Transitions of Care in Cystic Fibrosis

Lived experiences of individuals with cystic fibrosis on CFTR-modulators

(2022) Annelise Page et al.   BMC Pulmonary Medicine

Modifiable factors related to transition readiness in adolescents and young adults with epilepsy

(2021) Aimee W. Smith et al.   EPILEPSY & BEHAVIOR

Cystic Fibrosis

(2021) Kimberly M. Dickinson et al.   PEDIATRICS IN REVIEW

Effect of transfer from a pediatric to adult cystic fibrosis center on clinical status and hospital attendance

(2021) Rachel Collins et al.   PEDIATRIC PULMONOLOGY

Implementation lessons from the transition to telehealth during COVID-19: a survey of clinicians and young people from youth mental health services

(2021) Jennifer Nicholas et al.   PSYCHIATRY RESEARCH

Rapid Transition to Telehealth and the Digital Divide: Implications for Primary Care Access and Equity in a Post‐COVID Era

(2021) JI E. CHANG et al.   MILBANK QUARTERLY

National Trends of Hospitalizations in Cystic Fibrosis Highlight a Need for Pediatric to Adult Transition Clinics

(2021) Mitchell L. Ramsey et al.   PANCREAS

Vulnerable patients forgo health care during the first wave of the Covid-19 pandemic

(2021) Stéphanie Baggio et al.   PREVENTIVE MEDICINE

Considerations for Home-Based Treatment of Fabry Disease in Poland during the COVID-19 Pandemic and Beyond

(2021) Michał Nowicki et al.   International Journal of Environmental Research and Public Health

Formal vs. informal transition in adolescents with cystic fibrosis: A retrospective comparison of outcomes

(2021) Brandi Middour-Oxler et al.   Journal of Pediatric Nursing-Nursing Care of Children & Families

Trends in Technology Assistance Among Patients With Childhood Onset Chronic Conditions

(2021) Elizabeth F. Boggs et al.   Hospital pediatrics

86: Post-transition quarterly phone calls and emails increase contact with young adults with CF and address concerns between clinic visits

(2021) L. Prunty et al.   Journal of Cystic Fibrosis

Some young adults with cystic fibrosis‐related diabetes may safely stop insulin without any adverse clinical sequelae

(2020) C. Ogbolu et al.   DIABETIC MEDICINE

THE GUIDED TRANSFER OF CARE IMPROVES ADULT CLINIC SHOW RATE

(2020) Rayhan A. Lal et al.   Endocrine Practice

Clinical communication preferences in cystic fibrosis and strategies to optimize care

(2020) Laura Cooley et al.   PEDIATRIC PULMONOLOGY

The COVID-19 Pandemic and Rapid Implementation of Adolescent and Young Adult Telemedicine: Challenges and Opportunities for Innovation

(2020) Angela Barney et al.   JOURNAL OF ADOLESCENT HEALTH

Longitudinal Relationships Between Depression and Chronic Illness in Adolescents: An Integrative Review

(2020) Katherine Zheng et al.   Journal of Pediatric Health Care

Telemedicine in the Time of COVID and Beyond

(2020) Steve North   JOURNAL OF ADOLESCENT HEALTH

Highlights from the 2019 North American Cystic Fibrosis Conference

(2020) Jordana E. Hoppe et al.   PEDIATRIC PULMONOLOGY

Defining Coordinated Care for People with Rare Conditions: A Scoping Review

(2020) Holly Walton et al.   International Journal of Integrated Care

Models of Palliative Care Delivery for Individuals with Cystic Fibrosis: Cystic Fibrosis Foundation Evidence-Informed Consensus Guidelines

(2020) Dio Kavalieratos et al.   JOURNAL OF PALLIATIVE MEDICINE

Transition to Adult Care in Children on Long-Term Ventilation

(2020) Alessandro Onofri et al.   Frontiers in Pediatrics

Models of Transition

(2020) Mary L Zupanc   Seminars in Pediatric Neurology

The effect of self-efficacy, social support and quality of life on readiness for transition to adult care among adolescents with cystic fibrosis in Turkey

