Current ethical and legal issues in health-related direct-to-consumer genetic testing

Should you profit from your genome?

(2017) Jessica L Roberts et al.   NATURE BIOTECHNOLOGY

Direct-to-consumer genetic testing: where and how does genetic counseling fit?

(2017) Anna Middleton et al.   Personalized Medicine

The Deceptive Appeal of Direct-to-Consumer Genetics

(2016) Wylie Burke et al.   ANNALS OF INTERNAL MEDICINE

Public variant databases: liability?

(2016) Adrian Thorogood et al.   GENETICS IN MEDICINE

All your data (effectively) belong to us: data practices among direct-to-consumer genetic testing firms

(2016) Linnea I. Laestadius et al.   GENETICS IN MEDICINE

Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies

(2016) Emilia Niemiec et al.   HUMAN MUTATION

Ancestry Testing and the Practice of Genetic Counseling

(2016) Brianne E. Kirkpatrick et al.   Journal of Genetic Counseling

The Googlization of health research: from disruptive innovation to disruptive ethics

(2016) Tamar Sharon   Personalized Medicine

Do It Yourself Newborn Screening

(2016) Pascal Borry et al.   JAMA Pediatrics

Individual DNA samples and health information sold by 23andMe

(2015) Shelin Adam et al.   GENETICS IN MEDICINE

Non-invasive prenatal testing for aneuploidy: a systematic review of Internet advertising to potential users by commercial companies and private health providers

(2015) Heather Skirton et al.   PRENATAL DIAGNOSIS

Ethical issues raised by whole genome sequencing

(2014) Wim Pinxten et al.   BEST PRACTICE & RESEARCH IN CLINICAL GASTROENTEROLOGY

Changes on the horizon for consumer genomics in the EU

(2014) L. Kalokairinou et al.   SCIENCE

Nonpropositional Content in Direct-to-Consumer Genetic Testing Advertisements

(2013) Pascal Borry et al.   AMERICAN JOURNAL OF BIOETHICS

The Angelina effect: immediate reach, grasp and impact of going public

(2013) Dina L.G. Borzekowski et al.   GENETICS IN MEDICINE

Are health professionals ready for direct-to-consumer genetic and genomic testing?

(2013) Heather Skirton et al.   Personalized Medicine

Identifying Personal Genomes by Surname Inference

(2013) M. Gymrek et al.   SCIENCE

Legislation on direct-to-consumer genetic testing in seven European countries

(2012) Pascal Borry et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

“Trust is not something you can reclaim easily”: patenting in the field of direct-to-consumer genetic testing

(2012) Sigrid Sterckx et al.   GENETICS IN MEDICINE

Customers or research participants?: Guidance for research practices in commercialization of personal genomics

(2012) Sara L. Tobin et al.   GENETICS IN MEDICINE

Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms?

(2011) Heidi Carmen Howard et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Genetic counseling and testing for Alzheimer disease: Joint practice guidelines of the American College of Medical Genetics and the National Society of Genetic Counselors

(2011) Jill S Goldman et al.   GENETICS IN MEDICINE

Informed Choice in Direct-to-Consumer Genetic Testing (DTCGT) Websites: A Content Analysis of Benefits, Risks, and Limitations

(2011) Amanda Singleton et al.   Journal of Genetic Counseling

Blurring lines

(2010) Heidi C Howard et al.   EMBO REPORTS

Statement of the ESHG on direct-to-consumer genetic testing for health-related purposes

(2010)   EUROPEAN JOURNAL OF HUMAN GENETICS

Health System Implications of Direct-to-Consumer Personal Genome Testing

(2010) Amy L. McGuire et al.   Public Health Genomics

DIRECT-TO-CONSUMER GENETIC TESTING: ETHICAL-LEGAL PERSPECTIVES AND PRACTICAL CONSIDERATIONS

(2010) S. Tamir   Medical Law Review

Health-related direct-to-consumer genetic testing: a review of companies’ policies with regard to genetic testing in minors

(2009) Pascal Borry et al.   Familial Cancer

A Critical Appraisal of the Scientific Basis of Commercial Genomic Profiles Used to Assess Health Risks and Personalize Health Interventions

(2008) A. Cecile J.W. Janssens et al.   AMERICAN JOURNAL OF HUMAN GENETICS

The Current Landscape for Direct-to-Consumer Genetic Testing: Legal, Ethical, and Policy Issues

(2008) Stuart Hogarth et al.   Annual Review of Genomics and Human Genetics

Predictive genetic testing in minors for adult-onset genetic diseases

(2008) Pascal Borry et al.   MOUNT SINAI JOURNAL OF MEDICINE