Online assessment of ALS functional rating scale compares well to in-clinic evaluation: A prospective trial

Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm

(2011) Paul Wicks et al.   NATURE BIOTECHNOLOGY

Patient reported outcomes: looking beyond the label claim

(2010) Lynda C Doward et al.   Health and Quality of Life Outcomes

Sharing Health Data for Better Outcomes on PatientsLikeMe

(2010) Paul Wicks et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Progression in ALS is not linear but is curvilinear

(2010) Paul H. Gordon et al.   JOURNAL OF NEUROLOGY

Management of gastrointestinal symptoms in advanced cancer patients: the rapid learning cancer clinic model

(2010) Amy P Abernethy et al.   Current Opinion in Supportive and Palliative Care

Measuring function in advanced ALS: validation of ALSFRS-EX extension items

(2009) P. Wicks et al.   EUROPEAN JOURNAL OF NEUROLOGY

Logistics of collecting patient-reported outcomes (PROs) in clinical practice: an overview and practical examples

(2009) Matthias Rose et al.   QUALITY OF LIFE RESEARCH

ALSFRS-R score and its ratio: A useful predictor for ALS-progression

(2008) Katja Kollewe et al.   JOURNAL OF THE NEUROLOGICAL SCIENCES

ALSFRS and appel ALS scores: Discordance with disease progression

(2008) Andrei Voustianiouk et al.   MUSCLE & NERVE