Article
Social Sciences, Interdisciplinary
Liliana Giraldo-Rodriguez, Mariana Lopez-Ortega
Summary: This study evaluated the psychometric properties of SF-36 in older Mexicans. The SF-36 showed appropriate internal consistency, construct validity, and factor structure. It also demonstrated good discrimination between groups with and without chronic diseases. The Social functioning subscale had the least acceptable results, possibly due to different understandings among the older Mexican population.
APPLIED RESEARCH IN QUALITY OF LIFE
(2023)
Article
Medicine, General & Internal
Qiaomin Wu, Yao Chen, YuTong Zhou, Xin'ai Zhang, Yu Huang, Ruxiu Liu
Summary: This study evaluated the reliability, validity, and sensitivity of the SF-36 scale in measuring health-related quality of life (HRQoL) in patients with sick sinus syndrome (SSS). The results showed good test-retest reliability, internal consistency, and split-half reliability of the SF-36. Factor analysis revealed 6 components that explained 61% of the total variance. Convergent validity and discriminant validity were adequate. Comparison based on age and New York Heart Association class showed statistical significance on most SF-36 subscales. Overall, the SF-36 is a valid and reliable instrument for assessing HRQoL in patients with SSS. Rating: 8/10.
Article
Public, Environmental & Occupational Health
Sai Liu, Xihong Zhou, Helong Dai, Chunhua Fang, Haifeng Wang, Ming Yao, Yiping Hou
Summary: Living kidney donors exhibit inferior physical health in terms of bodily pain compared to the general population, but are superior in general health. There is no significant difference between living kidney donors and the general population in physical function and role-physical. Living kidney donation has a positive impact on the psychological health of well-screened donors.
PSYCHOLOGY HEALTH & MEDICINE
(2021)
Article
Public, Environmental & Occupational Health
Ibtissame Soulaimana, Lea Bruneau, Antoine Tisseaux, Maissa Safieddine, Xavier Debussche, Sophie Lafarge, Bruno Falissard, Cyril Ferdynus, Laetitia Huiart
Summary: This study aimed to provide a Creole translation and French adaptation of the SF-36 and assess its psychometric performance among patients with type II diabetes in Reunion Island. The results showed that the SF-36 is adapted to Reunion Island in both Creole and French versions, although further research is needed to investigate French-Creole differences in perceived health status.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Peripheral Vascular Disease
Young Su Joo, Hyung Woo Kim, Ki Heon Nam, Jee Young Lee, Tae Ik Chang, Jung Tak Park, Tae-Hyun Yoo, Joongyub Lee, Soo Wan Kim, Yun Kyu Oh, Kook-Hwan Oh, Yong-Soo Kim, Curie Ahn, Shin-Wook Kang, Seung Hyeok Han
Summary: In this longitudinal study on CKD, individuals with an increasing SBP trajectory had a significantly higher risk for adverse kidney outcomes compared to those with a stable SBP trajectory, while those with a decreasing SBP trajectory showed a similar risk of adverse kidney outcomes as the stable group.
Article
Medicine, General & Internal
Miyuna Kimura, Junji Yamauchi, Tomoo Sato, Naoko Yagishita, Natsumi Araya, Satoko Aratani, Kenichiro Tanabe, Erika Horibe, Toshiki Watanabe, Ariella Coler-Reilly, Misako Nagasaka, Yukari Akasu, Kei Kaburagi, Takayuki Kikuchi, Soichiro Shibata, Hirofumi Matsumoto, Akihito Koseki, Soichiro Inoue, Ayako Takata, Yoshihisa Yamano
Summary: This study aimed to reveal the impact of human T-lymphotropic virus type 1 (HTLV-1)-associated myelopathy (HAM) on health-related quality of life (HRQoL). The results showed that HRQoL of patients with HAM was worse than that of the general population and was associated with all major symptoms.
