You never call, you never write: why return of ‘omic’ results to research participants is both a good idea and a moral imperative

Answering the Hard Questions: The Genetic Testing Registry and Its Request for Information

(2011) Amanda Field et al.   Genetic Testing and Molecular Biomarkers

Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

(2011) Annelien L. Bredenoord et al.   HUMAN MUTATION

Rapid detection of a mutation causing X-linked leucoencephalopathy by exome sequencing

(2011) Y. Tsurusaki et al.   JOURNAL OF MEDICAL GENETICS

Field guide to next-generation DNA sequencers

(2011) TRAVIS C. GLENN   Molecular Ecology Resources

Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm

(2011) Paul Wicks et al.   NATURE BIOTECHNOLOGY

Effect of Direct-to-Consumer Genomewide Profiling to Assess Disease Risk

(2011) Cinnamon S. Bloss et al.   NEW ENGLAND JOURNAL OF MEDICINE

Deflating the Genomic Bubble

(2011) J. P. Evans et al.   SCIENCE

Power to the People: Participant Ownership of Clinical Trial Data

(2011) S. F. Terry et al.   Science Translational Medicine

Whole-Exome-Sequencing-Based Discovery of Human FADD Deficiency

(2010) Alexandre Bolze et al.   AMERICAN JOURNAL OF HUMAN GENETICS

Statement of the ESHG on direct-to-consumer genetic testing for health-related purposes

(2010)   EUROPEAN JOURNAL OF HUMAN GENETICS

The role of disease perceptions and results sharing in psychological adaptation after genetic susceptibility testing: the REVEAL Study

(2010) Sato Ashida et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Evidence-based classification of recommendations on use of genomic tests in clinical practice: Dealing with insufficient evidence

(2010) Muin J Khoury et al.   GENETICS IN MEDICINE

The rules remain the same for genomic medicine: The case against “reverse genetic exceptionalism”

(2010) James P Evans et al.   GENETICS IN MEDICINE

Making a definitive diagnosis: Successful clinical application of whole exome sequencing in a child with intractable inflammatory bowel disease

(2010) Elizabeth A Worthey et al.   GENETICS IN MEDICINE

Consumer perceptions of direct-to-consumer personalized genomic risk assessments

(2010) Cinnamon S Bloss et al.   GENETICS IN MEDICINE

A timely arrival for genomic medicine

(2010) Alan N Mayer et al.   GENETICS IN MEDICINE

Identification by whole-genome resequencing of gene defect responsible for severe hypercholesterolemia

(2010) J. Rios et al.   HUMAN MOLECULAR GENETICS

Sharing Health Data for Better Outcomes on PatientsLikeMe

(2010) Paul Wicks et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

The rise of the genome bloggers

(2010) Ewen Callaway   NATURE

Genetic exceptionalism

(2010) William Bains   NATURE BIOTECHNOLOGY

Haplotype-resolved genome sequencing of a Gujarati Indian individual

(2010) Jacob O Kitzman et al.   NATURE BIOTECHNOLOGY

Personalized investigation

(2010) Elie Dolgin   NATURE MEDICINE

DNA, drugs and chariots: on a decade of pharmacogenomics at the US FDA

(2010) Lawrence J Lesko et al.   PHARMACOGENOMICS

Molecular Diagnosis of Neonatal Diabetes Mellitus Using Next-Generation Sequencing of the Whole Exome

(2010) Amélie Bonnefond et al.   PLoS One

Prioritizing Science Education

(2010) B. Alberts   SCIENCE

Science Education: Neglected

(2010) R. Calfee et al.   SCIENCE

The World of e-Patients: A Content Analysis of Online Social Networks Focusing on Diseases

(2010) Grazia Orizio et al.   Telemedicine and e-Health

Disclosure of individual genetic data to research participants: the debate reconsidered

(2010) Annelien L. Bredenoord et al.   TRENDS IN GENETICS

Whole-Genome Sequencing of a Single Proband Together with Linkage Analysis Identifies a Mendelian Disease Gene

(2010) Nara L. M. Sobreira et al.   PLoS Genetics

The Characterization of Twenty Sequenced Human Genomes

(2010) Kimberly Pelak et al.   PLoS Genetics

Sequencing and analysis of an Irish human genome

(2010) Pin Tong et al.   GENOME BIOLOGY

Toxic ignorance and right-to-know in biomonitoring results communication: a survey of scientists and study participants

(2009) Rachel Morello-Frosch et al.   Environmental Health

Personal genomics: information can be harmful

(2009) D. F. Ransohoff et al.   EUROPEAN JOURNAL OF CLINICAL INVESTIGATION

Genetic Information Nondiscrimination Act Insurance Protections Issued

(2009) Sharon F. Terry   Genetic Testing and Molecular Biomarkers

Straight talk with...Mac Cowell and Jason Bobe

(2009) Prashant Nair   NATURE MEDICINE

Disclosure ofAPOEGenotype for Risk of Alzheimer's Disease

(2009) Robert C. Green et al.   NEW ENGLAND JOURNAL OF MEDICINE

Does genomic risk information motivate people to change their behavior?

(2009) Nora B Henrikson et al.   Genome Medicine

An Unwelcome Side Effect of Direct-to-Consumer Personal Genome Testing

(2008) Amy L. McGuire et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Incidental Findings in Genetics Research Using Archived DNA

(2008) Ellen Wright Clayton   JOURNAL OF LAW MEDICINE & ETHICS

The scientist delusion

(2008) David Goldston   NATURE

Gene Concepts and Genethics: Beyond Exceptionalism

(2008) Péter Kakuk   SCIENCE AND ENGINEERING ETHICS