Article
Public, Environmental & Occupational Health
Sandra A. Hartasanchez, Stuart W. Grande, Victor M. Montori, Marleen Kunneman, Juan P. Brito, Sarah McCarthy, Ian G. Hargraves
Summary: This study aims to identify how current observer-based shared decision-making measures apply to each mode of purposeful shared decision-making. The results show that the existing measures can describe behaviors applicable to all modes, but lack items sensitive to behaviors particular to some specific modes.
PATIENT EDUCATION AND COUNSELING
(2022)
Review
Computer Science, Information Systems
Evangelos Triantaphyllou, Juri Yanase
Summary: Shared decision making for life-critical diseases or conditions is crucial in medicine, but faces key challenges including mathematical models, data sources, roles of patients and healthcare professionals, and relevant regulations. Urgent developments and enhancements are needed to promote the development of life-critical SDM.
INTERNATIONAL JOURNAL OF MEDICAL INFORMATICS
(2021)
Article
Psychology, Multidisciplinary
Marta Chmielowska, Nell Mannocci, Alexander Tansel, Yaara Zisman-Ilani
Summary: Open dialogue is a person-centred social network model that promotes agency and long-term recovery in mental illness. Peer support, specifically those with lived experience of mental illness, plays a crucial role in enhancing understanding, providing a sense of belonging, and improving treatment decision-making. The alignment of open dialogue with shared decision making principles is beneficial for engagement with services and overall well-being.
FRONTIERS IN PSYCHOLOGY
(2022)
Article
Clinical Neurology
Constanze Stolz-Klingenberg, Claudia Buenzen, Marie Coors, Charlotte Flueh, Nils G. Margraf, Kai Wehkamp, Marla L. Clayman, Fueloep Scheibler, Felix Wehking, Jens Ulrich Rueffer, Wiebke Schuettig, Leonie Sundmacher, Michael Synowitz, Daniela Berg, Friedemann Geiger
Summary: The study examined the sustainability of the SHARE TO CARE (S2C) program in the Neuromedical Center, showing that patients experienced increased shared decision making (SDM) levels and improved preparation for decision making 6-18 months after the initial implementation.
FRONTIERS IN NEUROLOGY
(2022)
Article
Nursing
Fen-Fang Chung, Pao-Yu Wang, Shu-Chuan Lin, Yu-Hsia Lee, Hon-Yen Wu, Mei-Hsiang Lin
Summary: This qualitative research study examined the experiences of 21 nurses participating in Shared Decision Making (SDM) in a medical center in northern Taiwan. The findings revealed that nurses focused on SDM knowledge, trigger discussion and coordination, as well as respect for sociocultural factors during the process. These results can be used for nursing education and to enhance professional nursing SDM in clinical practice.
Article
Public, Environmental & Occupational Health
Dariusz Galasinski, Justyna Ziolkowska, Glyn Elwyn
Summary: This article examines the challenges of implementing shared decision-making in practice and emphasizes the importance of social and cultural factors. The authors argue that shared decision-making is a communicative process that requires equal rights for all participants. Their findings suggest that clinical training should focus not only on communication skills, but also on understanding healthcare as a social practice. They also advocate for a stronger relationship between medicine and the humanities and social sciences. At the core of shared decision-making are issues of justice, equity, and agency.
PATIENT EDUCATION AND COUNSELING
(2023)
Article
Psychology, Multidisciplinary
Kai-Biao Lin, Ying Wei, Yong Liu, Fei-Ping Hong, Yi-Min Yang, Ping Lu
Summary: This study integrates a genetic algorithm for opponent preference prediction with an SDM auto-negotiation model based on fuzzy constraints to address the problems posed by incomplete information environments, resulting in the rapid generation of treatment plans with high mutual satisfaction.
