Revolutionizing Medical Data Sharing Using Advanced Privacy-Enhancing Technologies: Technical, Legal, and Ethical Synthesis

Genomics: data sharing needs an international code of conduct

(2020) Mark Phillips et al.   NATURE

High-profile coronavirus retractions raise concerns about data oversight

(2020) Heidi Ledford et al.   NATURE

How to fix the GDPR's frustration of global biomedical research

(2020) Jasper Bovenberg et al.   SCIENCE

MedCo: Enabling Secure and Privacy-Preserving Exploration of Distributed Clinical and Genomic Data

(2018) Jean Louis Raisaro et al.   IEEE-ACM Transactions on Computational Biology and Bioinformatics

Addressing Beacon re-identification attacks: quantification and mitigation of privacy risks

(2017) Jean Louis Raisaro et al.   JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION

Identification of individuals by trait prediction using whole-genome sequencing data

(2017) Christoph Lippert et al.   PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES OF THE UNITED STATES OF AMERICA

Deriving genomic diagnoses without revealing patient genomes

(2017) Karthik A. Jagadeesh et al.   SCIENCE

Privacy Risks from Genomic Data-Sharing Beacons

(2015) Suyash S. Shringarpure et al.   AMERICAN JOURNAL OF HUMAN GENETICS

DataSHIELD: taking the analysis to the data, not the data to the analysis

(2014) Amadou Gaye et al.   INTERNATIONAL JOURNAL OF EPIDEMIOLOGY

The disclosure of diagnosis codes can breach research participants' privacy

(2014) Grigorios Loukides et al.   JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION

Protecting Personal Data in Epidemiological Research: DataSHIELD and UK Law

(2014) Susan E. Wallace et al.   Public Health Genomics

Identifying Personal Genomes by Surname Inference

(2013) M. Gymrek et al.   SCIENCE

An ethics safe harbor for international genomics research?

(2013) Edward S Dove et al.   Genome Medicine

Protecting count queries in study design

(2012) Staal A Vinterbo et al.   JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION

Reducing patient re-identification risk for laboratory results within research datasets

(2012) Ravi V Atreya et al.   JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION

Securing the Data Economy: Translating Privacy and Enacting Security in the Development of DataSHIELD

(2012) M.J. Murtagh et al.   Public Health Genomics

The re-identification risk of Canadians from longitudinal demographics

(2011) Khaled El Emam et al.   BMC Medical Informatics and Decision Making

A Systematic Review of Re-Identification Attacks on Health Data

(2011) Khaled El Emam et al.   PLoS One

Computing arbitrary functions of encrypted data

(2010) Craig Gentry   COMMUNICATIONS OF THE ACM

Genomic privacy and limits of individual detection in a pool

(2009) Sriram Sankararaman et al.   NATURE GENETICS

Resolving Individuals Contributing Trace Amounts of DNA to Highly Complex Mixtures Using High-Density SNP Genotyping Microarrays

(2008) Nils Homer et al.   PLoS Genetics