Data sharing policy design for consortia: challenges for sustainability

Reforming Biobank Consent Policy: A Necessary Move Away from Broad Consent Toward Dynamic Consent

(2013) Dorit T. Stein et al.   Genetic Testing and Molecular Biomarkers

On Sharing Quantitative Trait GWAS Results in an Era of Multiple-omics Data and the Limits of Genomic Privacy

(2012) Hae Kyung Im et al.   AMERICAN JOURNAL OF HUMAN GENETICS

From patients to partners: participant-centric initiatives in biomedical research

(2012) Jane Kaye et al.   NATURE REVIEWS GENETICS

ELSI 2.0 for Genomics and Society

(2012) J. Kaye et al.   SCIENCE

Data sharing: not as simple as it seems

(2011) Neil Pearce et al.   Environmental Health

From single biobanks to international networks: developing e-governance

(2011) Jane Kaye   HUMAN GENETICS

Sharing research data to improve public health

(2011) Mark Walport et al.   LANCET

The role of a bioresource research impact factor as an incentive to share human bioresources

(2011) Anne Cambon-Thomsen et al.   NATURE GENETICS

Data Sharing by Scientists: Practices and Perceptions

(2011) Carol Tenopir et al.   PLoS One

Developing and implementing an institute-wide data sharing policy

(2011) Stephanie OM Dyke et al.   Genome Medicine

International network of cancer genome projects

(2010) Thomas J. Hudson (Chairperson) et al.   NATURE

‘Access Arrangements’ for Biobanks: A Fine Line between Facilitating and Hindering Collaboration

(2010) S. Fortin et al.   Public Health Genomics

The UK DNA banking network: a “fair access” biobank

(2009) Martin Yuille et al.   CELL AND TISSUE BANKING

Data sharing in genomics — re-shaping scientific practice

(2009) Jane Kaye et al.   NATURE REVIEWS GENETICS

Empirical Study of Data Sharing by Authors Publishing in PLoS Journals

(2009) Caroline J. Savage et al.   PLoS One

PNAS takes action regarding breach of NIH embargo policy on a PNAS paper

(2009) R. Schekman   PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES OF THE UNITED STATES OF AMERICA

Why data-sharing policies matter

(2009) A. E. Guttmacher et al.   PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES OF THE UNITED STATES OF AMERICA

'Omics Data Sharing

(2009) D. Field et al.   SCIENCE

Ethical Data Release in Genome-Wide Association Studies in Developing Countries

(2009) Michael Parker et al.   PLOS MEDICINE

A global network for investigating the genomic epidemiology of malaria

(2008) Eric Akum Achidi et al.   NATURE

DNA SEQUENCING: A Plan to Capture Human Diversity in 1000 Genomes

(2008) J. Kaiser   SCIENCE

Resolving Individuals Contributing Trace Amounts of DNA to Highly Complex Mixtures Using High-Density SNP Genotyping Microarrays

(2008) Nils Homer et al.   PLoS Genetics