Enhancing diversity to reduce health information disparities and build an evidence base for genomic medicine

The Influence of Big (Clinical) Data and Genomics on Precision Medicine and Drug Development

(2018) Joshua C. Denny et al.   CLINICAL PHARMACOLOGY & THERAPEUTICS

Lack Of Diversity In Genomic Databases Is A Barrier To Translating Precision Medicine Research Into Practice

(2018) Latrice G. Landry et al.   HEALTH AFFAIRS

Perfectly Secure and Efficient Two-Party Electronic-Health-Record Linkage

(2018) Feng Chen et al.   IEEE INTERNET COMPUTING

Association of Racial/Ethnic Categories With the Ability of Genetic Tests to Detect a Cause of Cardiomyopathy

(2018) Latrice G. Landry et al.   JAMA Cardiology

Big Data Science: Opportunities and Challenges to Address Minority Health and Health Disparities in the 21st Century

(2017) Xinzhi Zhang et al.   ETHNICITY & DISEASE

Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation

(2017) Mahsa Shabani et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

A proposed approach to accelerate evidence generation for genomic-based technologies in the context of a learning health system

(2017) Christine Y Lu et al.   GENETICS IN MEDICINE

Mapping Neighborhood Health Geomarkers To Clinical Care Decisions To Promote Equity In Child Health

(2017) Andrew F. Beck et al.   HEALTH AFFAIRS

Biases introduced by filtering electronic health records for patients with “complete data”

(2017) Griffin M Weber et al.   JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION

Achieving Equity in an Evolving Healthcare System: Opportunities and Challenges

(2016) Joni Strom Williams et al.   AMERICAN JOURNAL OF THE MEDICAL SCIENCES

Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States

(2016) Shuang Wang et al.   Annals of the New York Academy of Sciences

Implementation Science

(2016) Elliott S. Fisher et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Convergence of Implementation Science, Precision Medicine, and the Learning Health Care System

(2016) David A. Chambers et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Addressing Social Determinants of Health and Health Inequalities

(2016) Nancy E. Adler et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Million Veteran Program: A mega-biobank to study genetic influences on health and disease

(2016) John Michael Gaziano et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Biospecimen Sharing Among Hispanic Women in a Safety-Net Clinic: Implications for the Precision Medicine Initiative

(2016) Jesse N. Nodora et al.   JNCI-Journal of the National Cancer Institute

Genomics is failing on diversity

(2016) Alice B. Popejoy et al.   NATURE

Assessing the Gold Standard — Lessons from the History of RCTs

(2016) Laura E. Bothwell et al.   NEW ENGLAND JOURNAL OF MEDICINE

Genetic Misdiagnoses and the Potential for Health Disparities

(2016) Arjun K. Manrai et al.   NEW ENGLAND JOURNAL OF MEDICINE

Epigenetics and Human Disease

(2016) Huda Y. Zoghbi et al.   Cold Spring Harbor Perspectives in Biology

Changes in Demographics of Patients Seen at Federally Qualified Health Centers, 2005-2014

(2016) Julia B. Nath et al.   JAMA Internal Medicine

Biospecimen Sharing Among Hispanic Women in a Safety-Net Clinic: Implications for the Precision Medicine Initiative

(2016) Jesse N. Nodora et al.   JNCI-Journal of the National Cancer Institute

The FAIR Guiding Principles for scientific data management and stewardship

(2016) Mark D. Wilkinson et al.   Scientific Data

Ensuring Public Health’s Future in a National-Scale Learning Health System

(2015) Jennifer A. Bernstein et al.   AMERICAN JOURNAL OF PREVENTIVE MEDICINE

Missed Policy Opportunities to Advance Health Equity by Recording Demographic Data in Electronic Health Records

(2015) Megan Daugherty Douglas et al.   AMERICAN JOURNAL OF PUBLIC HEALTH

Preemptive Clinical Pharmacogenetics Implementation: Current Programs in Five US Medical Centers

(2015) Henry M. Dunnenberger et al.   Annual Review of Pharmacology and Toxicology

A New Initiative on Precision Medicine

(2015) Francis S. Collins et al.   NEW ENGLAND JOURNAL OF MEDICINE

Twenty years post-NIH Revitalization Act: Enhancing minority participation in clinical trials (EMPaCT): Laying the groundwork for improving minority clinical trial accrual

(2014) Moon S. Chen et al.   CANCER

The PCORI Perspective on Patient-Centered Outcomes Research

(2014) Lori Frank et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Some experiences and opportunities for big data in translational research

(2013) Christopher G. Chute et al.   GENETICS IN MEDICINE

Privacy preserving interactive record linkage (PPIRL)

(2013) Hye-Chung Kum et al.   JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION

Confronting diversity in the production of clinical evidence goes beyond merely including under-represented groups in clinical trials

(2013) Karien Stronks et al.   Trials

Optimizing Drug Outcomes Through Pharmacogenetics: A Case for Preemptive Genotyping

(2012) J S Schildcrout et al.   CLINICAL PHARMACOLOGY & THERAPEUTICS

Design and Implementation of the Hispanic Community Health Study/Study of Latinos

(2010) Paul D. Sorlie et al.   ANNALS OF EPIDEMIOLOGY