Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents

Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya

(2015) Irene Jao et al.   Journal of Empirical Research on Human Research Ethics

The H3Africa policy framework: negotiating fairness in genomics

(2015) Jantina de Vries et al.   TRENDS IN GENETICS

Research Stakeholders’ Views on Benefits and Challenges for Public Health Research Data Sharing in Kenya: The Importance of Trust and Social Relations

(2015) Irene Jao et al.   PLoS One

Voluntary participation and comprehension of informed consent in a genetic epidemiological study of breast cancer in Nigeria

(2014) Patricia A Marshall et al.   BMC Medical Ethics

Ethical issues in the export, storage and reuse of human biological samples in biomedical research: perspectives of key stakeholders in Ghana and Kenya

(2014) Paulina Tindana et al.   BMC Medical Ethics

Informed consent for human genetic and genomic studies: a systematic review

(2014) A. Khan et al.   CLINICAL GENETICS

Dynamic consent: a patient interface for twenty-first century research networks

(2014) Jane Kaye et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Challenges in biobank governance in Sub-Saharan Africa

(2013) Ciara Staunton et al.   BMC Medical Ethics

Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya

(2013) Vicki Marsh et al.   BMC Medical Ethics

Ethical and legal implications of whole genome and whole exome sequencing in African populations

(2013) Galen EB Wright et al.   BMC Medical Ethics

Practice variation across consent templates for biobank research. a survey of German biobanks

(2013) Irene Hirschberg et al.   Frontiers in Genetics

Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience

(2012) Paulina Tindana et al.   BMC Medical Ethics

To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts

(2012) Gabrielle M Christenhusz et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Bridging consent: from toll bridges to lift bridges?

(2011) Isabelle Budin-Ljøsne et al.   BMC Medical Genomics

Sharing research data to improve public health

(2011) Mark Walport et al.   LANCET

Retrospective access to data: the ENGAGE consent experience

(2010) Anne Marie Tassé et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Genome-wide association studies in diverse populations

(2010) Noah A. Rosenberg et al.   NATURE REVIEWS GENETICS

Tailoring the process of informed consent in genetic and genomic research

(2010) Charles N Rotimi et al.   Genome Medicine

Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study

(2009) Fasil Tekola et al.   BMC Medical Ethics

Data sharing in genomics — re-shaping scientific practice

(2009) Jane Kaye et al.   NATURE REVIEWS GENETICS

“Broad” consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose

(2009) Carlo Petrini   SOCIAL SCIENCE & MEDICINE

Tailoring Consent to Context: Designing an Appropriate Consent Process for a Biomedical Study in a Low Income Setting

(2009) Fasil Tekola et al.   PLoS Neglected Tropical Diseases

Banking together. A unified model of informed consent for biobanking

(2008) Elena Salvaterra et al.   EMBO REPORTS