100 years lynch syndrome: what have we learned about psychosocial issues?

Point: Justification for Lynch Syndrome Screening Among All Patients With Newly Diagnosed Colorectal Cancer

(2017) Heather Hampel   Journal of the National Comprehensive Cancer Network

Genetic discrimination and life insurance: a systematic review of the evidence

(2013) Yann Joly et al.   BMC Medicine

Colorectal surveillance in Lynch syndrome families

(2013) Wouter H. de Vos tot Nederveen Cappel et al.   Familial Cancer

Lynch syndrome: the patients perspective

(2013) Jurgen Seppen et al.   Familial Cancer

Psychosocial consequences of predictive genetic testing for lynch syndrome and associations to surveillance behaviour in a 7-year follow-up study

(2013) Katja Aktan-Collan et al.   Familial Cancer

Behavioral and psychosocial responses to genomic testing for colorectal cancer risk

(2013) Kristi D. Graves et al.   GENOMICS

Revised guidelines for the clinical management of Lynch syndrome (HNPCC): recommendations by a group of European experts

(2013) Hans F A Vasen et al.   GUT

The Role of Religious and Existential Well-being in Families with Lynch Syndrome: Prevention, Family Communication, and Psychosocial Adjustment

(2013) Bronwyn A. Morris et al.   Journal of Genetic Counseling

Development and validation of a brief screening instrument for psychosocial risk associated with genetic testing: a pan-Canadian cohort study

(2013) Mary Jane Esplen et al.   BMJ Open

Living My Family’s Story

(2012) Meghan L. Underhill et al.   CANCER NURSING

First successful double-factor PGD for Lynch syndrome: monogenic analysis and comprehensive aneuploidy screening

(2012) G Daina et al.   CLINICAL GENETICS

The evolution of personalized cancer genetic counseling in the era of personalized medicine

(2012) Hetal S. Vig et al.   Familial Cancer

Psychological distress in newly diagnosed colorectal cancer patients following microsatellite instability testing for Lynch syndrome on the pathologist’s initiative

(2012) K. M. Landsbergen et al.   Familial Cancer

Catalysts to withdrawal from familial ovarian cancer screening for surgery and reactions to discontinued screening: a qualitative study

(2012) Kate J. Lifford et al.   Familial Cancer

Risks of Less Common Cancers in Proven Mutation Carriers With Lynch Syndrome

(2012) Christoph Engel et al.   JOURNAL OF CLINICAL ONCOLOGY

Translational genomic research: protocol development and initial outcomes following SNP testing for colon cancer risk

(2012) Rachel Nusbaum et al.   Translational Behavioral Medicine

Effects of a Decision Support Intervention on Decisional Conflict Associated with Microsatellite Instability Testing

(2011) M. J. Hall et al.   CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION

The Search for Unaffected Individuals with Lynch Syndrome: Do the Ends Justify the Means?

(2011) H. Hampel et al.   Cancer Prevention Research

Development and validation of an instrument to measure the impact of genetic testing on self-concept in Lynch syndrome

(2011) MJ Esplen et al.   CLINICAL GENETICS

Attitudes toward childbearing and prenatal testing in individuals undergoing genetic testing for Lynch Syndrome

(2011) Akriti Dewanwala et al.   Familial Cancer

Limited impact on self-concept in individuals with Lynch syndrome; results from a national cohort study

(2011) Helle Vendel Petersen et al.   Familial Cancer

Factors affecting encouragement of relatives among families with Lynch syndrome to seek medical assessment

(2011) Noriko Ishii et al.   Familial Cancer

Self Diagnosis of Lynch Syndrome Using Direct to Consumer Genetic Testing: A Case Study

(2011) Maegan E. Roberts et al.   Journal of Genetic Counseling

Validation of a Self-Concept Scale for Lynch Syndrome in Different Nationalities

(2011) Helle Vendel Petersen et al.   Journal of Genetic Counseling

Beliefs About Cancer and Diet among Those Considering Genetic Testing for Colon Cancer

(2011) Aunchalee E.L. Palmquist et al.   JOURNAL OF NUTRITION EDUCATION AND BEHAVIOR

Long-term effect of aspirin on cancer risk in carriers of hereditary colorectal cancer: an analysis from the CAPP2 randomised controlled trial

(2011) John Burn et al.   LANCET

Exploring the short-term impact of DNA-testing in breast cancer patients: The counselees’ perception matters, but the actual BRCA1/2 result does not

(2011) Joël Vos et al.   PATIENT EDUCATION AND COUNSELING

Screening for Distress, the 6th Vital Sign: where are we, and where are we going?

