Patients, clinicians and open notes: information blocking as a case of epistemic injustice

Words Matter: What Do Patients Find Judgmental or Offensive in Outpatient Notes?

(2021) Leonor Fernández et al.   JOURNAL OF GENERAL INTERNAL MEDICINE

Association of Patients Reading Clinical Notes With Perception of Medication Adherence Among Persons With Serious Mental Illness

(2021) Charlotte Blease et al.   JAMA Network Open

Helen Salisbury: Whose record is it anyway?

(2020) Helen Salisbury   BMJ-British Medical Journal

Empowering patients and reducing inequities: is there potential in sharing clinical notes?

(2020) Charlotte Blease et al.   BMJ Quality & Safety

How (or Do) People “Think” About Cancer Risk, and Why That Matters

(2020) William M. P. Klein et al.   JAMA Oncology

Identifying indicators of meaningful patient portal use by psychiatric populations

(2020) Gillian Strudwick et al.   Informatics for Health & Social Care

Frequency and Types of Patient-Reported Errors in Electronic Health Record Ambulatory Care Notes

(2020) Sigall K. Bell et al.   JAMA Network Open

New U.S. Law Mandates Access to Clinical Notes: Implications for Patients and Clinicians

(2020) Charlotte Blease et al.   ANNALS OF INTERNAL MEDICINE

Open Notes in Oncology: Patient versus Oncology Clinician Views

(2020) Liz Salmi et al.   CANCER CELL

Online electronic healthcare records: Comparing the views of cancer patients and others

(2020) Hanife Rexhepi et al.   Health Informatics Journal

Open notes in cancer care: coming soon to patients

(2020) Charlotte Blease et al.   LANCET ONCOLOGY

Patient researchers — the missing link?

(2020) Sara Riggare   NATURE MEDICINE

Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA

(2020) Liz Salmi et al.   BMJ Open

Patients Managing Medications and Reading Their Visit Notes: A Survey of OpenNotes Participants

(2019) Catherine M. DesRoches et al.   ANNALS OF INTERNAL MEDICINE

OpenNotes After 7 Years: Patient Experiences With Ongoing Access to Their Clinicians’ Outpatient Visit Notes

(2019) Jan Walker et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Helping clinicians and patients navigate electronic patient portals: ethical and legal principles

(2019) S. Mehta et al.   CANADIAN MEDICAL ASSOCIATION JOURNAL

Oncology health-care professionals’ perceived effects of patient accessible electronic health records 6 years after launch: A survey study at a major university hospital in Sweden

(2019) Jonas Moll et al.   Health Informatics Journal

Easy Access, Difficult Consequences? Providing Psychiatric Patients With Access to Their Health Records Electronically

(2019) Gillian Strudwick et al.   Frontiers in Psychiatry

Perceptions of Primary Care Notes by Patients With Mental Health Diagnoses

(2018) Jared W. Klein et al.   ANNALS OF FAMILY MEDICINE

Patients Contributing to Their Doctors' Notes: Insights From Expert Interviews

(2018) John N. Mafi et al.   ANNALS OF INTERNAL MEDICINE

The Importance of Visit Notes on Patient Portals for Engaging Less Educated and Nonwhite Patients: Survey Study

(2018) Macda Gerard et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

“Why Do They Need to Check Me?” Patient Participation Through eHealth and the Doctor-Patient Relationship: Qualitative Study

(2018) Christiane Grünloh et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Ethical Challenges Raised by OpenNotes for Pediatric and Adolescent Patients

(2018) Fabienne C. Bourgeois et al.   PEDIATRICS

Tackling Ambulatory Safety Risks Through Patient Engagement

(2018) Sigall K. Bell et al.   Journal of Patient Safety

Patient access to electronic health records: Differences across ten countries

(2018) Anna Essén et al.   Health Policy and Technology

OUP accepted manuscript

(2018)   JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION

Warner Slack: “Patients are the most underused resource”

(2018) Dave deBronkart et al.   BMJ-British Medical Journal

Patients� Experiences of Accessing Their Online Electronic Health Records - Results of a National Patient Survey in Sweden (Preprint)

(2017) Jonas Moll et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Trust in Mental Health Clinicians Among Patients Who Access Clinical Notes Online

(2017) Risa Cromer et al.   PSYCHIATRIC SERVICES

Patient access to electronic psychiatric records: A pilot study

(2017) Pamela Peck et al.   Health Policy and Technology

VA mental health clinician experiences and attitudes toward OpenNotes

(2016) Steven K. Dobscha et al.   GENERAL HOSPITAL PSYCHIATRY

Cancer patients’ attitudes and experiences of online access to their electronic medical records: A qualitative study

(2016) Hanife Rexhepi et al.   Health Informatics Journal

Epistemic injustice in healthcare encounters: evidence from chronic fatigue syndrome

(2016) Charlotte Blease et al.   JOURNAL OF MEDICAL ETHICS

A Web-Based Patient Portal for Mental Health Care: Benefits Evaluation

(2016) Sarah Kipping et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

“The Record is Our Work Tool!”—Physicians’ Framing of a Patient Portal in Sweden

(2016) Christiane Grünloh et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

When doctors share visit notes with patients: a study of patient and doctor perceptions of documentation errors, safety opportunities and the patient–doctor relationship

(2016) Sigall K Bell et al.   BMJ Quality & Safety

Seen but not heard: children and epistemic injustice

(2014) Havi Carel et al.   LANCET

Inviting Patients to Read Their Doctors' Notes: A Quasi-experimental Study and a Look Ahead

(2013) Tom Delbanco et al.   ANNALS OF INTERNAL MEDICINE

Use of an Electronic Patient Portal Among Disadvantaged Populations

(2011) Jessica S. Ancker et al.   JOURNAL OF GENERAL INTERNAL MEDICINE