Sampling Populations of Humans Across the World: ELSI Issues

The Ethics of Research Biobanking: A Critical Review of the Literature

(2011) Klaus Hoeyer   Biotechnology & Genetic Engineering Reviews

Ethical issues in human genomics research in developing countries

(2011) Jantina de Vries et al.   BMC Medical Ethics

Bridging consent: from toll bridges to lift bridges?

(2011) Isabelle Budin-Ljøsne et al.   BMC Medical Genomics

The eMERGE Network: A consortium of biorepositories linked to electronic medical records data for conducting genomic studies

(2011) Catherine A McCarty et al.   BMC Medical Genomics

In Defense of Broad Consent

(2011) GERT HELGESSON   CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS

Challenges in Obtaining Adequate Genetic Sample Sets in Clinical Trials: The Perspective of the Industry Pharmacogenomics Working Group

(2011) A W Warner et al.   CLINICAL PHARMACOLOGY & THERAPEUTICS

Downsizing genomic medicine: Approaching the ethical complexity of whole-genome sequencing by starting small

(2011) Richard R Sharp   GENETICS IN MEDICINE

Active choice but not too active: Public perspectives on biobank consent models

(2011) Christian M. Simon et al.   GENETICS IN MEDICINE

Disclosing pathogenic genetic variants to research participants: Quantifying an emerging ethical responsibility

(2011) C. A. Cassa et al.   GENOME RESEARCH

Population biobanks and returning individual research results: mission impossible or new directions?

(2011) Susan E. Wallace et al.   HUMAN GENETICS

Children and biobanks: a review of the ethical and legal discussion

(2011) Kristien Hens et al.   HUMAN GENETICS

Genomic databases access agreements: legal validity and possible sanctions

(2011) Yann Joly et al.   HUMAN GENETICS

Biobanking and international interoperability: samples

(2011) Michael Kiehntopf et al.   HUMAN GENETICS

From single biobanks to international networks: developing e-governance

(2011) Jane Kaye   HUMAN GENETICS

Identifiability in biobanks: models, measures, and mitigation strategies

(2011) Bradley Malin et al.   HUMAN GENETICS

Biobanking residual tissues

(2011) Peter H. J. Riegman et al.   HUMAN GENETICS

Biobanking and deceased persons

(2011) Anne Marie Tassé   HUMAN GENETICS

Viewpoint: Are the research ethics committees working in the best interests of participants in an increasingly globalized research environment?

(2011) D. Chalmers   JOURNAL OF INTERNAL MEDICINE

Biobanks and the Return of Research Results: Out with the Old and in with the New?

(2011) Ma'n H. Zawati et al.   JOURNAL OF LAW MEDICINE & ETHICS

Charting a course for genomic medicine from base pairs to bedside

(2011) Eric D. Green et al.   NATURE

A decade’s perspective on DNA sequencing technology

(2011) Elaine R. Mardis   NATURE

The role of a bioresource research impact factor as an incentive to share human bioresources

(2011) Anne Cambon-Thomsen et al.   NATURE GENETICS

Can Broad Consent be Informed Consent?

(2011) M. Sheehan   Public Health Ethics

Towards a data sharing Code of Conduct for international genomic research

(2011) Bartha Knoppers et al.   Genome Medicine

The Role of Biobanking in Rare Diseases: European Consensus Expert Group Report

(2010) Hanns Lochmüller et al.   BIOPRESERVATION AND BIOBANKING

Biobanking, consent, and commercialization in international genetics research: the Type 1 Diabetes Genetics Consortium

(2010) Mark A Hall et al.   Clinical Trials

Principles of Human Subjects Protections Applied in an Opt-Out, De-identified Biobank

(2010) Jill Pulley et al.   CTS-Clinical and Translational Science

Biobanks: Importance, Implications and Opportunities for Genetic Counselors

(2010) Alice K. Hawkins   Journal of Genetic Counseling

International network of cancer genome projects

(2010) Thomas J. Hudson (Chairperson) et al.   NATURE

Genomic Medicine — An Updated Primer

(2010) W. Gregory Feero et al.   NEW ENGLAND JOURNAL OF MEDICINE

Framing Genomics, Public Health Research and Policy: Points to Consider

(2010) B.M. Knoppers et al.   Public Health Genomics

A European Survey on Biobanks: Trends and Issues

(2010) E. Zika et al.   Public Health Genomics

‘Access Arrangements’ for Biobanks: A Fine Line between Facilitating and Hindering Collaboration

(2010) S. Fortin et al.   Public Health Genomics

Offering Individual Genetic Research Results: Context Matters

(2010) L. M. Beskow et al.   Science Translational Medicine

DIRECT-TO-CONSUMER GENETIC TESTING: ETHICAL-LEGAL PERSPECTIVES AND PRACTICAL CONSIDERATIONS

(2010) S. Tamir   Medical Law Review

The $1,000 genome, the $100,000 analysis?

(2010) Elaine R Mardis   Genome Medicine

Return of “Accurate” and “Actionable” Results: Yes!

(2009) Bartha Maria Knoppers et al.   AMERICAN JOURNAL OF BIOETHICS

Public Opinion about the Importance of Privacy in Biobank Research

(2009) David J. Kaufman et al.   AMERICAN JOURNAL OF HUMAN GENETICS

Massively Parallel Sequencing: The Next Big Thing in Genetic Medicine

(2009) Tracy Tucker et al.   AMERICAN JOURNAL OF HUMAN GENETICS

RECONSIDERING THE VALUE OF CONSENT IN BIOBANK RESEARCH

(2009) JUDY ALLEN et al.   BIOETHICS

Next generation disparities in human genomics: concerns and remedies

(2009) Anna C. Need et al.   TRENDS IN GENETICS

“Broad” consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose

(2009) Carlo Petrini   SOCIAL SCIENCE & MEDICINE

A Dynamic Network Approach for the Study of Human Phenotypes

(2009) César A. Hidalgo et al.   PLoS Computational Biology

Ethics and biobanks

(2008) M G Hansson   BRITISH JOURNAL OF CANCER

Ethical issues regarding recruitment to research studies within the primary care consultation

(2008) S. Wilson et al.   FAMILY PRACTICE

Size matters: just how big is BIG?: Quantifying realistic sample size requirements for human genome epidemiology

(2008) P. R. Burton et al.   INTERNATIONAL JOURNAL OF EPIDEMIOLOGY

Opt-out plus, the patients' choice: preferences of cancer patients concerning information and consent regimen for future research with biological samples archived in the context of treatment

(2008) E Vermeulen et al.   JOURNAL OF CLINICAL PATHOLOGY

Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

(2008) Susan M. Wolf et al.   JOURNAL OF LAW MEDICINE & ETHICS

Ethics review of research: in pursuit of proportionality

(2008) S J L Edwards et al.   JOURNAL OF MEDICAL ETHICS

Genetic research on rare familial disorders: consent and the blurred boundaries between clinical service and research

(2008) M Ponder et al.   JOURNAL OF MEDICAL ETHICS

Sources of data for a longitudinal birth cohort

(2008) Jean Golding et al.   PAEDIATRIC AND PERINATAL EPIDEMIOLOGY