FRONTIERS IN MEDICINE
(2022)
Article
Health Policy & Services
Elif Tukenmez Tigen, Buket Erturk Sengel, Beste Ozben, Volkan Korten
Summary: This study compared the Turkish version of the Medical Outcomes Study-HIV Health Survey (MOS-HIV) with the Short Form Health Survey (SF-36) in people with HIV. The results showed that the MOS-HIV correlated moderately with the SF-36 and can be used as an alternative to assess quality of life in these patients.
INTERNATIONAL JOURNAL OF HEALTH PLANNING AND MANAGEMENT
(2022)
Article
Dentistry, Oral Surgery & Medicine
Weiren Wang, Qiuyu Chen, Yuanyuan Kang, Junyan Wang, Yan Wen, Chuanyang Peng, Yuqin Gao, Yannan Cai, Lulu Yuan
Summary: This study aimed to test the validity and reliability of the Chinese version of the short-form Chronic Mucosal Diseases Questionnaire (COMDQ-15). The results showed that COMDQ-15 demonstrated good internal consistency, test-retest reliability, and criterion validity, supporting its reliability and validity.
JOURNAL OF ORAL PATHOLOGY & MEDICINE
(2022)
Review
Peripheral Vascular Disease
Isha S. Dhande, Michael C. Braun, Peter A. Doris
Summary: This article explores the unclear connections between elevated blood pressure and chronic kidney disease, focusing on genetic variations in protein handling mechanisms, renal vasculature autoregulation, and immune mechanisms as potential heritable risk factors. Additionally, it critiques the application of genome-wide association studies to understanding the heritability of renal function in hypertension-related chronic kidney disease.
Article
Peripheral Vascular Disease
Chloe Douglas, Jennifer T. Roem, Joseph L. Flynn, Susan A. Furth, Bradley M. Warady, Susan Halbach
Summary: Using data from the CKiD Study, this study found that younger children with chronic kidney disease are more likely to have unrecognized and untreated hypertensive blood pressure, highlighting the need for efforts to improve blood pressure control in this population.
Review
Medicine, General & Internal
Kamyar Kalantar-Zadeh, Tazeen H. Jafar, Dorothea Nitsch, Brendon L. Neuen, Vlado Perkovic
Summary: Chronic kidney disease is a progressive disease with no cure, and preserving kidney function through lifestyle adjustments and pharmacological interventions can improve outcomes. A plant-dominant, low-protein, and low-salt diet may help mitigate glomerular hyperfiltration and preserve renal function. Various pharmacotherapies can also be used to alter intrarenal haemodynamics and protect the kidney from further damage.
Article
Dermatology
Ana Maria Jimenez-Cebrian, Ricardo Becerro-de-Bengoa-Vallejo, Marta Elena Losa-Iglesias, Cesar Calvo-Lobo, Victoria Mazoteras-Pardo, Juan Francisco Moran-Cortes, Patricia Palomo-Lopez, Daniel Lopez-Lopez
Summary: The study aimed to examine the quality of life in chronic kidney disease (CKD) patients using the Foot Health Status Questionnaire (FHSQ) in Spain. Results showed that female CKD patients had lower scores in various aspects of foot health compared to male patients, indicating poorer quality of life.
JOURNAL OF TISSUE VIABILITY
(2021)
Article
Cardiac & Cardiovascular Systems
Manovriti Thakur, Carolina Victoria Cruz Junho, Sarah Maike Bernhard, Marc Schindewolf, Heidi Noels, Yvonne Doering
Summary: Arterial and venous thrombosis are significant causes of morbidity and mortality worldwide. The association between thrombotic complications and cardiovascular and chronic inflammatory diseases is well-established. Inflammation and immunothrombosis, the initiation of thrombotic events, are gaining attention, but still not fully understood. However, the clinical relevance of aberrant immunothrombosis, known as thromboinflammation, is evident by the increased risk of thrombosis and cardiovascular events in patients with inflammatory or infectious diseases. This review focuses on the interrelationships and functions between NETs and other mediators in cardiovascular disease, as well as neutrophil phenotype, function, and NET formation in chronic kidney disease. Therapeutic targeting of NETs-induced immunothrombosis is also discussed as a potential intervention beyond current treatment options.
