Patient-Powered Research Networks Aim To Improve Patient Care And Health Research

Ethical Oversight of Research on Patient Care

(2014) Mildred Z. Solomon et al.   HASTINGS CENTER REPORT

Ethics, Regulation, and Comparative Effectiveness Research

(2014) Richard Platt et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Launching PCORnet, a national patient-centered clinical research network

(2014) R. L. Fleurence et al.   JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION

Engagement, Peer Production, and the Learning Healthcare System

(2014) Michael Seid et al.   JAMA Pediatrics

Five Reasons That Many Comparative Effectiveness Studies Fail To Change Patient Care And Clinical Practice

(2013) Justin W. Timbie et al.   HEALTH AFFAIRS

How The Patient-Centered Outcomes Research Institute Is Engaging Patients And Others In Shaping Its Research Agenda

(2013) Rachael Fleurence et al.   HEALTH AFFAIRS

Where Are We on the Diffusion Curve? Trends and Drivers of Primary Care Physicians' Use of Health Information Technology

(2013) Anne-Marie Audet et al.   HEALTH SERVICES RESEARCH

Building Trust in the Power of “Big Data” Research to Serve the Public Good

(2013) Eric B. Larson   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

The Randomized Registry Trial — The Next Disruptive Technology in Clinical Research?

(2013) Michael S. Lauer et al.   NEW ENGLAND JOURNAL OF MEDICINE

Network News: Powering Clinical Research

(2013) J. V. Selby et al.   Science Translational Medicine

Disease advocacy organizations catalyze translational research

(2013) Sharon F. Terry   Frontiers in Genetics

Stakeholder Priorities for Comparative Effectiveness Research in Chronic Obstructive Pulmonary Disease

(2012) Jerry A. Krishnan et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

From patients to partners: participant-centric initiatives in biomedical research

(2012) Jane Kaye et al.   NATURE REVIEWS GENETICS

Improved Outcomes in a Quality Improvement Collaborative for Pediatric Inflammatory Bowel Disease

(2012) Wallace V. Crandall et al.   PEDIATRICS

Evidence-Based Practice and Health Advocacy Organizations

(2011) Lorraine B. Johnson et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm

(2011) Paul Wicks et al.   NATURE BIOTECHNOLOGY

Developing the Sentinel System — A National Resource for Evidence Development

(2011) Rachel E. Behrman et al.   NEW ENGLAND JOURNAL OF MEDICINE

Sharing Health Data for Better Outcomes on PatientsLikeMe

(2010) Paul Wicks et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Distributed Health Data Networks

(2010) Jeffrey S. Brown et al.   MEDICAL CARE

The “Meaningful Use” Regulation for Electronic Health Records

(2010) David Blumenthal et al.   NEW ENGLAND JOURNAL OF MEDICINE

Avoidable waste in the production and reporting of research evidence

(2009) Iain Chalmers et al.   LANCET

Improving Health Care Efficiency and Quality Using Tablet Personal Computers to Collect Research-Quality, Patient-Reported Data

(2008) Amy P. Abernethy et al.   HEALTH SERVICES RESEARCH