The social licence for data-intensive health research: towards co-creation, public value and trust
Published 2021 View Full Article
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Title
The social licence for data-intensive health research: towards co-creation, public value and trust
Authors
Keywords
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Journal
BMC Medical Ethics
Volume 22, Issue 1, Pages -
Publisher
Springer Science and Business Media LLC
Online
2021-08-10
DOI
10.1186/s12910-021-00677-5
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- (2020) Sonja Erikainen et al. JOURNAL OF MEDICAL ETHICS
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- (2017) Mahsa Shabani et al. Biopreservation and Biobanking
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- Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement
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