(2011) Barry D. Bultz et al.   PSYCHO-ONCOLOGY

Prevalence and Predictors of Appropriate Colorectal Cancer Surveillance in Lynch Syndrome

(2010) Elena M Stoffel et al.   AMERICAN JOURNAL OF GASTROENTEROLOGY

Hopefulness predicts resilience after hereditary colorectal cancer genetic testing: a prospective outcome trajectories study

(2010) Samuel MY Ho et al.   BMC CANCER

Reproductive decision-making: a qualitative study among couples at increased risk of having a child with retinoblastoma

(2010) CJ Dommering et al.   CLINICAL GENETICS

Assessment of clinical practices among cancer genetic counselors

(2010) Deborah Wham et al.   Familial Cancer

A whisper-game perspective on the family communication of DNA-test results: a retrospective study on the communication process of BRCA1/2-test results between proband and relatives

(2010) Joël Vos et al.   Familial Cancer

Sharing genetic risk with next generation: mutation-positive parents’ communication with their offspring in Lynch Syndrome

(2010) Katja I. Aktan-Collan et al.   Familial Cancer

One to 2-Year Surveillance Intervals Reduce Risk of Colorectal Cancer in Families With Lynch Syndrome

(2010) Hans F.A. Vasen et al.   GASTROENTEROLOGY

Facilitating Informed Decisions Regarding Microsatellite Instability Testing Among High-Risk Individuals Diagnosed With Colorectal Cancer

(2010) Sharon L. Manne et al.   JOURNAL OF CLINICAL ONCOLOGY

Genetic Counseling Considerations in the Evaluation of Families for Lynch Syndrome—A Review

(2010) Scott M. Weissman et al.   Journal of Genetic Counseling

“The Cancer Bond”: Exploring the Formation of Cancer Risk Perception in Families with Lynch Syndrome

(2010) Aunchalee E. L. Palmquist et al.   Journal of Genetic Counseling

What Facilitates or Impedes Family Communication Following Genetic Testing for Cancer Risk? A Systematic Review and Meta-Synthesis of Primary Qualitative Research

(2010) Kim Chivers Seymour et al.   Journal of Genetic Counseling

Preimplantation genetic diagnosis at 20 years

(2010) Joe Leigh Simpson   PRENATAL DIAGNOSIS

Knowledge, attitudes and beliefs of Arabic-Australians concerning cancer

(2010) Mona Saleh et al.   PSYCHO-ONCOLOGY

Knowledge about hereditary nonpolyposis colorectal cancer; mutation carriers and physicians at equal levels

(2009) Katarina Domanska et al.   BMC Medical Genetics

Health and lifestyle behaviors among persons at risk of Lynch syndrome

(2009) Allison M. Burton et al.   CANCER CAUSES & CONTROL

Review of the Lynch syndrome: history, molecular genetics, screening, differential diagnosis, and medicolegal ramifications

(2009) HT Lynch et al.   CLINICAL GENETICS

Recent research in stress, coping and womenʼs health

(2009) Kiran Rao   CURRENT OPINION IN PSYCHIATRY

Attitudes toward genetic testing in childhood and reproductive decision-making for familial adenomatous polyposis

(2009) Kirsten F L Douma et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

A clinical perspective on ethical arguments around prenatal diagnosis and preimplantation genetic diagnosis for later onset inherited cancer predispositions

(2009) Tara Clancy   Familial Cancer

Attitude towards pre-implantation genetic diagnosis for hereditary cancer

(2009) Chantal Lammens et al.   Familial Cancer

Recommendations to improve identification of hereditary and familial colorectal cancer in Europe

(2009) H. F. A. Vasen et al.   Familial Cancer

Communication, encouragement, and cancer screening in families with and without mutations for hereditary nonpolyposis colorectal cancer: A pilot study

(2009) Anne L Ersig et al.   GENETICS IN MEDICINE

Factors associated with preimplantation genetic diagnosis acceptance among women concerned about hereditary breast and ovarian cancer

(2009) Susan T Vadaparampil et al.   GENETICS IN MEDICINE

Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing

(2009) Kristine Barlow-Stewart et al.   GENETICS IN MEDICINE

Ten Years After Mutation Testing for Lynch Syndrome: Cancer Incidence and Outcome in Mutation-Positive and Mutation-Negative Family Members

(2009) Heikki J. Järvinen et al.   JOURNAL OF CLINICAL ONCOLOGY

The BRCA Self-Concept Scale: a new instrument to measure self-concept in BRCA1/2 mutation carriers

(2009) Mary Jane Esplen et al.   PSYCHO-ONCOLOGY

Will Knowledge of Gene-Based Colorectal Cancer Disease Risk Influence Quality of Life and Screening Behavior?

(2009) Scott Ramsey et al.   Public Health Genomics

Family illness narratives of inherited cancer risk: Continuity and transformation.

(2009) Allison Werner-Lin et al.   Families Systems & Health

Mismatch repair polymorphisms and risk of colon cancer, tumour microsatellite instability and interactions with lifestyle factors

(2008) P T Campbell et al.   GUT

Perceptions of Cancer Risks and Predictors of Colon and Endometrial Cancer Screening in Women Undergoing Genetic Testing for Lynch Syndrome

(2008) Donald W. Hadley et al.   JOURNAL OF CLINICAL ONCOLOGY

The phases of disclosing BRCA1/2 genetic information to offspring

(2008) Susan Clarke et al.   PSYCHO-ONCOLOGY

Monitoring coping style moderates emotional reactions to genetic testing for hereditary nonpolyposis colorectal cancer: a longitudinal study

(2008) S. Shiloh et al.   PSYCHO-ONCOLOGY

Cancer genetic testing: current and emerging issues

(2008) Andrea Farkas Patenaude et al.   PSYCHO-ONCOLOGY

Managing hereditary gastrointestinal cancer syndromes: the partnership between genetic counselors and gastroenterologists

(2008) Wendy S Rubinstein et al.   Nature clinical practice. Gastroenterology & hepatology

Cancer worries, risk perceptions and associations with interest in DNA testing and clinic satisfaction in a familial colorectal cancer clinic

(2003) V Collins et al.   CLINICAL GENETICS