Informal caregivers and advance care planning: systematic review with qualitative meta-synthesis

Comparing Advance Care Planning in Young-Onset Dementia in the USA vs Belgium: Challenges Partly Related to Societal Context

(2020) Romy Van Rickstal et al.   Journal of the American Medical Directors Association

Deconstructing the Complexities of Advance Care Planning Outcomes: What Do We Know and Where Do We Go? A Scoping Review

(2020) Ryan D. McMahan et al.   JOURNAL OF THE AMERICAN GERIATRICS SOCIETY

End-of-Life Cancer Care Redesign: Patient and Caregiver Experiences in a Lay Health Worker–Led Intervention

(2019) Manali I. Patel et al.   American Journal of Hospice & Palliative Medicine

Framing advance care planning in Parkinson disease

(2019) Hillary D. Lum et al.   NEUROLOGY

Significance of advance care planning in nursing homes: views from patients with cognitive impairment, their next of kin, health personnel, and managers

(2019) Trygve Johannes Lereim Sævareid et al.   Clinical Interventions in Aging

Limited engagement in, yet clear preferences for advance care planning in young-onset dementia: An exploratory interview-study with family caregivers

(2019) Romy Van Rickstal et al.   PALLIATIVE MEDICINE

End-of-life experiences in dementia with Lewy bodies: Qualitative interviews with former caregivers

(2019) Melissa J. Armstrong et al.   PLoS One

Advance care planning in glioblastoma patients: development of a disease-specific ACP program

(2019) Lara Fritz et al.   SUPPORTIVE CARE IN CANCER

Trained facilitators’ experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial

(2019) M. Zwakman et al.   BMC CANCER

Relational autonomy: what does it mean and how is it used in end-of-life care? A systematic review of argument-based ethics literature

(2019) Carlos Gómez-Vírseda et al.   BMC Medical Ethics

An Interview Study of Patient and Caregiver Perspectives on Advance Care Planning in ESRD

(2018) Marcus Sellars et al.   AMERICAN JOURNAL OF KIDNEY DISEASES

Improving the usefulness of a tool for appraising the quality of qualitative, quantitative and mixed methods studies, the Mixed Methods Appraisal Tool (MMAT)

(2018) Quan Nha Hong et al.   JOURNAL OF EVALUATION IN CLINICAL PRACTICE

Advance Care Planning in a Multicultural Family Centric Community: A Qualitative Study of Health Care Professionals', Patients', and Caregivers' Perspectives

(2018) Sumytra Menon et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Overview of Systematic Reviews of Advance Care Planning: Summary of Evidence and Global Lessons

(2018) Geronimo Jimenez et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Advance care planning: A systematic review about experiences of patients with a life-threatening or life-limiting illness

(2018) M Zwakman et al.   PALLIATIVE MEDICINE

Family Caregivers’ Characterization of Conversations Following an ACP Event

(2018) Jane R. Schubart et al.   American Journal of Hospice & Palliative Medicine

Planning for an uncertain future in progressive neurological disease: a qualitative study of patient and family decision-making with a focus on eating and drinking

(2018) Gemma Clarke et al.   BMC Neurology

The importance of trust-based relations and a holistic approach in advance care planning with people with dementia in primary care: a qualitative study

(2018) Bram Tilburgs et al.   BMC Geriatrics

Experiences with and outcomes of Advance Care Planning in bereaved relatives of frail older patients: a mixed methods study

(2018) Anouk Overbeek et al.   AGE AND AGEING

Attitudes of the General Public, Cancer Patients, Family Caregivers, and Physicians toward Advance Care Planning: A Nationwide Survey Prior to the Enforcement of the Life-Sustaining Treatment Decision-Making Act

(2018) Hye Yoon Park et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Barriers to and Facilitators of South Asian Indian-Americans’ Engagement in Advanced Care Planning Behaviors

(2017) Kavita Radhakrishnan et al.   JOURNAL OF NURSING SCHOLARSHIP

Defining Advance Care Planning for Adults: A Consensus Definition From a Multidisciplinary Delphi Panel

(2017) Rebecca L. Sudore et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Managing ‘shades of grey’: a focus group study exploring community-dwellers’ views on advance care planning in older people

(2017) Natasha Michael et al.   BMC Palliative Care

“I just think that we should be informed” a qualitative study of family involvement in advance care planning in nursing homes

(2016) Lisbeth Thoresen et al.   BMC Medical Ethics

A Dyadic Perspective on Engagement in Advance Care Planning

(2016) Terri Fried et al.   JOURNAL OF THE AMERICAN GERIATRICS SOCIETY

Advance care planning in motor neuron disease: A qualitative study of caregiver perspectives

(2016) Leigh Murray et al.   PALLIATIVE MEDICINE

Process and impact of an advance care planning intervention evaluated by bereaved surrogate decision-makers of dialysis patients

