Limited engagement in, yet clear preferences for advance care planning in young-onset dementia: An exploratory interview-study with family caregivers

Advance care planning in dementia: recommendations for healthcare professionals

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Exploring perspectives of young onset dementia caregivers with high versus low unmet needs

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Young-onset Alzheimer dementia: a comparison of Brazilian and Norwegian carers' experiences and needs for assistance

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Defining Advance Care Planning for Adults: A Consensus Definition From a Multidisciplinary Delphi Panel

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Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care

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Existential decision-making in a fatal progressive disease: how much do legal and medical frameworks matter?

(2017) Christian Weber et al.   BMC Palliative Care

A Research Agenda for Communication Between Health Care Professionals and Patients Living With Serious Illness

(2017) James A. Tulsky et al.   JAMA Internal Medicine

Why aren't people with young onset dementia and their supporters using formal services? Results from the INSPIRED study

(2017) Monica Cations et al.   PLoS One

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The care needs and experiences with the use of services of people with young-onset dementia and their caregivers: a systematic review

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Palliative Care in People With Young-Onset Dementia (YOD): An Undiscovered Area!

(2015) Raymond T.C.M. Koopmans et al.   Journal of the American Medical Directors Association

Everyday decision-making in dementia: findings from a longitudinal interview study of people with dementia and family carers

(2013) Kritika Samsi et al.   INTERNATIONAL PSYCHOGERIATRICS

Planning for tomorrow whilst living for today: the views of people with dementia and their families on advance care planning

(2013) Claire Dickinson et al.   INTERNATIONAL PSYCHOGERIATRICS

The Challenges of Service Provision in Younger-Onset Dementia

(2013) Adrienne Withall   Journal of the American Medical Directors Association

White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care

(2013) Jenny T van der Steen et al.   PALLIATIVE MEDICINE