FRONTIERS IN PSYCHOLOGY
(2023)
Article
Oncology
Stefan Feiten, Isabelle Scholl, Jan Duennebacke, Marcus Schmidt, Arno Franzen, Walter Ernst, Heike Spaderna, Rudolf Weide
Summary: This study aimed to investigate the decision-making processes between breast cancer patients and different healthcare professionals. The findings showed that patients generally reported a high level of participation and satisfaction with their treatment. However, the experiences of non-responders remain unknown.
Article
Thermodynamics
Wen-Yi Zhang, Boshen Zheng, Wei Wei, Laijun Chen, Shengwei Mei
Summary: This paper studies the equilibrium state of supply-demand flow in a peer-to-peer market model for residential shared energy storage units and proposes a method for service pricing and load dispatching. A game model is proposed to characterize the market equilibrium, and a mixed-integer linear program is developed to compute the market equilibrium.
Article
Medicine, General & Internal
Cheng-Hsu Chen, Chia-Tien Hsu, Ming-Ju Wu, Shang-Feng Tsai
Summary: This 5-year project on shared decision making for renal biopsy collected cases of biopsy and bleeding, and launched a quality improvement process for shared decision making, including the use of videos and an information platform. Results showed that shared decision making helped patients better understand renal biopsy, leading to increased satisfaction.
Article
Medicine, General & Internal
Alyssa Reese, Tyler Wanstreet, Sarah Callaham, Michele M. Carr
Summary: The study aimed to determine if shared decision making (SDM) scores vary between individual otolaryngologists in a large specialty clinic, but no significant differences were found among individual or total SDM scores when compared among or between patient demographics. The findings showed that SDM scores do not vary between these otolaryngologists, regardless of patient demographics or surgeon characteristics.
CUREUS JOURNAL OF MEDICAL SCIENCE
(2021)
Article
Public, Environmental & Occupational Health
Sascha M. Keij, Nanny Van Duijn-Bakker, Anne M. Stiggelbout, Arwen H. Pieterse
Summary: This study identified five key elements of patient readiness for shared decision making and ten characteristics that may influence these elements. Readiness for SDM may vary between and within patients, and clinicians should be aware that some patients may need support to enhance their readiness.
PATIENT EDUCATION AND COUNSELING
(2021)
Article
Public, Environmental & Occupational Health
Friedemann Geiger, Claudia Hacke, Judith Potthoff, Fueloep Scheibler, Jens Ulrich Rueffer, Christine Kuch, Kai Wehkamp
Summary: Shared Decision Making (SDM) is considered the gold standard of medical decision-making, and a new online training method based on flawed/flawless video examples and additional educational concepts has been proven effective in increasing SDM-related knowledge and judging ability. Feedback regarding the intervention was positive, indicating the success of the training approach.
PATIENT EDUCATION AND COUNSELING
(2021)
Article
Medicine, General & Internal
Yanjun Jin, Haiyan Hong, Chao Liu, Ching-Wen Chien, Yen-Ching Chuang, Tao-Hsin Tung
Summary: This study used quantitative methods to explore the key factors affecting shared decision-making in nursing, specifically in orthopedic nursing. The results showed that understanding all the information and involvement of patients or their families at the beginning of nursing decision-making are the main factors. In the discussion and decision stages, informing patients about the need for a nursing care decision and asking for their preference are the key factors. These findings provide valuable insights into improving the quality and effectiveness of nursing decision-making.
FRONTIERS IN MEDICINE
(2022)
Article
Public, Environmental & Occupational Health
Dirk T. Ubbink, Ellyze V. van Asbeck, Johanna W. M. Aarts, Fabienne E. Stubenrouch, Paul A. F. Geerts, Femke Atsma, Marjan J. Meinders
Summary: This study compared CollaboRATE and SDM-Q-9 questionnaires in assessing patient-perceived level of shared decision-making (SDM) in doctor-patient consultations. The results showed that overall, CollaboRATE scores were higher than SDM-Q-9 scores, and the correlation between the two was moderate. When choosing a SDM-measurement tool, the benefits and limitations of each metric should be considered.
