A beginner’s guide to data stewardship and data sharing

Reduce, reuse, recycle: good stewardship of research data

(2019) Marcel Dijkers   SPINAL CORD

Facilitators and Barriers to International Collaboration in Spinal Cord Injury: Results from a Survey of Clinicians and Researchers

(2018) Vanessa K. Noonan et al.   JOURNAL OF NEUROTRAUMA

Data sharing: making good on promises

(2018) Elizabeth Loder   BMJ-British Medical Journal

Data sharing: making good on promises

(2018) Elizabeth Loder   BMJ-British Medical Journal

Navigating the unfolding open data landscape in ecology and evolution

(2018) Antica Culina et al.   Nature Ecology & Evolution

Open access to research data

(2017) Stefan De Hert et al.   EUROPEAN JOURNAL OF ANAESTHESIOLOGY

Developing a data sharing community for spinal cord injury research

(2017) Alison Callahan et al.   EXPERIMENTAL NEUROLOGY

Manuscripts Based on Datasets Shared by Clinical Research Studies

(2017) Mark A. Hlatky et al.   JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY

Peer-review activists push psychology journals towards open data

(2017) Gautam Naik   NATURE

Lack of data sharing in observational studies

(2017) Laura McDonald et al.   BMJ-British Medical Journal

Lack of data sharing in observational studies

(2017) Laura McDonald et al.   BMJ-British Medical Journal

Harmonization of Databases: A Step for Advancing the Knowledge About Spinal Cord Injury

(2016) Susan Charlifue et al.   ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION

EFSPI/PSI working group on data sharing: accessing and working with pharmaceutical clinical trial patient level datasets – a primer for academic researchers

(2016) Rebecca Sudlow et al.   BMC Medical Research Methodology

Use of Open Access Platforms for Clinical Trial Data

(2016) Ann Marie Navar et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Current applications and future directions for the CDISC Operational Data Model standard: A methodological review

(2016) Sam Hume et al.   JOURNAL OF BIOMEDICAL INFORMATICS

UK publicly funded Clinical Trials Units supported a controlled access approach to share individual participant data but highlighted concerns

(2016) Carolyn Hopkins et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

(2016) Karen Spencer et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Data Sharing

(2016) Dan L. Longo et al.   NEW ENGLAND JOURNAL OF MEDICINE

From Patient to Patient — Sharing the Data from Clinical Trials

(2016) Charlotte J. Haug   NEW ENGLAND JOURNAL OF MEDICINE

Avoiding Data Dumpsters — Toward Equitable and Useful Data Sharing

(2016) Laura Merson et al.   NEW ENGLAND JOURNAL OF MEDICINE

Thanks for sharing: the bumpy road towards truly open data

(2016) Michael J Murray   BMJ-British Medical Journal

Thanks for sharing: the bumpy road towards truly open data

(2016) Michael J Murray   BMJ-British Medical Journal

How open science helps researchers succeed

(2016) Erin C McKiernan et al.   eLife

Recommendations for open data science

(2016) Melissa Gymrek et al.   GigaScience

The Peer Reviewers' Openness Initiative: incentivizing open research practices through peer review

(2016) Richard D. Morey et al.   Royal Society Open Science

Data Safe Havens in health research and healthcare

(2015) Paul R. Burton et al.   BIOINFORMATICS

Better prioritization to increase research value and decrease waste

(2015) Agnes Dechartres et al.   BMC Medicine

Addressing Global Data Sharing Challenges

(2015) George C. Alter et al.   Journal of Empirical Research on Human Research Ethics

Impact of Open Data Policies on Consent to Participate in Human Subjects Research: Discrepancies between Participant Action and Reported Concerns

(2015) Jorden A. Cummings et al.   PLoS One

Common data elements for spinal cord injury clinical research: a National Institute for Neurological Disorders and Stroke project

(2015) F Biering-Sørensen et al.   SPINAL CORD

Why data sharing should be the expected norm

(2015) H. M. Krumholz   BMJ-British Medical Journal

Why data sharing should be the expected norm

(2015) H. M. Krumholz   BMJ-British Medical Journal

Data journals: A survey

(2015) Leonardo Candela et al.   Journal of the Association for Information Science and Technology

Open and Abundant Data is the Future of Rehabilitation and Research

(2014) Duncan R. Babbage   ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION

Increasing value and reducing waste in research design, conduct, and analysis

(2014) John P A Ioannidis et al.   LANCET

Big data from small data: data-sharing in the 'long tail' of neuroscience

(2014) Adam R Ferguson et al.   NATURE NEUROSCIENCE

Data sharing policy design for consortia: challenges for sustainability

(2014) Jane Kaye et al.   Genome Medicine

Data reuse and the open data citation advantage

(2013) Heather A. Piwowar et al.   PeerJ

Data Sharing by Scientists: Practices and Perceptions

(2011) Carol Tenopir et al.   PLoS One