标题
Sampling Populations of Humans Across the World: ELSI Issues
作者
关键词
-
出版物
Annual Review of Genomics and Human Genetics
Volume 13, Issue 1, Pages 395-413
出版商
Annual Reviews
发表日期
2012-06-16
DOI
10.1146/annurev-genom-090711-163834
参考文献
相关参考文献
注意:仅列出部分参考文献,下载原文获取全部文献信息。- The Ethics of Research Biobanking: A Critical Review of the Literature
- (2011) Klaus Hoeyer Biotechnology & Genetic Engineering Reviews
- Ethical issues in human genomics research in developing countries
- (2011) Jantina de Vries et al. BMC Medical Ethics
- Bridging consent: from toll bridges to lift bridges?
- (2011) Isabelle Budin-Ljøsne et al. BMC Medical Genomics
- The eMERGE Network: A consortium of biorepositories linked to electronic medical records data for conducting genomic studies
- (2011) Catherine A McCarty et al. BMC Medical Genomics
- In Defense of Broad Consent
- (2011) GERT HELGESSON CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS
- Challenges in Obtaining Adequate Genetic Sample Sets in Clinical Trials: The Perspective of the Industry Pharmacogenomics Working Group
- (2011) A W Warner et al. CLINICAL PHARMACOLOGY & THERAPEUTICS
- Downsizing genomic medicine: Approaching the ethical complexity of whole-genome sequencing by starting small
- (2011) Richard R Sharp GENETICS IN MEDICINE
- Active choice but not too active: Public perspectives on biobank consent models
- (2011) Christian M. Simon et al. GENETICS IN MEDICINE
- Disclosing pathogenic genetic variants to research participants: Quantifying an emerging ethical responsibility
- (2011) C. A. Cassa et al. GENOME RESEARCH
- Population biobanks and returning individual research results: mission impossible or new directions?
- (2011) Susan E. Wallace et al. HUMAN GENETICS
- Children and biobanks: a review of the ethical and legal discussion
- (2011) Kristien Hens et al. HUMAN GENETICS
- Genomic databases access agreements: legal validity and possible sanctions
- (2011) Yann Joly et al. HUMAN GENETICS
- Biobanking and international interoperability: samples
- (2011) Michael Kiehntopf et al. HUMAN GENETICS
- From single biobanks to international networks: developing e-governance
- (2011) Jane Kaye HUMAN GENETICS
- Identifiability in biobanks: models, measures, and mitigation strategies
- (2011) Bradley Malin et al. HUMAN GENETICS
- Biobanking residual tissues
- (2011) Peter H. J. Riegman et al. HUMAN GENETICS
- Biobanking and deceased persons
- (2011) Anne Marie Tassé HUMAN GENETICS
- Viewpoint: Are the research ethics committees working in the best interests of participants in an increasingly globalized research environment?
- (2011) D. Chalmers JOURNAL OF INTERNAL MEDICINE
- Biobanks and the Return of Research Results: Out with the Old and in with the New?
- (2011) Ma'n H. Zawati et al. JOURNAL OF LAW MEDICINE & ETHICS
- Charting a course for genomic medicine from base pairs to bedside
- (2011) Eric D. Green et al. NATURE
- A decade’s perspective on DNA sequencing technology
- (2011) Elaine R. Mardis NATURE
- The role of a bioresource research impact factor as an incentive to share human bioresources
- (2011) Anne Cambon-Thomsen et al. NATURE GENETICS
- Can Broad Consent be Informed Consent?
