Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants

(2010) Richard R. Fabsitz et al.   Circulation-Cardiovascular Genetics

What Physician-Investigators Owe Patients Who Participate in Research

(2010) Paul Litton et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Challenges in the clinical application of whole-genome sequencing

(2010) Kelly E Ormond et al.   LANCET

Clinical assessment incorporating a personal genome

(2010) Euan A Ashley et al.   LANCET

New mutations and intellectual function

(2010) James R Lupski   NATURE GENETICS

A de novo paradigm for mental retardation

(2010) Lisenka E L M Vissers et al.   NATURE GENETICS

Multidimensional Results Reporting to Participants in Genomic Studies: Getting It Right

(2010) I. S. Kohane et al.   Science Translational Medicine

Offering Individual Genetic Research Results: Context Matters

(2010) L. M. Beskow et al.   Science Translational Medicine

Disclosure of individual genetic data to research participants: the debate reconsidered

(2010) Annelien L. Bredenoord et al.   TRENDS IN GENETICS

Return of “Accurate” and “Actionable” Results: Yes!

(2009) Bartha Maria Knoppers et al.   AMERICAN JOURNAL OF BIOETHICS

Ethical implications of the use of whole genome methods in medical research

(2009) Jane Kaye et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

The ClinSeq Project: Piloting large-scale genome sequencing for research in genomic medicine

(2009) L. G. Biesecker et al.   GENOME RESEARCH

Understanding Incidental Findings in the Context of Genetics and Genomics

(2008) Mildred K. Cho   JOURNAL OF LAW MEDICINE & ETHICS

Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

(2008) Susan M. Wolf et al.   JOURNAL OF LAW MEDICINE & ETHICS