CIRCULATION RESEARCH
(2023)
Article
Medicine, General & Internal
Agnieszka Jankowska, Dominik Golicki
Summary: This study compared the health-related quality of life (HRQoL) between subjects with and without self-reported diabetes in a representative sample of the Polish general adult population. The results showed significant differences in various dimensions, particularly in physical functioning, general health, role physical, and bodily pain, between respondents with and without diabetes. Female sex, advanced age, low education levels, and insulin treatment were associated with impaired physical health in respondents with diabetes.
ARCHIVES OF MEDICAL SCIENCE
(2022)
Article
Peripheral Vascular Disease
Muhammad B. Khan, Rebecca Scherzer, Cora E. Lewis, Rakesh Malhotra, Joachim H. Ix, Michael G. Shlipak, Orlando M. Gutierrez
Summary: This study examined the associations between urine biomarkers and incident hypertension in young adults, and found that higher levels of urine EGF were associated with a lower risk of developing hypertension and lower increases in blood pressure over a 10-year period.
Article
Health Care Sciences & Services
Lucy E. Selman, Eileen Sutton, Renata Medeiros Mirra, Tracey Stone, Emma Gilbert, Yansie Rolston, Karl Murray, Mirella Longo, Kathy Seddon, Alison Penny, Catriona R. Mayland, Donna Wakefield, Anthony Byrne, Emily Harrop
Summary: Voluntary and community sector bereavement services are crucial for bereavement support in the UK. However, many needs were not met, particularly among minority ethnic, sexual minority, deprived, and male groups before and during the COVID-19 pandemic. The pandemic had a disproportionate impact on minority ethnic communities, leading to disrupted care and mourning practices. While online provision improved access, it also excluded certain individuals. Positive interventions, such as collecting demographic data and improving outreach and language accessibility, can help address these inequities in accessing bereavement support.
PALLIATIVE MEDICINE
(2023)
Article
Geriatrics & Gerontology
Fliss E. M. Murtagh, Mabel Okoeki, Blessing Onyinye Ukoha-kalu, Assem Khamis, Joseph Clark, Jason W. Boland, Sophie Pask, Ugochinyere Nwulu, Helene Elliott-Button, Anna Folwell, Daniel Harman, Miriam J. Johnson
Summary: In this study, researchers evaluated the effectiveness of a new integrated care service in improving the wellbeing and quality of life of older people living with severe frailty. The results showed that the integrated care service improved wellbeing within 2-4 weeks and this improvement was sustained at three months.
Article
Health Care Sciences & Services
Jason W. Boland, Monisha Kabir, Edward G. Spilg, Colleen Webber, Shirley H. Bush, Fliss Murtagh, Peter G. Lawlor
Summary: During the COVID-19 pandemic, palliative medicine physicians in the UK and Ireland are at higher risk of burnout. Factors influencing burnout include working hours, level of clinical support, and depressive symptoms. Enhanced organizational and colleague support is crucial in managing the current and future pandemics.
PALLIATIVE MEDICINE
(2023)
Article
Health Care Sciences & Services
Hannah May Scott, Lucy Coombes, Debbie Braybrook, Anna Roach, Daney Haroardottir, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Fliss E. M. Murtagh, Bobbie Farsides, Lorna K. Fraser, Myra Bluebond-Langner, Richard Harding
Summary: This study aimed to identify the spiritual needs of children with life-limiting and life-threatening conditions. By conducting semi-structured qualitative interviews with purposively sampled children, family members, and health and social care professionals, the study found that children and family members had uncertainty about the meaning of life and leaving a legacy, while health and social care professionals recognized the importance of addressing spiritual concerns in providing child- and family-centred palliative care.
PALLIATIVE MEDICINE
(2023)
Review
Health Care Sciences & Services
Alice M. Firth, Cheng-Pei Lin, Deok Hee Yi, Joanna Goodrich, Inez Gaczkowska, Frances Waite, Richard Harding, Fliss E. M. Murtagh, Catherine J. Evans
Summary: This study systematically reviewed the components, outcomes, and economic evaluation of community-based 'out-of-hours' care for patients near the end of life and their families. The importance of being known to a service and high-quality coordination of care were identified as key themes. The study calls for further research on the impact and cost effectiveness of different models of out-of-hours care.
