Through the looking glass: an exploratory study of the lived experiences and unmet needs of families affected by Von Hippel–Lindau disease

Life expectancy in hereditary cancer predisposing diseases: an observational study

(2012) Anna Wilding et al.   JOURNAL OF MEDICAL GENETICS

Unpacking the Blockers: Understanding Perceptions and Social Constraints of Health Communication in Hereditary Breast Ovarian Cancer (HBOC) Susceptibility Families

(2011) June A. Peters et al.   Journal of Genetic Counseling

Distress in partners of individuals diagnosed with or at high risk of developing tumors due to rare hereditary cancer syndromes

(2011) C. R. M. Lammens et al.   PSYCHO-ONCOLOGY

No association of the polymorphisms of the frizzled-related protein gene with peak bone mineral density in Chinese nuclear families

(2010) Gao Gao et al.   BMC Medical Genetics

Psychosocial impact of Von Hippel-Lindau disease: levels and sources of distress

(2010) CRM Lammens et al.   CLINICAL GENETICS

Psychological outcomes of siblings of cancer survivors: a report from the Childhood Cancer Survivor Study

(2010) David Buchbinder et al.   PSYCHO-ONCOLOGY

Characteristics of Health Information Gatherers, Disseminators, and Blockers Within Families at Risk of Hereditary Cancer: Implications for Family Health Communication Interventions

(2009) Laura M. Koehly et al.   AMERICAN JOURNAL OF PUBLIC HEALTH

Attitude towards pre-implantation genetic diagnosis for hereditary cancer

(2009) Chantal Lammens et al.   Familial Cancer

Psychological distress related to patterns of family functioning among Japanese childhood cancer survivors and their parents

(2009) Shuichi Ozono et al.   PSYCHO-ONCOLOGY

Can a “prompt list” empower cancer patients to ask relevant questions?

(2008) Aneta Dimoska et al.   CANCER