The Development of a Preference-Setting Model for the Return of Individual Genomic Research Results
Published 2015 View Full Article
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Title
The Development of a Preference-Setting Model for the Return of Individual Genomic Research Results
Authors
Keywords
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Journal
Journal of Empirical Research on Human Research Ethics
Volume 10, Issue 2, Pages 107-120
Publisher
SAGE Publications
Online
2015-02-26
DOI
10.1177/1556264615572092
References
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Note: Only part of the references are listed.- Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children’s Hospital Gene Partnership Informed Cohort Oversight Board
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- (2013) Robert C. Green et al. GENETICS IN MEDICINE
- “I want to know what's in Pandora's box”: Comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing
- (2012) Anne Townsend et al. AMERICAN JOURNAL OF MEDICAL GENETICS PART A
- Population studies: return of research results and incidental findings Policy Statement
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- The beliefs, motivations and expectations of parents who have enrolled their children in a genetic biorepository
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- Broadening research consent in the era of genome-informed medicine
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- Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study
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- The past, present and future of the debate over return of research results and incidental findings
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- Managing incidental findings and research results in genomic research involving biobanks and archived data sets
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- Deploying whole genome sequencing in clinical practice and public health: Meeting the challenge one bin at a time
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- Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants
- (2010) Richard R. Fabsitz et al. Circulation-Cardiovascular Genetics
- Multidimensional Results Reporting to Participants in Genomic Studies: Getting It Right
- (2010) I. S. Kohane et al. Science Translational Medicine
- Health Behavior Changes After Genetic Risk Assessment for Alzheimer Disease: The REVEAL Study
- (2009) Serena Chao et al. ALZHEIMER DISEASE & ASSOCIATED DISORDERS
- The Scientific Foundation for Personal Genomics: Recommendations from a National Institutes of Health–Centers for Disease Control and Prevention Multidisciplinary Workshop
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- Personal utility and genomic information: Look before you leap
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- (2009) Morris W Foster et al. GENETICS IN MEDICINE
- Disclosure ofAPOEGenotype for Risk of Alzheimer's Disease
- (2009) Robert C. Green et al. NEW ENGLAND JOURNAL OF MEDICINE
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