All your data (effectively) belong to us: data practices among direct-to-consumer genetic testing firms

From the arcane to the mundane: engaging French publics in discussing clinical applications of genomic technology

(2016) Alexandra Soulier et al.   NEW GENETICS AND SOCIETY

Dynamic consent: a patient interface for twenty-first century research networks

(2014) Jane Kaye et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Using the framework method for the analysis of qualitative data in multi-disciplinary health research

(2013) Nicola K Gale et al.   BMC Medical Research Methodology

Identifying Personal Genomes by Surname Inference

(2013) M. Gymrek et al.   SCIENCE

Direct to consumer genetic testing: a systematic review of position statements, policies and recommendations

(2012) H Skirton et al.   CLINICAL GENETICS

Tilting at windmills no longer: a data-driven discussion of DTC DNA ancestry tests

(2012) Jennifer K. Wagner et al.   GENETICS IN MEDICINE

The Tension Between Data Sharing and the Protection of Privacy in Genomics Research

(2011) Jane Kaye   Annual Review of Genomics and Human Genetics

Informed Choice in Direct-to-Consumer Genetic Testing (DTCGT) Websites: A Content Analysis of Benefits, Risks, and Limitations

(2011) Amanda Singleton et al.   Journal of Genetic Counseling

Blurring lines

(2010) Heidi C Howard et al.   EMBO REPORTS

Statement of the ESHG on direct-to-consumer genetic testing for health-related purposes

(2010)   EUROPEAN JOURNAL OF HUMAN GENETICS

Informational content, literacy demands, and usability of websites offering health-related genetic tests directly to consumers

(2010) Christina R Lachance et al.   GENETICS IN MEDICINE

Genetic Testing For Alzheimer’s And Long-Term Care Insurance

(2010) Donald H. Taylor et al.   HEALTH AFFAIRS

American Society of Clinical Oncology Policy Statement Update: Genetic and Genomic Testing for Cancer Susceptibility

(2010) Mark E. Robson et al.   JOURNAL OF CLINICAL ONCOLOGY

The Food Industry and Self-Regulation: Standards to Promote Success and to Avoid Public Health Failures

(2009) Lisa L. Sharma et al.   AMERICAN JOURNAL OF PUBLIC HEALTH

Risk Information Exposure and Direct-to-Consumer Genetic Testing for BRCA Mutations among Women with a Personal or Family History of Breast or Ovarian Cancer

(2009) S. W. Gray et al.   CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION

The Current Landscape for Direct-to-Consumer Genetic Testing: Legal, Ethical, and Policy Issues

(2008) Stuart Hogarth et al.   Annual Review of Genomics and Human Genetics

From genetic privacy to open consent

(2008) Jeantine E. Lunshof et al.   NATURE REVIEWS GENETICS