(2020) Tuğçe Torun et al.   Journal of Pediatric Nursing-Nursing Care of Children & Families

The Impact of Age of Transfer on Outcomes in the Transition From Pediatric to Adult Health Systems: A Systematic Review of Reviews

(2019) Arrash Yassaee et al.   JOURNAL OF ADOLESCENT HEALTH

Readiness for transition and healthcare satisfaction in adolescents with complex medical conditions

(2019) Juliet Haarbauer-Krupa et al.   CHILD CARE HEALTH AND DEVELOPMENT

Critères de qualité pour la transition dans la mucoviscidose en France (suivi des adolescents, des familles et des équipes, pour une transition idéale en mucoviscidose – analyse des pratiques professionnelles)

(2019) V. Vion Genovese et al.   REVUE DES MALADIES RESPIRATOIRES

Validation of the “Good2Go”: the first French-language transition readiness questionnaire

(2019) Hélène Mellerio et al.   EUROPEAN JOURNAL OF PEDIATRICS

Social complexity negatively influences lung function in cystic fibrosis after transfer to adult care

(2019) Erin M. Crowley et al.   PEDIATRIC PULMONOLOGY

A Systematic Review of Transition Readiness in Youth with Chronic Disease

(2019) Maureen Varty et al.   WESTERN JOURNAL OF NURSING RESEARCH

Initiating transitional care for adolescents with cystic fibrosis at the age of 12 is both feasible and promising

(2018) M Skov et al.   ACTA PAEDIATRICA

Impact of social complexity on outcomes in cystic fibrosis after transfer to adult care

(2018) Erin M. Crowley et al.   PEDIATRIC PULMONOLOGY

A Parental Report of Youth Transition Readiness: The Parent STARx Questionnaire (STARx-P) and Re-evaluation of the STARx Child Report

(2018) Meaghan Nazareth et al.   Journal of Pediatric Nursing-Nursing Care of Children & Families

Cystic Fibrosis-Related Diabetes

(2018) Kayani Kayani et al.   Frontiers in Endocrinology

Transition Planning Among US Youth With and Without Special Health Care Needs

(2018) Lydie A. Lebrun-Harris et al.   PEDIATRICS

Use of telehealth in the delivery of comprehensive care for patients with haemophilia and other inherited bleeding disorders

(2017) R. Kulkarni   HAEMOPHILIA

Outcome Evidence for Structured Pediatric to Adult Health Care Transition Interventions: A Systematic Review

(2017) Phabinly Gabriel et al.   JOURNAL OF PEDIATRICS

Overcoming barriers to a successful transition from pediatric to adult care

(2017) Jennifer L. Goralski et al.   PEDIATRIC PULMONOLOGY

Sexual and Reproductive Health Care Services in the Pediatric Setting

(2017) Arik V. Marcell et al.   PEDIATRICS

Self-management and Transition to Adult Health Care in Adolescents and Young Adults: A Team Process

(2017) John D. Mahan et al.   PEDIATRICS IN REVIEW

The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers

(2017) Nicola J Rowbotham et al.   THORAX

Health-related quality of life of young people with long-term illnesses before and after transfer from child to adult healthcare

(2016) A. E. While et al.   CHILD CARE HEALTH AND DEVELOPMENT

Cystic Fibrosis Transitions of Care

(2016) Megumi J. Okumura et al.   CLINICS IN CHEST MEDICINE

Insulin Resistance of Puberty

(2016) Megan M. Kelsey et al.   Current Diabetes Reports

The psychological burden of cystic fibrosis

(2016) Alexandra L. Quittner et al.   CURRENT OPINION IN PULMONARY MEDICINE

Transitions in Health Care

(2016) Natalie E. West et al.   PEDIATRIC CLINICS OF NORTH AMERICA

Provider and Patient Attitudes Regarding Sexual Health in Young Women With Cystic Fibrosis

(2016) T. M. Kazmerski et al.   PEDIATRICS

International and Interdisciplinary Identification of Health Care Transition Outcomes

(2016) Cynthia Fair et al.   JAMA Pediatrics

Medication beliefs mediate between depressive symptoms and medication adherence in cystic fibrosis.