- (2011) M. Sheehan Public Health Ethics
- Towards a data sharing Code of Conduct for international genomic research
- (2011) Bartha Knoppers et al. Genome Medicine
- The Role of Biobanking in Rare Diseases: European Consensus Expert Group Report
- (2010) Hanns Lochmüller et al. BIOPRESERVATION AND BIOBANKING
- Biobanking, consent, and commercialization in international genetics research: the Type 1 Diabetes Genetics Consortium
- (2010) Mark A Hall et al. Clinical Trials
- Principles of Human Subjects Protections Applied in an Opt-Out, De-identified Biobank
- (2010) Jill Pulley et al. CTS-Clinical and Translational Science
- Biobanks: Importance, Implications and Opportunities for Genetic Counselors
- (2010) Alice K. Hawkins Journal of Genetic Counseling
- International network of cancer genome projects
- (2010) Thomas J. Hudson (Chairperson) et al. NATURE
- Genomic Medicine — An Updated Primer
- (2010) W. Gregory Feero et al. NEW ENGLAND JOURNAL OF MEDICINE
- Framing Genomics, Public Health Research and Policy: Points to Consider
- (2010) B.M. Knoppers et al. Public Health Genomics
- A European Survey on Biobanks: Trends and Issues
- (2010) E. Zika et al. Public Health Genomics
- ‘Access Arrangements’ for Biobanks: A Fine Line between Facilitating and Hindering Collaboration
- (2010) S. Fortin et al. Public Health Genomics
- Offering Individual Genetic Research Results: Context Matters
- (2010) L. M. Beskow et al. Science Translational Medicine
- DIRECT-TO-CONSUMER GENETIC TESTING: ETHICAL-LEGAL PERSPECTIVES AND PRACTICAL CONSIDERATIONS
- (2010) S. Tamir Medical Law Review
- The $1,000 genome, the $100,000 analysis?
- (2010) Elaine R Mardis Genome Medicine
- Return of “Accurate” and “Actionable” Results: Yes!
- (2009) Bartha Maria Knoppers et al. AMERICAN JOURNAL OF BIOETHICS
- Public Opinion about the Importance of Privacy in Biobank Research
- (2009) David J. Kaufman et al. AMERICAN JOURNAL OF HUMAN GENETICS
- Massively Parallel Sequencing: The Next Big Thing in Genetic Medicine
- (2009) Tracy Tucker et al. AMERICAN JOURNAL OF HUMAN GENETICS
- RECONSIDERING THE VALUE OF CONSENT IN BIOBANK RESEARCH
- (2009) JUDY ALLEN et al. BIOETHICS
- Next generation disparities in human genomics: concerns and remedies
- (2009) Anna C. Need et al. TRENDS IN GENETICS
- “Broad” consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose
- (2009) Carlo Petrini SOCIAL SCIENCE & MEDICINE
- A Dynamic Network Approach for the Study of Human Phenotypes
- (2009) César A. Hidalgo et al. PLoS Computational Biology
- Ethics and biobanks
- (2008) M G Hansson BRITISH JOURNAL OF CANCER
- Ethical issues regarding recruitment to research studies within the primary care consultation
- (2008) S. Wilson et al. FAMILY PRACTICE
- Size matters: just how big is BIG?: Quantifying realistic sample size requirements for human genome epidemiology
- (2008) P. R. Burton et al. INTERNATIONAL JOURNAL OF EPIDEMIOLOGY
- Opt-out plus, the patients' choice: preferences of cancer patients concerning information and consent regimen for future research with biological samples archived in the context of treatment
- (2008) E Vermeulen et al. JOURNAL OF CLINICAL PATHOLOGY
- Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations
- (2008) Susan M. Wolf et al. JOURNAL OF LAW MEDICINE & ETHICS
- Ethics review of research: in pursuit of proportionality
- (2008) S J L Edwards et al. JOURNAL OF MEDICAL ETHICS
- Genetic research on rare familial disorders: consent and the blurred boundaries between clinical service and research
- (2008) M Ponder et al. JOURNAL OF MEDICAL ETHICS
- Sources of data for a longitudinal birth cohort
- (2008) Jean Golding et al. PAEDIATRIC AND PERINATAL EPIDEMIOLOGY
Become a Peeref-certified reviewer
The Peeref Institute provides free reviewer training that teaches the core competencies of the academic peer review process.
Get StartedAsk a Question. Answer a Question.
Quickly pose questions to the entire community. Debate answers and get clarity on the most important issues facing researchers.
Get Started