Facilitating a culture of responsible and effective sharing of cancer genome data

US president endorses “moonshot” effort to cure cancer

(2016) Michael McCarthy   BMJ-British Medical Journal

US president endorses “moonshot” effort to cure cancer

(2016) Michael McCarthy   BMJ-British Medical Journal

The Human Phenotype Ontology: Semantic Unification of Common and Rare Disease

(2015) Tudor Groza et al.   AMERICAN JOURNAL OF HUMAN GENETICS

Are physicians prepared for whole genome sequencing? a qualitative analysis

(2015) K.D. Christensen et al.   CLINICAL GENETICS

Stakeholders’ perspectives on biobank-based genomic research: systematic review of the literature

(2015) Alma Husedzinovic et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Feasibility of Large-Scale Genomic Testing to Facilitate Enrollment Onto Genomically Matched Clinical Trials

(2015) Funda Meric-Bernstam et al.   JOURNAL OF CLINICAL ONCOLOGY

UK gears up to decode 100 000 genomes from NHS patients

(2015) Nayanah Siva   LANCET

Data analysis: Create a cloud commons

(2015) Lincoln D. Stein et al.   NATURE

Good laboratory practice for clinical next-generation sequencing informatics pipelines

(2015) Amy S Gargis et al.   NATURE BIOTECHNOLOGY

Toward understanding and exploiting tumor heterogeneity

(2015) Ash A Alizadeh et al.   NATURE MEDICINE

Combining tumor genome simulation with crowdsourcing to benchmark somatic single-nucleotide-variant detection

(2015) Adam D Ewing et al.   NATURE METHODS

GINA, Genetic Discrimination, and Genomic Medicine

(2015) Robert C. Green et al.   NEW ENGLAND JOURNAL OF MEDICINE

ClinGen — The Clinical Genome Resource

(2015) Heidi L. Rehm et al.   NEW ENGLAND JOURNAL OF MEDICINE

A New Initiative on Precision Medicine

(2015) Francis S. Collins et al.   NEW ENGLAND JOURNAL OF MEDICINE

All the World's a Stage: Facilitating Discovery Science and Improved Cancer Care through the Global Alliance for Genomics and Health

(2015) M. Lawler et al.   Cancer Discovery

Prioritizing targets for precision cancer medicine

(2014) F. Andre et al.   ANNALS OF ONCOLOGY

Factors that May Influence the Willingness of Cancer Patients to Consent for Biobanking

(2014) Ussha Pillai et al.   BIOPRESERVATION AND BIOBANKING

Cancer Core Europe: A consortium to address the cancer care – Cancer research continuum challenge

(2014) Alexander M.M. Eggermont et al.   EUROPEAN JOURNAL OF CANCER

A human rights approach to an international code of conduct for genomic and clinical data sharing

(2014) Bartha M. Knoppers et al.   HUMAN GENETICS

Building a Rapid Learning Health Care System for Oncology: The Regulatory Framework of CancerLinQ

(2014) Richard L. Schilsky et al.   JOURNAL OF CLINICAL ONCOLOGY

Attitudes regarding privacy of genomic information in personalized cancer therapy

(2014) Deevakar Rogith et al.   JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION

A Bill of Rights for patients with cancer in Europe

(2014) Mark Lawler et al.   LANCET ONCOLOGY

Comparative genomic hybridisation array and DNA sequencing to direct treatment of metastatic breast cancer: a multicentre, prospective trial (SAFIR01/UNICANCER)

(2014) Fabrice André et al.   LANCET ONCOLOGY

Global optimization of somatic variant identification in cancer genomes with a global community challenge

(2014) Paul C Boutros et al.   NATURE GENETICS

Whole-exome sequencing and clinical interpretation of formalin-fixed, paraffin-embedded tumor samples to guide precision cancer medicine

(2014) Eliezer M Van Allen et al.   NATURE MEDICINE

European perspective for effective cancer drug development

(2014) Denis Lacombe et al.   Nature Reviews Clinical Oncology

Implementing personalized cancer care

(2014) Richard L. Schilsky   Nature Reviews Clinical Oncology

Routes for breaching and protecting genetic privacy

(2014) Yaniv Erlich et al.   NATURE REVIEWS GENETICS

A Catalyst for Change: The European Cancer Patient's Bill of Rights

(2014) M. Lawler et al.   ONCOLOGIST

Molecular Analysis for Therapy Choice: NCI MATCH

(2014) Barbara A. Conley et al.   SEMINARS IN ONCOLOGY

International ethics harmonization and the global alliance for genomics and health

(2014) Bartha M Knoppers   Genome Medicine

PhenoTips: Patient Phenotyping Software for Clinical and Research Use

(2013) Marta Girdea et al.   HUMAN MUTATION

Ethical, Legal, and Counseling Challenges Surrounding the Return of Genetic Results in Oncology

(2013) Martijn P. Lolkema et al.   JOURNAL OF CLINICAL ONCOLOGY

Systematic comparison of phenome-wide association study of electronic medical record data and genome-wide association study data

(2013) Joshua C Denny et al.   NATURE BIOTECHNOLOGY

The Cancer Genome Atlas Pan-Cancer analysis project

(2013) John N Weinstein et al.   NATURE GENETICS

The Implications of Clonal Genome Evolution for Cancer Medicine

(2013) Samuel Aparicio et al.   NEW ENGLAND JOURNAL OF MEDICINE

The Human Phenotype Ontology project: linking molecular biology and disease through phenotype data

(2013) Sebastian Köhler et al.   NUCLEIC ACIDS RESEARCH

NCBI’s Database of Genotypes and Phenotypes: dbGaP

(2013) Kimberly A. Tryka et al.   NUCLEIC ACIDS RESEARCH

Identifying Personal Genomes by Surname Inference

(2013) M. Gymrek et al.   SCIENCE

Data Sharing in the Post-Genomic World: The Experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)

(2012) Yann Joly et al.   PLoS Computational Biology

The eMERGE Network: A consortium of biorepositories linked to electronic medical records data for conducting genomic studies

(2011) Catherine A McCarty et al.   BMC Medical Genomics

To share or not to share: A randomized trial of consent for data sharing in genome research

(2011) Amy L. McGuire et al.   GENETICS IN MEDICINE

Sharing research data to improve public health

(2011) Mark Walport et al.   LANCET

From consent to institutions: Designing adaptive governance for genomic biobanks

(2011) Kieran C. O’Doherty et al.   SOCIAL SCIENCE & MEDICINE

Consent for Biobanking: Assessing the Understanding and Views of Cancer Patients

(2010) Julien Mancini et al.   JNCI-Journal of the National Cancer Institute

International network of cancer genome projects

(2010) Thomas J. Hudson (Chairperson) et al.   NATURE

From genetic privacy to open consent

(2008) Jeantine E. Lunshof et al.   NATURE REVIEWS GENETICS

Sample, data use and protection in biobanking in Europe: legal issues

(2008) Eleni Zika et al.   PHARMACOGENOMICS

Resolving Individuals Contributing Trace Amounts of DNA to Highly Complex Mixtures Using High-Density SNP Genotyping Microarrays

(2008) Nils Homer et al.   PLoS Genetics