(2015) Marisa E. Hilliard et al.   HEALTH PSYCHOLOGY

CF RISE: Implementing a Clinic-Based Transition Program

(2015) Anna M. Baker et al.   Pediatric Allergy Immunology and Pulmonology

Self-Management and Transition Readiness Assessment: Development, Reliability, and Factor Structure of the STARx Questionnaire

(2015) M. Ferris et al.   Journal of Pediatric Nursing-Nursing Care of Children & Families

The Transition Readiness Assessment Questionnaire (TRAQ): Its Factor Structure, Reliability, and Validity

(2014) David L. Wood et al.   Academic Pediatrics

Ready, Set, Stop

(2014) Gregory S. Sawicki et al.   CLINICAL PEDIATRICS

Setting the stage for development of a program for adolescent heart transplant recipients to transition to adult providers: An integrative review of the literature

(2014) Sara C. Hallowell   Journal for Specialists in Pediatric Nursing

Prevalence of depression and anxiety in patients with cystic fibrosis and parent caregivers: results of The International Depression Epidemiological Study across nine countries

(2014) Alexandra L Quittner et al.   THORAX

Improving transition from paediatric to adult cystic fibrosis care: programme implementation and evaluation

(2014) Megumi J Okumura et al.   BMJ Quality & Safety

Accelerating the rate of improvement in cystic fibrosis care: contributions and insights of the learning and leadership collaborative

(2014) Marjorie M Godfrey et al.   BMJ Quality & Safety

Accelerating implementation of biomedical research advances: critical elements of a successful 10 year Cystic Fibrosis Foundation healthcare delivery improvement initiative

(2014) Bruce C Marshall et al.   BMJ Quality & Safety

Cystic Fibrosis Pulmonary Guidelines

(2013) Peter J. Mogayzel et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

Treatment complexity in cystic fibrosis: Trends over time and associations with site-specific outcomes

(2013) Gregory S. Sawicki et al.   Journal of Cystic Fibrosis

The impact of a managed transition of care upon psychosocial characteristics and patient satisfaction in a cohort of adult survivors of childhood cancer

(2013) M. van Laar et al.   PSYCHO-ONCOLOGY

The natural history and predictors of persistent problem behaviours in cystic fibrosis: a multicentre, prospective study

(2012) Jane Sheehan et al.   ARCHIVES OF DISEASE IN CHILDHOOD

Change in Health Status and Access to Care in Young Adults With Special Health Care Needs: Results From the 2007 National Survey of Adult Transition and Health

(2012) Megumi J. Okumura et al.   JOURNAL OF ADOLESCENT HEALTH

Telehealth in cystic fibrosis: a systematic review

(2012) Narelle S Cox et al.   JOURNAL OF TELEMEDICINE AND TELECARE

Evaluation of a cystic fibrosis transition program from pediatric to adult care

(2012) Sarah R. Chaudhry et al.   PEDIATRIC PULMONOLOGY

A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions

(2011) L. A. Schwartz et al.   CHILD CARE HEALTH AND DEVELOPMENT

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home

(2011)   PEDIATRICS

Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national sample

(2011) Alexandra L. Quittner et al.   QUALITY OF LIFE RESEARCH

Identifying barriers to treatment adherence and related attitudinal patterns in adolescents with cystic fibrosis

(2010) Eric J. Dziuban et al.   PEDIATRIC PULMONOLOGY

Transition to adult services for children and young people with palliative care needs: a systematic review

(2009) M. Doug et al.   ARCHIVES OF DISEASE IN CHILDHOOD

High treatment burden in adults with cystic fibrosis: Challenges to disease self-management

(2008) Gregory S. Sawicki et al.   Journal of Cystic Fibrosis

Comfort of General Internists and General Pediatricians in Providing Care for Young Adults with Chronic Illnesses of Childhood

(2008) Megumi J. Okumura et al.   JOURNAL OF GENERAL INTERNAL MEDICINE