Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation

COVID-19: Impact on Pediatric Palliative Care

(2022) Hannah May Scott et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries

(2022) Eve Namisango et al.   PALLIATIVE MEDICINE

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

(2021) L. Coombes et al.   QUALITY OF LIFE RESEARCH

COSMIN reporting guideline for studies on measurement properties of patient-reported outcome measures

(2021) Joel J. Gagnier et al.   QUALITY OF LIFE RESEARCH

The development and cognitive testing of the positive outcomes HIV PROM: a brief novel patient-reported outcome measure for adults living with HIV

(2020) K. Bristowe et al.   Health and Quality of Life Outcomes

Face and Content Validity, Acceptability, and Feasibility of the Adapted Version of the Children's Palliative Outcome Scale: A Qualitative Pilot Study

(2020) Marie Friedel et al.   JOURNAL OF PALLIATIVE MEDICINE

Delphi Technique in Health Sciences: A Map

(2020) Marlen Niederberger et al.   Frontiers in Public Health

Estimating the current and future prevalence of life-limiting conditions in children in England

(2020) Lorna K Fraser et al.   PALLIATIVE MEDICINE

Core outcome domains of pediatric palliative care for children with severe neurological impairment and their families: A qualitative interview study

(2019) Sophie Ribbers et al.   PALLIATIVE MEDICINE

COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study

(2018) C. B. Terwee et al.   QUALITY OF LIFE RESEARCH

Research prioritisation exercises related to the care of children and young people with life-limiting conditions, their parents and all those who care for them: A systematic scoping review

(2018) Alison Booth et al.   PALLIATIVE MEDICINE

Estimating the Global Need for Palliative Care for Children: A Cross-sectional Analysis

(2017) Stephen R. Connor et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

(2017) Saskia Jünger et al.   PALLIATIVE MEDICINE

Agreeing the content of a patient-reported outcome measure for primary care: a Delphi consensus study

(2016) Mairead Murphy et al.   HEALTH EXPECTATIONS

Health-related quality-of-life outcome measures in paediatric palliative care: A systematic review of psychometric properties and feasibility of use

(2016) Lucy H Coombes et al.   PALLIATIVE MEDICINE

Capture, Transfer, and Feedback of Patient-Centered Outcomes Data in Palliative Care Populations: Does It Make a Difference? A Systematic Review

(2015) Simon Noah Etkind et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

A Systematic Review of the Use of the Palliative Care Outcome Scale and the Support Team Assessment Schedule in Palliative Care

(2015) Emily S. Collins et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Research Priorities in Pediatric Palliative Care

(2015) Justin N. Baker et al.   JOURNAL OF PEDIATRICS

EAPC White Paper on outcome measurement in palliative care: Improving practice, attaining outcomes and delivering quality services – Recommendations from the European Association for Palliative Care (EAPC) Task Force on Outcome Measurement

(2015) Claudia Bausewein et al.   PALLIATIVE MEDICINE

Priorities for global research into children’s palliative care: results of an International Delphi Study

(2015) Julia Downing et al.   BMC Palliative Care

A systematic assessment of rigor in information systems ranking-type Delphi studies

(2013) Guy Paré et al.   INFORMATION & MANAGEMENT

Implementing patient-reported outcome measures in palliative care clinical practice: A systematic review of facilitators and barriers

(2013) Bárbara Antunes et al.   PALLIATIVE MEDICINE

Paediatric palliative care: development and pilot study of a ‘Directory’ of life-limiting conditions

(2013) Richard Hain et al.   BMC Palliative Care

Moving Toward Quality Palliative Cancer Care: Parent and Clinician Perspectives on Gaps Between What Matters and What Is Accessible

(2012) Alisha Kassam et al.   JOURNAL OF CLINICAL ONCOLOGY

Developing a Valid Patient-Reported Outcome Measure

(2011) N E Rothrock et al.   CLINICAL PHARMACOLOGY & THERAPEUTICS

The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes

(2010) Lidwine B. Mokkink et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY