Broad Consent for Research With Biological Samples: Workshop Conclusions

“It’s my blood”: ethical complexities in the use, storage and export of biological samples: perspectives from South African research participants

(2014) Keymanthri Moodley et al.   BMC Medical Ethics

Broad versus Blanket Consent for Research with Human Biological Samples

(2014) David Wendler   HASTINGS CENTER REPORT

Biobanks containing clinical specimens: Defining characteristics, policies, and practices

(2013) Teresa Edwards et al.   CLINICAL BIOCHEMISTRY

Publics and biobanks: Pan-European diversity and the challenge of responsible innovation

(2012) George Gaskell et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Biobanking: shifting the analogy from consent to surrogacy

(2012) Ann M. Mongoven et al.   GENETICS IN MEDICINE

From patients to partners: participant-centric initiatives in biomedical research

(2012) Jane Kaye et al.   NATURE REVIEWS GENETICS

Two large-scale surveys on community attitudes toward an opt-out biobank

(2011) Kyle B. Brothers et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

Active choice but not too active: Public perspectives on biobank consent models

(2011) Christian M. Simon et al.   GENETICS IN MEDICINE

Genomic databases access agreements: legal validity and possible sanctions

(2011) Yann Joly et al.   HUMAN GENETICS

Autoantibodies predate the onset of systemic lupus erythematosus in northern Sweden

(2011) Catharina Eriksson et al.   ARTHRITIS RESEARCH & THERAPY

Principles of Human Subjects Protections Applied in an Opt-Out, De-identified Biobank

(2010) Jill Pulley et al.   CTS-Clinical and Translational Science

Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns

(2009) Aaro Tupasela et al.   SCANDINAVIAN JOURNAL OF PUBLIC HEALTH

Community consultation and communication for a population-based DNA biobank: The Marshfield clinic personalized medicine research project

(2008) Catherine A. McCarty et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

Participant Characteristics That Influence Consent for Genetic Research in a Population-Based Survey: The Baltimore Epidemiologic Catchment Area Follow-Up

(2008) Briana Mezuk et al.   Public Health Genomics