Conducting research in psoriatic arthritis: the emerging role of patient research partners
Published 2019 View Full Article
- Home
- Publications
- Publication Search
- Publication Details
Title
Conducting research in psoriatic arthritis: the emerging role of patient research partners
Authors
Keywords
-
Journal
RHEUMATOLOGY
Volume 59, Issue Supplement_1, Pages i47-i55
Publisher
Oxford University Press (OUP)
Online
2019-07-24
DOI
10.1093/rheumatology/kez338
References
Ask authors/readers for more resources
Related references
Note: Only part of the references are listed.- Endorsement of the 66/68 joint count for the measurement of musculoskeletal disease activity: OMERACT 2018 Psoriatic Arthritis workshop report
- (2019) Alí Duarte-García et al. JOURNAL OF RHEUMATOLOGY
- PsAID12 Provisionally Endorsed at OMERACT 2018 as Core Outcome Measure to Assess Psoriatic Arthritis-specific Health-related Quality of Life in Clinical Trials
- (2018) Ana-Maria Orbai et al. JOURNAL OF RHEUMATOLOGY
- 2018 American College of Rheumatology/National Psoriasis Foundation Guideline for the Treatment of Psoriatic Arthritis
- (2018) Jasvinder A. Singh et al. Arthritis & Rheumatology
- Updating the Psoriatic Arthritis (PsA) Core Domain Set: A Report from the PsA Workshop at OMERACT 2016
- (2017) Ana-Maria Orbai et al. JOURNAL OF RHEUMATOLOGY
- Treatments for Psoriatic Arthritis, a Guide for Patients Written by Fellow Patients: A Report from the GRAPPA 2016 Annual Meeting
- (2017) Denis O’Sullivan et al. JOURNAL OF RHEUMATOLOGY
- Tackling Patient Centricity: A Report from the GRAPPA 2016 Annual Meeting
- (2017) Niti Goel et al. JOURNAL OF RHEUMATOLOGY
- Engaging patients and consumers in research evidence: Applying the conceptual model of patient and family engagement
- (2017) Kristin L. Carman et al. PATIENT EDUCATION AND COUNSELING
- Emerging Guidelines for Patient Engagement in Research
- (2017) John R. Kirwan et al. VALUE IN HEALTH
- Determinants of Patient-Physician Discordance in Global Assessment in Psoriatic Arthritis: A Multicenter European Study
- (2017) Carole Desthieux et al. ARTHRITIS CARE & RESEARCH
- GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research
- (2017) S Staniszewska et al. BMJ-British Medical Journal
- GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research
- (2017) S Staniszewska et al. BMJ-British Medical Journal
- Discordance between tender and swollen joint count as well as patient's and evaluator's global assessment may reduce likelihood of remission in patients with rheumatoid arthritis and psoriatic arthritis: data from the prospective multicentre NOR-DMARD study
- (2016) Brigitte Michelsen et al. ANNALS OF THE RHEUMATIC DISEASES
- International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials
- (2016) Ana-Maria Orbai et al. ANNALS OF THE RHEUMATIC DISEASES
- Is it worth it? Patient and public views on the impact of their involvement in health research and its assessment: a UK-based qualitative interview study
- (2016) Joanna C. Crocker et al. HEALTH EXPECTATIONS
- Fatigue in psoriatic arthritis – a cross-sectional study of 246 patients from 13 countries
- (2016) Tania Gudu et al. JOINT BONE SPINE
- Development of a Flare Instrument for Use in Psoriatic Disease: A Report from the 2015 GRAPPA Annual Meeting
- (2016) A. R. Moverley et al. JOURNAL OF RHEUMATOLOGY
- Lets Talk about Inclusion: A Report on Patient Research Partner Involvement in the GRAPPA 2015 Annual Meeting
- (2016) M. de Wit et al. JOURNAL OF RHEUMATOLOGY
- Mapping the Effect of Psoriatic Arthritis Using the International Classification of Functioning, Disability and Health
- (2016) Tania Gudu et al. JOURNAL OF RHEUMATOLOGY
