Sharing Health Data for Better Outcomes on PatientsLikeMe

Outcomes research in amyotrophic lateral sclerosis: Lessons learned from the amyotrophic lateral sclerosis clinical assessment, research, and education database

(2010) Robert G. Miller et al.   ANNALS OF NEUROLOGY

Effects of Internet Use on Health and Depression: A Longitudinal Study

(2010) Katie Bessière et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Assessing the Privacy Risks of Data Sharing in Genomics

(2010) C. Heeney et al.   Public Health Genomics

Communicating the Risk of Side Effects to Patients

(2009) Peter Knapp et al.   DRUG SAFETY

Measuring function in advanced ALS: validation of ALSFRS-EX extension items

(2009) P. Wicks et al.   EUROPEAN JOURNAL OF NEUROLOGY

Older Patients’ Enthusiasm to Use Electronic Mail to Communicate With Their Physicians: Cross-Sectional Survey

(2009) Hardeep Singh et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Pathological gambling amongst Parkinson's disease and ALS patients in an online community (PatientsLikeMe.com)

(2009) Paul Wicks et al.   MOVEMENT DISORDERS

The power of social networking in medicine

(2009) Catherine A Brownstein et al.   NATURE BIOTECHNOLOGY

E-mail in patient–provider communication: A systematic review

(2009) Jiali Ye et al.   PATIENT EDUCATION AND COUNSELING

Emerging Patient-Driven Health Care Models: An Examination of Health Social Networks, Consumer Personalized Medicine and Quantified Self-Tracking

(2009) Melanie Swan   International Journal of Environmental Research and Public Health

So Much to Do, So Little Time

(2008) Kevin Fiscella et al.   ARCHIVES OF INTERNAL MEDICINE

ALS patients request more information about cognitive symptoms

(2008) P. Wicks et al.   EUROPEAN JOURNAL OF NEUROLOGY

Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data

(2008) Jeana H Frost et al.   JOURNAL OF MEDICAL INTERNET RESEARCH