Patient and public involvement in the design of clinical trials: An overview of systematic reviews

A methodological approach for assessing the uptake of core outcome sets using ClinicalTrials.gov: findings from a review of randomised controlled trials of rheumatoid arthritis

(2017) Jamie J Kirkham et al.   BMJ-British Medical Journal

A methodological approach for assessing the uptake of core outcome sets using ClinicalTrials.gov: findings from a review of randomised controlled trials of rheumatoid arthritis

(2017) Jamie J Kirkham et al.   BMJ-British Medical Journal

Mind the gap in clinical trials: A participatory action analysis with citizen collaborators

(2016) Amy Price et al.   JOURNAL OF EVALUATION IN CLINICAL PRACTICE

Research Priority Setting in Kidney Disease: A Systematic Review

(2015) Allison Tong et al.   AMERICAN JOURNAL OF KIDNEY DISEASES

Quality of Reporting on Patient and Public Involvement Within Surgical Research

(2015) Emma Leanne Jones et al.   ANNALS OF SURGERY

Six ‘biases’ against patients and carers in evidence-based medicine

(2015) Trisha Greenhalgh et al.   BMC Medicine

Trends in National Institutes of Health Funding for Clinical Trials Registered in ClinicalTrials.gov

(2015) Stephan Ehrhardt et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

The SWAT (study within a trial) programme; embedding trials to improve the methodological design and conduct of future research

(2015) Mike Clarke et al.   Trials

Which public and why deliberate? – A scoping review of public deliberation in public health and health policy research

(2015) Chris Degeling et al.   SOCIAL SCIENCE & MEDICINE

Using Qualitative Evidence in Decision Making for Health and Social Interventions: An Approach to Assess Confidence in Findings from Qualitative Evidence Syntheses (GRADE-CERQual)

(2015) Simon Lewin et al.   PLOS MEDICINE

Key concepts in consumer and community engagement: a scoping meta-review

(2014) Pooria Sarrami-Foroushani et al.   BMC HEALTH SERVICES RESEARCH

Implementing strategies in consumer and community engagement in health care: results of a large-scale, scoping meta-review

(2014) Pooria Sarrami-Foroushani et al.   BMC HEALTH SERVICES RESEARCH

Patient engagement in research: a systematic review

(2014) Juan Pablo Domecq et al.   BMC HEALTH SERVICES RESEARCH

Involving disabled children and young people as partners in research: a systematic review

(2014) S. Bailey et al.   CHILD CARE HEALTH AND DEVELOPMENT

A Systematic Review of Stakeholder Engagement in Comparative Effectiveness and Patient-Centered Outcomes Research

(2014) Thomas W. Concannon et al.   JOURNAL OF GENERAL INTERNAL MEDICINE

A Systematic Review of Approaches for Engaging Patients for Research on Rare Diseases

(2014) Laura P. Forsythe et al.   JOURNAL OF GENERAL INTERNAL MEDICINE

Increasing value and reducing waste in research design, conduct, and analysis

(2014) John P A Ioannidis et al.   LANCET

Accumulating Research: A Systematic Account of How Cumulative Meta-Analyses Would Have Provided Knowledge, Improved Health, Reduced Harm and Saved Resources

(2014) Mike Clarke et al.   PLoS One

Current Practice of Public Involvement Activities in Biomedical Research and Innovation: A Systematic Qualitative Review

(2014) Jonas Lander et al.   PLoS One

Patient Involvement in Outcome Measures for Psoriatic Arthritis

(2014) William Tillett et al.   Current Rheumatology Reports

Evaluating complex interventions in End of Life Care: the MORECare Statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews

(2013) Irene J Higginson et al.   BMC Medicine

Patient and service user engagement in research: a systematic review and synthesized framework

(2013) Nathan D. Shippee et al.   HEALTH EXPECTATIONS

Tackling treatment uncertainties together: the evolution of the James Lind Initiative, 2003–2013

(2013) Iain Chalmers et al.   JOURNAL OF THE ROYAL SOCIETY OF MEDICINE

‘Best practice’ in developing and evaluating palliative and end-of-life care services: A meta-synthesis of research methods for the MORECare project

(2013) Catherine J Evans et al.   PALLIATIVE MEDICINE

Knowledge is not power for patients: A systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making

(2013) Natalie Joseph-Williams et al.   PATIENT EDUCATION AND COUNSELING

Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature

(2012) Marjolein H Gysels et al.   BMC Medical Research Methodology

‘Talking the talk or walking the walk?’ A bibliometric review of the literature on public involvement in health research published between 1995 and 2009

(2012) Jonathan Boote et al.   HEALTH EXPECTATIONS

Mapping the impact of patient and public involvement on health and social care research: a systematic review

(2012) Jo Brett et al.   HEALTH EXPECTATIONS

Uncovering the Benefits of Participatory Research: Implications of a Realist Review for Health Research and Practice

(2012) JUSTIN JAGOSH et al.   MILBANK QUARTERLY

Involving the public in systematic reviews: a narrative review of organizational approaches and eight case examples

(2012) Jonathan Boote et al.   Journal of Comparative Effectiveness Research

The impact of patient and public involvement on UK NHS health care: a systematic review

(2011) C. Mockford et al.   INTERNATIONAL JOURNAL FOR QUALITY IN HEALTH CARE

The GRIPP checklist: Strengthening the quality of patient and public involvement reporting in research

(2011) Sophie Staniszewska et al.   INTERNATIONAL JOURNAL OF TECHNOLOGY ASSESSMENT IN HEALTH CARE

GRADE guidelines: 1. Introduction—GRADE evidence profiles and summary of findings tables

(2011) Gordon Guyatt et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

The Evidence Base for Interventions Delivered to Children in Primary Care: An Overview of Cochrane Systematic Reviews

(2011) Peter J. Gill et al.   PLoS One

Consumer participation and organizational development in health care: a systematic review

(2011) Clemens B. Tempfer et al.   WIENER KLINISCHE WOCHENSCHRIFT

Patients’ and clinicians’ research priorities

(2010) Ruth J. Stewart et al.   HEALTH EXPECTATIONS

Seventy-Five Trials and Eleven Systematic Reviews a Day: How Will We Ever Keep Up?

(2010) Hilda Bastian et al.   PLOS MEDICINE

Public involvement at the design stage of primary health research: A narrative review of case examples

(2009) Jonathan Boote et al.   HEALTH POLICY

Controlling Conflict of Interest — Proposals from the Institute of Medicine

(2009) Robert Steinbrook   NEW ENGLAND JOURNAL OF MEDICINE

Involving people affected by cancer in research: a review of literature

(2008) G. HUBBARD et al.   EUROPEAN JOURNAL OF CANCER CARE

A multidimensional conceptual framework for analysing public involvement in health services research

(2008) Sandy R. Oliver et al.   HEALTH EXPECTATIONS

Systematic review of reviews of risk factors for intracranial aneurysms

(2008) Mike Clarke   NEURORADIOLOGY

Service user involvement in nursing, midwifery and health visiting research: A review of evidence and practice

(2006) Elizabeth Smith et al.   INTERNATIONAL JOURNAL OF NURSING STUDIES