PALLIATIVE MEDICINE
(2023)
Article
Health Care Sciences & Services
Javiera Leniz, Joanna M. Davies, Anna E. Bone, Mevhibe Hocaoglu, Julia Verne, Stephen Barclay, Fliss E. M. Murtagh, Lorna K. Fraser, Irene J. Higginson, Katherine E. Sleeman
Summary: The number and proportion of home deaths in the UK increased during the Covid-19 pandemic, with evidence of socioeconomic inequality. The increase in home deaths was lowest for people living in the most deprived areas, showing a deprivation gradient. Further research is needed to understand the reasons for this change and if the inequality has been sustained. Overall rating: 7 points.
PALLIATIVE MEDICINE
(2023)
Review
Health Care Sciences & Services
Anna Collins, David Hui, Sara N. Davison, Kathryn Ducharlet, Fliss Murtagh, Yuchieh Kathryn Chang, Jennifer Philip
Summary: For patients with advanced chronic kidney disease (CKD), access to palliative care is often delayed or absent. This study aimed to identify criteria for referral to specialist palliative care for adults with advanced CKD and improve the utilization of these services. The results showed that clinicians consider various criteria, such as treatment decision making, symptoms, prognosis, age, and comorbidities, when considering referral to palliative care.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Health Care Sciences & Services
Lucy Coombes, Daney Haroardottir, Debbie Braybrook, Hannah May Scott, Katherine Bristowe, Clare Ellis-Smith, Lorna K. Fraser, Julia Downing, Myra Bluebond-Langner, Fliss E. M. Murtagh, Richard Harding
Summary: This study highlights the importance and feasibility of involving key stakeholders in the generation of outcome measure items in pediatric palliative care, as important differences were found in the priority outcomes identified by children, parents, and professionals.
PALLIATIVE MEDICINE
(2023)
Article
Multidisciplinary Sciences
Alison Bravington, George Obita, Elin Baddeley, Miriam J. Johnson, Fliss E. M. Murtagh, David C. Currow, Elaine G. Boland, Annmarie Nelson, Kathy Seddon, Alfred Oliver, Simon I. R. Noble, Jason W. Boland
Summary: This study aimed to develop a Core Outcome Set for the assessment of inoperable malignant bowel obstruction with the involvement of clinicians, patients, and caregivers, using the COMET methodology. Through a systematic review, a rapid review, and in-depth interviews, a comprehensive list of outcomes was identified and consolidated. In the Delphi process, 16 core outcomes were agreed upon by stakeholders in the areas of symptom control, life impact, treatment outcomes, and communication and patient preferences.
Article
Hematology
J. Goedegebuur, D. Abbel, S. Accassat, W. P. Achterberg, A. Akbari, V. M. Arfuch, E. Baddeley, J. J. Bax, D. Becker, B. Bergmeijer, L. Bertoletti, J. W. Blom, A. Calvetti, S. C. Cannegieter, L. Castro, N. Coma-Auli, N. H. Chavannes, C. Couffignal, A. Edwards, M. Edwards, H. Enggaard, C. Font, A. Gava, G. J. Geersing, E. C. T. Geijteman, S. Greenley, C. Gregory, J. Gussekloo, I. Hoffmannu, A. A. Hojen, W. B. van den Hout, M. V. Huisman, S. Jacobsen, J. Jagosh, M. J. Johnson, L. Jorgensen, C. C. M. Juffermans, E. K. Kempers, S. Konstantinides, A. F. Kroder, M. J. H. A. Kruip, L. Lafaie, J. W. Langendoen, T. B. Larsen, K. Lifford, Y. M. van der Linden, I. Mahe, L. Maiorana, A. Maraveyas, E. S. L. Martens, D. Mayeur, T. E. van Mens, K. Mohr, S. P. Mooijaart, F. E. M. Murtagh, A. Nelson, P. B. Nielsen, A. G. Ording, M. Orskov, M. Pearson, G. Poenou, J. E. A. Portielje, D. Raczkiewicz, K. Rasmussen, E. Trinks-Roerdink, I. Schippers, K. Seddon, K. Sexton, S. Sivell, F. Skjoth, M. Sogaard, S. Szmit, S. Trompet, P. Vassal, C. Visser, L. M. van Vliet, E. Wilson, F. A. Klok, S. I. R. Noble
Summary: The SERENITY consortium aims to develop an information-driven shared decision support tool for the appropriate use of antithrombotic therapy in people with cancer at the end of life. The use of this tool is expected to enhance empowerment and improve quality of life and treatment satisfaction for patients with advanced cancer and their caregivers.
