Quantifying the burden of caregiving in Duchenne muscular dystrophy

Caregiver Burden

(2014) Ronald D. Adelman et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

The burden of Duchenne muscular dystrophy: An international, cross-sectional study

(2014) E. Landfeldt et al.   NEUROLOGY

No physical health without mental health: lessons unlearned?

(2013) Kavitha Kolappa et al.   BULLETIN OF THE WORLD HEALTH ORGANIZATION

The TREAT-NMD Duchenne Muscular Dystrophy Registries: Conception, Design, and Utilization by Industry and Academia

(2013) Catherine L. Bladen et al.   HUMAN MUTATION

“I have got something positive out of this situation”: psychological benefits of caregiving in relatives of young people with muscular dystrophy

(2013) Lorenza Magliano et al.   JOURNAL OF NEUROLOGY

Dimensional analysis of burden in family caregivers of patients with obsessive-compulsive disorder

(2013) Albina Rodrigues Torres et al.   PSYCHIATRY AND CLINICAL NEUROSCIENCES

Health Utility Assessment Using EQ-5D among Caregivers of Children with Autism

(2013) Rahul Khanna et al.   VALUE IN HEALTH

Partner Burden in Irritable Bowel Syndrome

(2012) Reuben K. Wong et al.   Clinical Gastroenterology and Hepatology

Psychological Experience of Parents of Children With Type 1 Diabetes

(2012) Robin Whittemore et al.   DIABETES EDUCATOR

Subjective caregiver burden of parents of adults with Duchenne muscular dystrophy

(2011) Robert F. Pangalila et al.   DISABILITY AND REHABILITATION

Carer burden in apathy and impulse control disorders in Parkinson's disease

(2011) Iracema Leroi et al.   INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY

Quality of Life in Duchenne Muscular Dystrophy: The Subjective Impact on Children and Parents

(2011) Ilaria Baiardini et al.   JOURNAL OF CHILD NEUROLOGY

Catalogue of EQ-5D Scores for the United Kingdom

(2011) Patrick W. Sullivan et al.   MEDICAL DECISION MAKING

Predictors of Family Caregiver Ratings of Patient Quality of Life in Alzheimer Disease: Cross-Sectional Results from the Canadian Alzheimer's Disease Quality of Life Study

(2010) Gary Naglie et al.   AMERICAN JOURNAL OF GERIATRIC PSYCHIATRY

Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management

(2009) Katharine Bushby et al.   LANCET NEUROLOGY

Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care

(2009) Katharine Bushby et al.   LANCET NEUROLOGY

Immune Dysregulation and Chronic Stress among Older Adults: A Review

(2008) Jean-Philippe Gouin et al.   NEUROIMMUNOMODULATION

Parental Stress and Quality of Life in Children With Neuromuscular Disease

(2008) Jean K. Mah et al.   PEDIATRIC NEUROLOGY

Informal and formal care for elderly persons: How adult children's characteristics affect the use of formal care in Japan

(2008) Chie Hanaoka et al.   SOCIAL SCIENCE & MEDICINE