Accelerating implementation of biomedical research advances: critical elements of a successful 10 year Cystic Fibrosis Foundation healthcare delivery improvement initiative

The Cystic Fibrosis Foundation Patient Registry as a tool for use in quality improvement

(2014) Michael S Schechter et al.   BMJ Quality & Safety

Cystic Fibrosis Pulmonary Guidelines

(2013) Peter J. Mogayzel et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

Rx For The ‘Blockbuster Drug’ Of Patient Engagement

(2013) Susan Dentzer   HEALTH AFFAIRS

Moving forward: cystic fibrosis gene therapy

(2013) U. Griesenbach et al.   HUMAN MOLECULAR GENETICS

The Randomized Registry Trial — The Next Disruptive Technology in Clinical Research?

(2013) Michael S. Lauer et al.   NEW ENGLAND JOURNAL OF MEDICINE

Development and Validation of a Cystic Fibrosis Patient and Family Member Experience of Care Survey

(2013) Karen Homa et al.   Quality Management in Health Care

Increased adherence to CFF practice guidelines for pulmonary medications correlates with improved FEV1

(2012) Brooke M. Moore et al.   PEDIATRIC PULMONOLOGY

Accurate Assessment of Adherence

(2011) Tracey Daniels et al.   CHEST

A CFTR Potentiator in Patients with Cystic Fibrosis and theG551DMutation

(2011) Bonnie W. Ramsey et al.   NEW ENGLAND JOURNAL OF MEDICINE

Epidemiology, Pathophysiology, and Prognostic Implications of Cystic Fibrosis-Related Diabetes: A technical review

(2010) A. Moran et al.   DIABETES CARE

Specialist Physician Practices as Patient-Centered Medical Homes

(2010) Lawrence P. Casalino et al.   NEW ENGLAND JOURNAL OF MEDICINE

Efficacy and Safety of Inhaled Aztreonam Lysine for Airway Pseudomonas in Cystic Fibrosis

(2009) George Z. Retsch-Bogart et al.   CHEST

Inhaled Aztreonam Lysine for Chronic AirwayPseudomonas aeruginosain Cystic Fibrosis

(2008) Karen S. McCoy et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE