Data sharing in large research consortia: experiences and recommendations from ENGAGE

On Sharing Quantitative Trait GWAS Results in an Era of Multiple-omics Data and the Limits of Genomic Privacy

(2012) Hae Kyung Im et al.   AMERICAN JOURNAL OF HUMAN GENETICS

Questioning the Limits of Genomic Privacy

(2012) Bartha M. Knoppers et al.   AMERICAN JOURNAL OF HUMAN GENETICS

Data Sharing in the Post-Genomic World: The Experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)

(2012) Yann Joly et al.   PLoS Computational Biology

The Tension Between Data Sharing and the Protection of Privacy in Genomics Research

(2011) Jane Kaye   Annual Review of Genomics and Human Genetics

Data sharing: not as simple as it seems

(2011) Neil Pearce et al.   Environmental Health

Phenotype harmonization and cross-study collaboration in GWAS consortia: the GENEVA experience

(2011) Siiri N. Bennett et al.   GENETIC EPIDEMIOLOGY

Ethical and practical challenges of sharing data from genome-wide association studies: The eMERGE Consortium experience

(2011) A. L. McGuire et al.   GENOME RESEARCH

The role of a bioresource research impact factor as an incentive to share human bioresources

(2011) Anne Cambon-Thomsen et al.   NATURE GENETICS

Towards a data sharing Code of Conduct for international genomic research

(2011) Bartha Knoppers et al.   Genome Medicine

SAIL—a software system for sample and phenotype availability across biobanks and cohorts

(2010) Mikhail Gostev et al.   BIOINFORMATICS

Retrospective access to data: the ENGAGE consent experience

(2010) Anne Marie Tassé et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

DataSHIELD: resolving a conflict in contemporary bioscience--performing a pooled analysis of individual-level data without sharing the data

(2010) M. Wolfson et al.   INTERNATIONAL JOURNAL OF EPIDEMIOLOGY

Recommendations from the 2008 International Summit on Proteomics Data Release and Sharing Policy: The Amsterdam Principles

(2009) Henry Rodriguez et al.   JOURNAL OF PROTEOME RESEARCH

Prepublication data sharing

(2009)   NATURE

Data sharing in genomics — re-shaping scientific practice

(2009) Jane Kaye et al.   NATURE REVIEWS GENETICS