Using patient-reported outcomes and PROMIS in research and clinical applications: experiences from the PCORI pilot projects

Patient and Stakeholder Engagement in the PCORI Pilot Projects: Description and Lessons Learned

(2015) Laura P. Forsythe et al.   JOURNAL OF GENERAL INTERNAL MEDICINE

Exploration, Development, and Validation of Patient-reported Outcomes in Antineutrophil Cytoplasmic Antibody-associated Vasculitis Using the OMERACT Process

(2015) J. C. Robson et al.   JOURNAL OF RHEUMATOLOGY

Communicating patient-reported outcome scores using graphic formats: results from a mixed-methods evaluation

(2015) Michael D. Brundage et al.   QUALITY OF LIFE RESEARCH

Evaluating PROMIS® instruments and methods for patient-centered outcomes research: Patient and provider voices in a substance use treatment setting

(2015) Kelly L. Johnston et al.   QUALITY OF LIFE RESEARCH

Reliability and Validity of Selected PROMIS Measures in People with Rheumatoid Arthritis

(2015) Susan J. Bartlett et al.   PLoS One

Bringing PROMIS to practice: Brief and precise symptom screening in ambulatory cancer care

(2014) Lynne I. Wagner et al.   CANCER

The PROMIS Physical Function item bank was calibrated to a standardized metric and shown to improve measurement efficiency

(2014) Matthias Rose et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

The case for an international patient-reported outcomes measurement information system (PROMIS®) initiative

(2013) Jordi Alonso et al.   Health and Quality of Life Outcomes

Patient-reported Outcomes (PROs)

(2013) Claire F. Snyder et al.   MEDICAL CARE

ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research

(2013) Bryce B. Reeve et al.   QUALITY OF LIFE RESEARCH

Validation of Electronic Systems to Collect Patient-Reported Outcome (PRO) Data—Recommendations for Clinical Trial Teams: Report of the ISPOR ePRO Systems Validation Good Research Practices Task Force

(2013) Arthur Zbrozek et al.   VALUE IN HEALTH

Identifying core domains to assess flare in rheumatoid arthritis: an OMERACT international patient and provider combined Delphi consensus

(2012) Susan J Bartlett et al.   ANNALS OF THE RHEUMATIC DISEASES

The Patient-Centered Outcomes Research Institute (PCORI) National Priorities for Research and Initial Research Agenda

(2012) Anne C. Beal   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations

(2011) Claire F. Snyder et al.   QUALITY OF LIFE RESEARCH

Adding The Patient Perspective To Comparative Effectiveness Research

(2010) Albert W. Wu et al.   HEALTH AFFAIRS