2009) L. G. Dressler   CLINICAL CANCER RESEARCH

Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients

(2009) S Taylor et al.   CLINICAL GENETICS

Public interest in predictive genetic testing, including direct-to-consumer testing, for susceptibility to major depression: preliminary findings

(2009) Alex Wilde et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Survey of unaffected BRCA and mismatch repair (MMR) mutation positive individuals

(2009) Wendy McKinnon et al.   Familial Cancer

Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing

(2009) Kristine Barlow-Stewart et al.   GENETICS IN MEDICINE

Fear of health insurance loss among individuals at risk for Huntington disease

(2008) Emily Oster et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

Influence of genetic discrimination perceptions and knowledge on cancer genetics referral practice among clinicians

(2008) Katrina J Lowstuter et al.   GENETICS IN MEDICINE

The Genome Gets Personal—Almost

(2008) W. Gregory Feero   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Keeping Pace with the Times — The Genetic Information Nondiscrimination Act of 2008

(2008) Kathy L. Hudson et al.   NEW ENGLAND JOURNAL OF MEDICINE

Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease

(2007) Elizabeth Penziner et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART B-NEUROPSYCHIATRIC GENETICS