Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

Patient and public attitudes towards informed consent models and levels of awareness of Electronic Health Records in the UK

(2015) Fiona Riordan et al.   INTERNATIONAL JOURNAL OF MEDICAL INFORMATICS

The social licence for research: whycare.dataran into trouble

(2015) Pam Carter et al.   JOURNAL OF MEDICAL ETHICS

Dynamic consent: a patient interface for twenty-first century research networks

(2014) Jane Kaye et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Prevalence of comorbidities in rheumatoid arthritis and evaluation of their monitoring: results of an international, cross-sectional study (COMORA)

(2013) Maxime Dougados et al.   ANNALS OF THE RHEUMATIC DISEASES

“Let’s get the best quality research we can”: public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study

(2013) Elizabeth M Hill et al.   BMC Medical Research Methodology

Patient and Public Views on Electronic Health Records and Their Uses in the United Kingdom: Cross-Sectional Survey

(2013) Serena A Luchenski et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Patient confidentiality in a time of care.data

(2013) J. Sheather et al.   BMJ-British Medical Journal

Exploring barriers to participation and adoption of telehealth and telecare within the Whole System Demonstrator trial: a qualitative study

(2012) Caroline Sanders et al.   BMC HEALTH SERVICES RESEARCH

Public attitudes to the use in research of personal health information from general practitioners' records: a survey of the Irish general public

(2010) B. S. Buckley et al.   JOURNAL OF MEDICAL ETHICS

How to Develop Patient-Centered Research: Some Perspectives Based on Surveys Among People With Rheumatic Diseases in Scandinavia

(2010) I. Kjeken et al.   PHYSICAL THERAPY

Consent for use of personal information for health research: Do people with potentially stigmatizing health conditions and the general public differ in their opinions?

(2009) Donald J Willison et al.   BMC Medical Ethics

Why do people cooperate with medical research? Findings from three studies

(2009) Mary Dixon-Woods et al.   SOCIAL SCIENCE & MEDICINE