PATIENT EDUCATION AND COUNSELING
(2022)
Review
Orthopedics
Kay Maddison, Lin Perry, Deborah Debono
Summary: This integrative review explores the psychological impact and sequelae of traumatic hand injuries. The findings suggest that depression, anxiety, and post-traumatic stress disorder are common in patients with hand injuries. Factors such as injury severity, pain, limb dysfunction, negative perceptions, maladaptive coping mechanisms, and limited social support contribute to the psychological sequelae. Symptoms persist for a protracted period but generally attenuate after 3 months. Further research is urgently needed to optimize treatment.
JOURNAL OF HAND SURGERY-EUROPEAN VOLUME
(2023)
Article
Biochemistry & Molecular Biology
Stephanie Best, Janet C. Long, Zoe Fehlberg, Tahlia Theodorou, Sarah Hatem, Alison Archibald, Jeffrey Braithwaite
Summary: Recent advances in genomic sequencing have made reproductive genetic carrier screening (RGCS) more accessible. Non-genetic health care professionals are increasingly offering RGCS to consumers. A qualitative interview study was conducted to identify influences on health care professionals offering RGCS through the Australian research study, Mackenzie's Mission. Barriers and enabling factors were identified and categorized across three target behaviors: engaging with RGCS, identifying eligible patients, and offering RGCS. Understanding the drivers of current health care professionals' behavior can help improve service delivery.
EUROPEAN JOURNAL OF HUMAN GENETICS
(2023)
Article
Nursing
Karen Hutchinson, Tayhla Ryder, Honor Coleman, Ruqaiya Nullwala, Geoffrey Herkes, Andrew Bleasel, Armin Nikpour, Chong Wong, Lisa Todd, Carol Ireland, Graeme Shears, Melissa Bartley, Wendy Groot, Michael Kerr, Sanjyot Vagholkar, Jeffrey Braithwaite, Frances Rapport
Summary: The aim of this study is to enhance the understanding of the community-based epilepsy nurse's role and responsibilities. The study found three key themes: the career trajectory of epilepsy nurses, the diversity of their role and practice in epilepsy management, and the impact of external factors on their work practices. Community epilepsy nurses play a pivotal role in providing holistic, person-centred epilepsy management.
JOURNAL OF CLINICAL NURSING
(2023)
Article
Genetics & Heredity
Zornitza Stark, Tiffany Boughtwood, Matilda Haas, Jeffrey Braithwaite, Clara L. Gaff, Ilias Goranitis, Amanda B. Spurdle, David P. Hansen, Oliver Hofmann, Nigel Laing, Sylvia Metcalfe, Ainsley J. Newson, Hamish S. Scott, Natalie Thorne, Robyn L. Ward, Marcel E. Dinger, Stephanie Best, Janet C. Long, Sean M. Grimmond, John Pearson, Nicola Waddell, Christopher P. Barnett, Matthew Cook, Michael Field, David Fielding, Stephen B. Fox, Jozef Gecz, Adam Jaffe, Richard J. Leventer, Paul J. Lockhart, Sebastian Lunke, Andrew J. Mallett, Julie McGaughran, Linda Mileshkin, Katia Nones, Tony Roscioli, Ingrid E. Scheffer, Christopher Semsarian, Cas Simons, David M. Thomas, David R. Thorburn, Richard Tothill, Deborah White, Sally Dunwoodie, Peter T. Simpson, Peta Phillips, Marie-Jo Brion, Keri Finlay, Michael CJ. Quinn, Tessa Mattiske, Emma Tudini, Kirsten Boggs, Sean Murray, Kathy Wells, John Cannings, Andrew H. Sinclair, John Christodoulou, Kathryn N. North
Summary: Australian Genomics is a national collaborative partnership that aims to integrate genomics into healthcare through a whole-of-system approach. It has evaluated genomic testing outcomes in over 5,200 individuals across rare disease and cancer studies and provided evidence-based changes in policy and practice, resulting in government funding and access to genomic tests. It has also developed national skills, infrastructure, policy, and data resources to support data sharing and improve clinical genomic delivery.
AMERICAN JOURNAL OF HUMAN GENETICS
(2023)
Review
Oncology
Mia Bierbaum, Frances Rapport, Gaston Arnolda, Yvonne Tran, Brona Nic Giolla Easpaig, Kristiana Ludlow, Robyn Clay-Williams, Elizabeth Austin, Bela Laginha, Chi Yhun Lo, Kate Churruca, Lieke van Baar, Karen Hutchinson, Renuka Chittajallu, Syeda Somyyah Owais, Ruqaiya Nullwala, Peter Hibbert, Diana Fajardo Pulido, Jeffrey Braithwaite
Summary: Adherence to cancer treatment clinical practice guidelines varies across Australia. This systematic review aimed to characterize adherence rates and related factors. After screening and review, 20 studies were included. Overall adherence rates ranged from 29% to 100%. Factors associated with higher adherence included younger age, female gender, never smoking, non-Indigenous Australian status, less advanced stage disease, absence of comorbidities, good performance status, living in moderately accessible places, and treatment in metropolitan facilities.
ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY
(2023)
Review
Dermatology
Samantha Spanos, Nehal Singh, Bela I. Laginha, Gaston Arnolda, David Wilkinson, Andrea L. Smith, Anne E. Cust, Jeffrey Braithwaite, Frances Rapport
Summary: This scoping review aimed to gather contemporary evidence on the measurement of quality in skin cancer management in primary care settings. The data analysis of 46 texts resulted in 13 key emergent groups, categorizing quality measures according to the domains of healthcare quality. The study found that quality assessment was predominantly based on retrospective cohort studies, with limited systematic reviews and randomized controlled trials.
AUSTRALASIAN JOURNAL OF DERMATOLOGY
(2023)
Article
Multidisciplinary Sciences
Diana Tang, Yvonne Tran, Catherine McMahon, Jessica Turner, Janaki Amin, Kompal Sinha, Mohammad Nure Alam, Viviana Wuthrich, Kerry A. Sherman, Patrick Garcia, Rebecca Mitchell, Jeffrey Braithwaite, Greg Leigh, Shermin Lim, Giriraj Singh Shekhawat, Frances Rapport, Melanie Ferguson, Bamini Gopinath
Summary: The HALOS study aims to evaluate the impacts of hearing devices, differences in timing of interventions, and cost-effectiveness of early intervention for adult-onset hearing loss. It collects cross-sectional and longitudinal data on health and social outcomes from 908 hearing aid and/or cochlear implant users aged >= 40 years. The study has been approved by the Macquarie University Human Research Ethics Committee and Southern Adelaide Local Health Network.
Article
Gastroenterology & Hepatology
Syeda Somyyah Owais, Gaston Arnolda, Klay Lamprell, Winston Liauw, Geoff P. Delaney, Ian Olver, Jonathan Karnon, Jeffrey Braithwaite
Summary: A secondary analysis of the English National Cancer Patient Experience Survey found that patients aged 65-74 or 75 years and older reported the highest rates of positive diagnosis-related experiences.
BMJ OPEN GASTROENTEROLOGY
(2023)
Article
Health Care Sciences & Services
Melissa Miao, Rosemary Morrow, Alexander Salomon, Ben Mcculloch, Jean-Christophe Evain, Meg Rebecca Wright, Marie Therese Murphy, Monica Welsh, Liz Williams, Emma Power, Rachael Rietdijk, Deborah Debono, Melissa Brunner, Leanne Togher
Summary: Individuals with acquired brain injuries may suffer from cognitive-communication disorders, affecting both themselves and their close others. Speech-language pathologists are recommended to provide communication support, while also supporting digital communication post ABI. The study aimed to co-produce implementation knowledge to support the use of the Social Brain Toolkit for digital communication rehabilitation.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2023)
Article
Computer Science, Artificial Intelligence
Liyan Cheng, Fangcheng Tang, Xinli Shi, Xiangyong Chen, Jianlong Qiu
Summary: This article investigates the finite-time and fixed-time synchronization for memristive neural networks (MNNs) with mixed time-varying delays under the adaptive aperiodically intermittent adjustment strategy. The article employs the aperiodically intermittent adjustment feedback control and adaptive control to drive the MNNs to achieve synchronization in finite time and fixed time. The sufficient conditions for finite-time and fixed-time synchronization of the drive-response MNNs are obtained by designing an effective aperiodically intermittent adjustment with adaptive updating law.
IEEE TRANSACTIONS ON NEURAL NETWORKS AND LEARNING SYSTEMS
(2023)
Review
Health Policy & Services
Robyn Clay-Williams, Yvonne Zurynski, Janet C. Long, Isabelle Meulenbroeks, Elizabeth E. Austin, Zeyad Mahmoud, Louise A. Ellis, Gilbert Knaggs, Diana Fajardo Pulido, Lieke Richardson, Golo Ahlenstiel, Graham Reece, Jeffrey Braithwaite
Summary: This review aimed to identify international funding models for government-funded public hospitals in OECD countries and evaluate their efficacy. The study found that while some models considered factors like deprivation and ethnicity, none of them adjusted funding allocation for social determinants such as health literacy levels.
INTERNATIONAL JOURNAL OF HEALTH PLANNING AND MANAGEMENT
(2023)
Article
Health Care Sciences & Services
Kate Churruca, Louise A. Ellis, Catherine Pope, Jennifer MacLellan, Yvonne Zurynski, Jeffrey Braithwaite
Summary: This study examined stakeholders' perspectives on Healthdirect, Australia's national digital triage provider, and its role in the health system and operational barriers, particularly in the context of the COVID-19 pandemic. The findings revealed varying views among stakeholders on the purpose of Healthdirect's digital triage services, and identified challenges related to lack of integration, competition, and limited public awareness. The value of these services during the COVID-19 pandemic was acknowledged, with expectations for greater potential in the rapidly expanding telehealth landscape.
Article
Primary Health Care
Klay Lamprell, Diana Fajardo Pulido, Gaston Arnolda, Brona Nic Giolla Easpaig, Yvonne Tran, Syeda Somyyah Owais, Winston Liauw, Jeffrey Braithwaite
Summary: People with early-onset colorectal cancer are more likely to experience diagnostic delay due to doctors' low suspicion and lack of screening, leading to late-stage diagnosis. Patients also reported inadequate information continuity and tensions with doctors regarding symptom seriousness and shared decision-making. Therefore, it is essential to disseminate information and improve patient education at primary care level to improve patients' diagnosis experience.
Article
Geriatrics & Gerontology
Seigo Mitsutake, Zhisheng Sa, Janet Long, Jeffrey Braithwaite, Jean-Frederic Levesque, Diane E. Watson, Jacqueline Close, Rebecca Mitchell
Summary: Frailty risk estimated using hospital administrative data can contribute to identifying older hip fracture patients at-risk of fracture-related readmissions and mortality, providing guidance for targeted interventions.
ARCHIVES OF GERONTOLOGY AND GERIATRICS
(2024)
Article
Health Care Sciences & Services
Stephanie Best, Janet C. Long, Zoe Fehlberg, Natalie Taylor, Louise A. Ellis, Kirsten Boggs, Jeffrey Braithwaite
Summary: This study aimed to design, execute, and evaluate implementation strategies to support healthcare professionals in offering reproductive genetic carrier screening. Barriers reported by healthcare professionals were aligned with behavior change techniques to develop strategies. The strategies were trialled with a subset of healthcare professionals, and the primary outcome measure showed little change. Developing and testing strategies that acknowledge contextual factors are essential for offering carrier screening.
BMC HEALTH SERVICES RESEARCH
(2023)
