Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya
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Title
Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya
Authors
Keywords
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Journal
Journal of Empirical Research on Human Research Ethics
Volume 10, Issue 3, Pages 264-277
Publisher
SAGE Publications
Online
2015-08-21
DOI
10.1177/1556264615592385
References
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Related references
Note: Only part of the references are listed.- Systematic archiving and access to health research data: rationale, current status and way forward
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- Views of Ethical Best Practices in Sharing Individual-Level Data From Medical and Public Health Research
- (2015) Susan Bull et al. Journal of Empirical Research on Human Research Ethics
- What Are Fair Study Benefits in International Health Research? Consulting Community Members in Kenya
- (2014) Maureen Njue et al. PLoS One
- Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya
- (2013) Vicki Marsh et al. BMC Medical Ethics
- Evolving Friendships and Shifting Ethical Dilemmas: Fieldworkers’ Experiences in a Short Term Community Based Study in Kenya
- (2013) Dorcas M. Kamuya et al. Developing World Bioethics
- Engaging Communities to Strengthen Research Ethics in Low-Income Settings: Selection and Perceptions of Members of a Network of Representatives in Coastal Kenya
- (2013) Dorcas M. Kamuya et al. Developing World Bioethics
- Consent and Community Engagement in Diverse Research Contexts: Reviewing and Developing Research and Practice
- (2013) Sassy Molyneux et al. Journal of Empirical Research on Human Research Ethics
- Preparing for Responsible Sharing of Clinical Trial Data
- (2013) Michelle M. Mello et al. NEW ENGLAND JOURNAL OF MEDICINE
- Sharing individual level data from observational studies and clinical trials: a perspective from NHLBI
- (2013) Sean A Coady et al. Trials
- Data sharing: not as simple as it seems
- (2011) Neil Pearce et al. Environmental Health
- Sharing research data to improve public health: a perspective from the global south
- (2011) Osman Sankoh et al. LANCET
- Who Shares? Who Doesn't? Factors Associated with Openly Archiving Raw Research Data
- (2011) Heather A. Piwowar PLoS One
- Can Broad Consent be Informed Consent?
- (2011) M. Sheehan Public Health Ethics
- Working with Concepts: The Role of Community in International Collaborative Biomedical Research
- (2011) V. M. Marsh et al. Public Health Ethics
- Sharing health data: developing country perspectives
- (2010) Viroj Tangcharoensathien et al. BULLETIN OF THE WORLD HEALTH ORGANIZATION
- Sharing health data: good intentions are not enough
- (2010) Elizabeth Pisani et al. BULLETIN OF THE WORLD HEALTH ORGANIZATION
- Biobank governance: a lesson in trust
- (2010) A. K. Hawkins et al. NEW GENETICS AND SOCIETY
- Meeting the Governance Challenges of Next-Generation Biorepository Research
- (2010) S. M. Fullerton et al. Science Translational Medicine
- Time for fair trade in research data
- (2009) Elizabeth Pisani et al. LANCET
- Prepublication data sharing
- (2009) NATURE
- Data sharing: Empty archives
- (2009) Bryn Nelson NATURE
- Ethical Data Release in Genome-Wide Association Studies in Developing Countries
- (2009) Michael Parker et al. PLOS MEDICINE
- Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya
- (2008) Vicki Marsh et al. SOCIAL SCIENCE & MEDICINE
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