Sharing administrative health data with private industry: A report on two citizens' juries

Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence

(2019) Shona Kalkman et al.   JOURNAL OF MEDICAL ETHICS

Elements of Trust in Digital Health Systems: Scoping Review

(2018) Afua Adjekum et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Influencing health policy through public deliberation: Lessons learned from two decades of Citizens'/community juries

(2017) Chris Degeling et al.   SOCIAL SCIENCE & MEDICINE

Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies

(2016) Mhairi Aitken et al.   BMC Medical Ethics

‘You should at least ask’. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research

(2016) Pauline McCormack et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

CJCheck Stage 1: development and testing of a checklist for reporting community juries - Delphi process and analysis of studies published in 1996-2015

(2016) Rae Thomas et al.   HEALTH EXPECTATIONS

A review of linked health data in Australian nephrology

(2016) Sradha Kotwal et al.   NEPHROLOGY

A systematic literature review of individuals’ perspectives on broad consent and data sharing in the United States

(2015) Nanibaa' A. Garrison et al.   GENETICS IN MEDICINE

Big data meets public health

(2014) M. J. Khoury et al.   SCIENCE

The use of citizens' juries in health policy decision-making: A systematic review

(2014) Jackie Street et al.   SOCIAL SCIENCE & MEDICINE

Facilitating the action of community representatives in a health service: the role of a community participation coordinator

(2013) Sally Nathan et al.   BMC HEALTH SERVICES RESEARCH

“Let’s get the best quality research we can”: public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study

(2013) Elizabeth M Hill et al.   BMC Medical Research Methodology

Research participants’ attitudes towards the confidentiality of genomic sequence information

(2013) Leila Jamal et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Data Linkage: A powerful research tool with potential problems

(2011) Megan A Bohensky et al.   BMC HEALTH SERVICES RESEARCH

A decade of data linkage in Western Australia: strategic design, applications and benefits of the WA data linkage system

(2010) C D'Arcy J Holman et al.   Australian Health Review