THROMBOSIS RESEARCH
(2023)
Article
Health Care Sciences & Services
Andrew Papworth, Julia Hackett, Bryony Beresford, Fliss Murtagh, Helen Weatherly, Sebastian Hinde, Andre Bedendo, Gabriella Walker, Jane Noyes, Sam Oddie, Chakrapani Vasudevan, Richard G. Feltbower, Bob Phillips, Richard Hain, Gayathri Subramanian, Andrew Haynes, Lorna K. Fraser
Summary: This qualitative study explores regional perspectives on the successes and challenges of coordinating and delivering end-of-life care for children in the UK. The findings highlight the importance of collaborative and network approaches, as well as effective communication, in facilitating good end-of-life care. However, consistent funding and staff education and training need to be addressed to improve the delivery and experiences of care.
BMC PALLIATIVE CARE
(2023)
Review
Health Care Sciences & Services
Carole A. Paley, Jason W. Boland, Martina Santarelli, Fliss E. M. Murtagh, Lucy Ziegler, Emma J. Chapman
Summary: This study systematically reviewed non-pharmacological interventions for cancer-related psychological distress and found that most studies using mindfulness interventions were effective in alleviating distress.
BMC PALLIATIVE CARE
(2023)
Article
Health Care Sciences & Services
Andre Bedendo, Sebastian Hinde, Bryony Beresford, Andrew Papworth, Bob Phillips, Chakrapani Vasudevan, Emma McLorie, Gabriella Walker, George Peat, Helen Weatherly, Richard Feltbower, Catherine Hewitt, Andrew Haynes, Fliss Murtagh, Jane Noyes, Julia Hackett, Richard Hain, Sam Oddie, Gayathri Subramanian, Lorna Fraser
Summary: The objective of this study is to gather information on the professional team members, services provided, funding sources and population served for all consultant-led specialised paediatric palliative care teams in the UK. The findings show that only six services meet the minimum criteria defined by NICE. Most services provide symptom management, specialist nursing care, end-of-life planning and care, and support for discharges and transfers. Additionally, charity funding plays a significant role in funding the services.
BMJ SUPPORTIVE & PALLIATIVE CARE
(2023)
Article
Public, Environmental & Occupational Health
Emily Harrop, Renata Medeiros Mirra, Silvia Goss, Mirella Longo, Anthony Byrne, Damian J. J. Farnell, Kathy Seddon, Alison Penny, Linda Machin, Stephanie Sivell, Lucy E. Selman
Summary: This longitudinal study investigated the prevalence of Prolonged Grief Disorder (PGD) in UK individuals bereaved during the COVID-19 pandemic. The study found higher than expected levels of PGD, with social isolation, lack of social support, and support from healthcare professionals playing significant roles in the development of prolonged grief symptoms.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Health Care Sciences & Services
Lucy E. Selman, Nicholas Turner, Lesel Dawson, Charlotte Chamberlain, Aisling Mustan, Alison Rivett, Fiona Fox
Summary: The Good Grief Festival successfully attracted a large online audience and had a positive impact on engagement, confidence, and community-building. The evaluation findings suggest that festivals of this nature can play a central role in increasing public awareness of death and grief within a public health approach.
PALLIATIVE CARE & SOCIAL PRACTICE
(2023)