(2016) Mi-Kyung Song et al.   PALLIATIVE MEDICINE

Experiences and perspectives of older people regarding advance care planning: A meta-synthesis of qualitative studies

(2016) Li-Shan Ke et al.   PALLIATIVE MEDICINE

Exploring the utility of the vignette technique in promoting advance care planning discussions with cancer patients and caregivers

(2016) Natasha Michael et al.   PATIENT EDUCATION AND COUNSELING

An ethnographic study of strategies to support discussions with family members on end-of-life care for people with advanced dementia in nursing homes

(2016) Geena Saini et al.   BMC Palliative Care

Advance Care Planning: A Qualitative Study of Dialysis Patients and Families

(2015) S. L. Goff et al.   Clinical Journal of the American Society of Nephrology

Person-Centered Care: A Definition and Essential Elements

(2015)   JOURNAL OF THE AMERICAN GERIATRICS SOCIETY

Advance Care Planning in Nursing Home Patients With Dementia: A Qualitative Interview Study Among Family and Professional Caregivers

(2015) Mirjam C. van Soest-Poortvliet et al.   Journal of the American Medical Directors Association

They know!—Do they? A qualitative study of residents and relatives views on advance care planning, end-of-life care, and decision-making in nursing homes

(2015) Georg Bollig et al.   PALLIATIVE MEDICINE

End-of-life care communications and shared decision-making in Norwegian nursing homes - experiences and perspectives of patients and relatives

(2015) Elisabeth Gjerberg et al.   BMC Geriatrics

A mixed method feasibility study of a patient- and family-centred advance care planning intervention for cancer patients

(2015) Natasha Michael et al.   BMC Palliative Care

Burden of caring

(2015) Anna Strömberg et al.   Current Opinion in Supportive and Palliative Care

Advance care planning among hematopoietic cell transplant patients and bereaved caregivers

(2014) E T Loggers et al.   BONE MARROW TRANSPLANTATION

The effects of advance care planning on end-of-life care: A systematic review

(2014) Arianne Brinkman-Stoppelenburg et al.   PALLIATIVE MEDICINE

A qualitative analysis of responses to a question prompt list and prognosis and end-of-life care discussion prompts delivered in a communication support program

(2014) Adam Walczak et al.   PSYCHO-ONCOLOGY

Planning for tomorrow whilst living for today: the views of people with dementia and their families on advance care planning

(2013) Claire Dickinson et al.   INTERNATIONAL PSYCHOGERIATRICS

The evaluation of a palliative care programme for people suffering from life-limiting diseases

(2013) Carmen WH Chan et al.   JOURNAL OF CLINICAL NURSING

Ready or Not

(2013) Hannah Chen et al.   JOURNAL OF NEUROSCIENCE NURSING

Perspectives of Family Members on Planning End-of-Life Care for Terminally Ill and Frail Older People

(2013) Ineke J. van Eechoud et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Cancer Caregivers Advocate a Patient- and Family-Centered Approach to Advance Care Planning

(2013) Natasha Michael et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Understanding of Advance Care Planning by Family Members of Persons Undergoing Hemodialysis

(2013) Amy O. Calvin et al.   WESTERN JOURNAL OF NURSING RESEARCH

Failure to Engage Hospitalized Elderly Patients and Their Families in Advance Care Planning

(2013) Daren K. Heyland   JAMA Internal Medicine

‘Not yet’ and ‘Just ask’: barriers and facilitators to advance care planning—a qualitative descriptive study of the perspectives of seriously ill, older patients and their families

(2013) Jessica Simon et al.   BMJ Supportive & Palliative Care

Preferences for end-of-life care: A nominal group study of people with dementia and their family carers

(2012) Karen H Dening et al.   PALLIATIVE MEDICINE

An exploratory study of the knowledge, attitudes and perceptions of advance care planning in family caregivers of patients with advanced illness in Singapore: Table 1

(2012) Raymond Ng et al.   BMJ Supportive & Palliative Care

Advanced care planning in care homes for older people: a qualitative study of the views of care staff and families

(2011) F. Stewart et al.   AGE AND AGEING

Advance Care Planning Decision Making Among Asian Pacific Islander Family Caregivers of Stage 4 to 5 Chronic Kidney Disease Patients on Hemodialysis

(2011) Merle R. Kataoka-Yahiro et al.   Journal of Hospice & Palliative Nursing

Randomized controlled trial of SPIRIT: An effective approach to preparing African-American dialysis patients and families for end of life

(2009) Mi-Kyung Song et al.   RESEARCH IN NURSING & HEALTH

Experiences with advance care planning: older people and family members’ perspective

(2009) Sarah Yeun-Sim Jeong et al.   International Journal of Older People Nursing

Methods for the thematic synthesis of qualitative research in systematic reviews

(2008) James Thomas et al.   BMC Medical Research Methodology

Associations Between End-of-Life Discussions, Patient Mental Health, Medical Care Near Death, and Caregiver Bereavement Adjustment

(2008) Alexi A. Wright   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION