Preferences for the Return of Individual Results From Research on Pediatric Biobank Samples

Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results

(2016) Kyle B. Brothers et al.   GENETICS IN MEDICINE

Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics

(2016) Sarah S. Kalia et al.   GENETICS IN MEDICINE

Participants and Study Decliners’ Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing

(2016) Jill Oliver Robinson et al.   Journal of Empirical Research on Human Research Ethics

Motivations, concerns and preferences of personal genome sequencing research participants: Baseline findings from the HealthSeq project

(2015) Saskia C Sanderson et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research

(2015) Ingrid A. Holm et al.   Journal of Empirical Research on Human Research Ethics

The Development of a Preference-Setting Model for the Return of Individual Genomic Research Results

(2015) Phoebe L. Bacon et al.   Journal of Empirical Research on Human Research Ethics

Public Perceptions of Disease Severity but Not Actionability Correlate with Interest in Receiving Genomic Results: Nonalignment with Current Trends in Practice

(2015) Kristi D. Graves et al.   Public Health Genomics

An implementation framework for the feedback of individual research results and incidental findings in research

(2015) Adrian Thorogood et al.   BMC Medical Ethics

Addressing the Ethical Challenges in Genetic Testing and Sequencing of Children

(2014) Ellen Wright Clayton et al.   AMERICAN JOURNAL OF BIOETHICS

Dynamic consent: a patient interface for twenty-first century research networks

(2014) Jane Kaye et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Clinical utility gene card for: Maturity-onset diabetes of the young

(2014) Kevin Colclough et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Public preferences for the return of research results in genetic research: a conjoint analysis

(2014) Juli Murphy Bollinger et al.   GENETICS IN MEDICINE

Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children’s Hospital Gene Partnership Informed Cohort Oversight Board

(2014) Ingrid A. Holm et al.   GENETICS IN MEDICINE

Testing an Online, Dynamic Consent Portal for Large Population Biobank Research

(2014) Daniel B. Thiel et al.   Public Health Genomics

Parents' Preferences for Return of Results in Pediatric Genomic Research

(2014) S.I. Ziniel et al.   Public Health Genomics

Return of results in the genomic medicine projects of the eMERGE network

(2014) Iftikhar J. Kullo et al.   Frontiers in Genetics

Return of Individual Research Results and Incidental Findings: Facing the Challenges of Translational Science

(2013) Susan M. Wolf   Annual Review of Genomics and Human Genetics

Self-guided management of exome and whole-genome sequencing results: changing the results return model

(2013) Joon-Ho Yu et al.   GENETICS IN MEDICINE

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

(2013) Robert C. Green et al.   GENETICS IN MEDICINE

Ethical and Policy Issues in Genetic Testing and Screening of Children

(2013) et al.   PEDIATRICS

Developing a policy for paediatric biobanks: principles for good practice

(2012) Kristien Hens et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

The beliefs, motivations and expectations of parents who have enrolled their children in a genetic biorepository

(2012) Erin D. Harris et al.   GENETICS IN MEDICINE

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

(2012) Juli Murphy Bollinger et al.   GENETICS IN MEDICINE

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

(2012) Susan M. Wolf et al.   GENETICS IN MEDICINE

Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance

(2012) Christian Simon et al.   JOURNAL OF MEDICAL ETHICS

Predictive genetic testing in minors for late-onset conditions: a chronological and analytical review of the ethical arguments: Figure 1

(2012) Cara Mand et al.   JOURNAL OF MEDICAL ETHICS

Disclosing Individual CDKN2A Research Results to Melanoma Survivors: Interest, Impact, and Demands on Researchers

(2011) K. D. Christensen et al.   CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION

Children, biobanks and the scope of parental consent

(2011) Kristien Hens et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Deploying whole genome sequencing in clinical practice and public health: Meeting the challenge one bin at a time

(2011) Jonathan S Berg et al.   GENETICS IN MEDICINE

Disclosure of individual research results in clinico-genomic trials: challenges, classification and criteria for decision-making

(2011) R. Kollek et al.   JOURNAL OF MEDICAL ETHICS

Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants

(2010) Richard R. Fabsitz et al.   Circulation-Cardiovascular Genetics

Research electronic data capture (REDCap)—A metadata-driven methodology and workflow process for providing translational research informatics support

(2008) Paul A. Harris et al.   JOURNAL OF BIOMEDICAL INFORMATICS