Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya

Engaging Communities to Strengthen Research Ethics in Low-Income Settings: Selection and Perceptions of Members of a Network of Representatives in Coastal Kenya

(2013) Dorcas M. Kamuya et al.   Developing World Bioethics

Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: ‘Consulting communities’ to inform policy

(2013) Vicki Marsh et al.   SOCIAL SCIENCE & MEDICINE

The Jamaican Historical Experience of the Impact of Educational Interventions on Sickle Cell Disease Child Mortality

(2012) Scott D. Grosse et al.   AMERICAN JOURNAL OF PREVENTIVE MEDICINE

Benefits and payments for research participants: Experiences and views from a research centre on the Kenyan coast

(2012) Sassy Molyneux et al.   BMC Medical Ethics

Toward Methodological Innovation in Empirical Ethics Research

(2012) MICHAEL DUNN et al.   CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS

Global epidemiology of sickle haemoglobin in neonates: a contemporary geostatistical model-based map and population estimates

(2012) Frédéric B Piel et al.   LANCET

‘All her children are born that way’: gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya

(2011) Vicki M. Marsh et al.   ETHNICITY & HEALTH

Genetics, health care, family and kinship in a global perspective: Situated processes of co-construction

(2011) Klasien Horstman et al.   SOCIAL SCIENCE & MEDICINE

Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya

(2010) Vicki M Marsh et al.   BMC Medical Ethics

Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants

(2010) Richard R. Fabsitz et al.   Circulation-Cardiovascular Genetics

Sickle-cell disease

(2010) David C Rees et al.   LANCET

APPROPRIATE METHODOLOGIES FOR EMPIRICAL BIOETHICS: IT'S ALL RELATIVE

(2009) JONATHAN IVES et al.   BIOETHICS

EMPIRICAL ETHICS AS DIALOGICAL PRACTICE

(2009) GUY WIDDERSHOVEN et al.   BIOETHICS

Genetic testing in asymptomatic minors: recommendations of the European Society of Human Genetics

(2009)   EUROPEAN JOURNAL OF HUMAN GENETICS

Ethical Data Release in Genome-Wide Association Studies in Developing Countries

(2009) Michael Parker et al.   PLOS MEDICINE

Questioning the Consensus: Managing Carrier Status Results Generated by Newborn Screening

(2008) Fiona Alice Miller et al.   AMERICAN JOURNAL OF PUBLIC HEALTH

Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya

(2008) Vicki Marsh et al.   SOCIAL SCIENCE & MEDICINE