Choosing the right outcomes in infectious diseases clinical research – Putting patients front and centre

The effect of antibiotic therapy for Clostridioides difficile infection on mortality and other patient-relevant outcomes: a systematic review and meta-analysis

(2023) Yoav Stabholz et al.   CLINICAL MICROBIOLOGY AND INFECTION

Hear my voice: involving patients in Clostridioides difficile infection research

(2023) Judith Strawbridge et al.   CLINICAL MICROBIOLOGY AND INFECTION

Choosing important health outcomes for comparative effectiveness research: 6th annual update to a systematic review of core outcome sets for research

(2021) Elizabeth Gargon et al.   PLoS One

Clinical Practice Guideline by the Infectious Diseases Society of America (IDSA) and Society for Healthcare Epidemiology of America (SHEA): 2021 Focused Update Guidelines on Management of Clostridioides difficile Infection in Adults

(2021) Stuart Johnson et al.   CLINICAL INFECTIOUS DISEASES

European Society of Clinical Microbiology and Infectious Diseases: 2021 update on the treatment guidance document for Clostridioides difficile infection in adults

(2021) Joffrey van Prehn et al.   CLINICAL MICROBIOLOGY AND INFECTION

Patient-relevant outcomes: what are we talking about? A scoping review to improve conceptual clarity

(2020) Christine Kersting et al.   BMC HEALTH SERVICES RESEARCH

The CDI-DaySyms: Content Development of a New Patient-Reported Outcome Questionnaire for Symptoms of Clostridium difficile Infection

(2018) Leah Kleinman et al.   VALUE IN HEALTH

Fidaxomicin versus Vancomycin as a First-Line Treatment for Clostridium difficile -Associated Diarrhea in Specific Patient Populations: A Pharmacoeconomic Evaluation

(2017) Kelly R. Reveles et al.   PHARMACOTHERAPY

Patient-Reported Outcome Assessments as Endpoints in Studies in Infectious Diseases

(2016) John H. Powers et al.   CLINICAL INFECTIOUS DISEASES

Development and Validation of a Clostridium difficile Health-related Quality-of-Life Questionnaire

(2016) Kevin W. Garey et al.   JOURNAL OF CLINICAL GASTROENTEROLOGY

Person-Centered Care: A Definition and Essential Elements

(2015)   JOURNAL OF THE AMERICAN GERIATRICS SOCIETY

Patient engagement in research: a systematic review

(2014) Juan Pablo Domecq et al.   BMC HEALTH SERVICES RESEARCH

Values and preferences for oral antithrombotic therapy in patients with atrial fibrillation: physician and patient perspectives

(2014) Pablo Alonso-Coello et al.   HEALTH EXPECTATIONS

Choosing Important Health Outcomes for Comparative Effectiveness Research: A Systematic Review

(2014) Elizabeth Gargon et al.   PLoS One

Is Fidaxomicin Worth the Cost? An Economic Analysis

(2013) Sarah M. Bartsch et al.   CLINICAL INFECTIOUS DISEASES

Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences

(2013) Maarten de Wit et al.   BMJ Open

Developing core outcome sets for clinical trials: issues to consider

(2012) Paula R Williamson et al.   Trials

Using the Delphi Technique to Determine Which Outcomes to Measure in Clinical Trials: Recommendations for the Future Based on a Systematic Review of Existing Studies

(2011) Ian P. Sinha et al.   PLOS MEDICINE

Patient Perspective on Outcomes in Rheumatology -- A Position Paper for OMERACT 9

(2009) J. R. KIRWAN et al.   JOURNAL OF RHEUMATOLOGY

Identifying the clinical domains of fibromyalgia: Contributions from clinician and patient delphi exercises

(2008) Phillip J. Mease et al.   ARTHRITIS AND RHEUMATISM