- European League Against Rheumatism (EULAR) recommendations for the management of psoriatic arthritis with pharmacological therapies: 2015 update
- (2015) L Gossec et al. ANNALS OF THE RHEUMATIC DISEASES
- Review of the Psoriatic Arthritis Working Group at OMERACT 12: A Report from the GRAPPA 2014 Annual Meeting
- (2015) W. Tillett et al. JOURNAL OF RHEUMATOLOGY
- Building Bridges between Researchers and Patient Research Partners: A Report from the GRAPPA 2014 Annual Meeting
- (2015) M. de Wit et al. JOURNAL OF RHEUMATOLOGY
- Recommendations for the Involvement of Patient Research Partners (PRP) in OMERACT Working Groups. A Report from the OMERACT 2014 Working Group on PRP
- (2015) Peter P. Cheung et al. JOURNAL OF RHEUMATOLOGY
- Discordance of Global Assessments by Patient and Physician Is Higher in Female than in Male Patients Regardless of the Physician's Sex: Data on Patients with Rheumatoid Arthritis, Axial Spondyloarthritis, and Psoriatic Arthritis from the DANBIO Registry
- (2015) C. Lindstrom Egholm et al. JOURNAL OF RHEUMATOLOGY
- Factors Explaining the Discrepancy Between Physician and Patient Global Assessment of Joint and Skin Disease Activity in Psoriatic Arthritis Patients
- (2015) Lihi Eder et al. ARTHRITIS CARE & RESEARCH
- Evaluating patient and stakeholder engagement in research: moving from theory to practice
- (2015) Laura Esmail et al. Journal of Comparative Effectiveness Research
- A patient-derived and patient-reported outcome measure for assessing psoriatic arthritis: elaboration and preliminary validation of the Psoriatic Arthritis Impact of Disease (PsAID) questionnaire, a 13-country EULAR initiative
- (2014) Laure Gossec et al. ANNALS OF THE RHEUMATIC DISEASES
- Patient engagement in research: a systematic review
- (2014) Juan Pablo Domecq et al. BMC HEALTH SERVICES RESEARCH
- Development of a Disease Activity and Responder Index for Psoriatic Arthritis -- Report of the Psoriatic Arthritis Module at OMERACT 11
- (2014) L. C. Coates et al. JOURNAL OF RHEUMATOLOGY
- Patient Participation in Psoriasis and Psoriatic Arthritis Outcome Research: A Report from the GRAPPA 2013 Annual Meeting
- (2014) M. de Wit et al. JOURNAL OF RHEUMATOLOGY
- Development and Validation of a New Instrument to Measure Health-related Quality of Life in Patients with Psoriatic Arthritis: The VITACORA-19
- (2014) J. C. Torre-Alonso et al. JOURNAL OF RHEUMATOLOGY
- Patient perspectives in the management of psoriasis: Results from the population-based Multinational Assessment of Psoriasis and Psoriatic Arthritis Survey
- (2014) Mark G. Lebwohl et al. JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY
- Patient Involvement in Outcome Measures for Psoriatic Arthritis
- (2014) William Tillett et al. Current Rheumatology Reports
- Patient and service user engagement in research: a systematic review and synthesized framework
- (2013) Nathan D. Shippee et al. HEALTH EXPECTATIONS
- A practice-based tool for engaging stakeholders in future research: a synthesis of current practices
- (2013) Jeanne-Marie Guise et al. JOURNAL OF CLINICAL EPIDEMIOLOGY
- Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences—lessons learnt from a decade of collaboration in OMERACT: a qualitative study
- (2013) Maarten de Wit et al. BMJ Open
- Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences
- (2013) Maarten de Wit et al. BMJ Open
- Mapping the impact of patient and public involvement on health and social care research: a systematic review
- (2012) Jo Brett et al. HEALTH EXPECTATIONS
- European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects
- (2011) M. P. T. de Wit et al. ANNALS OF THE RHEUMATIC DISEASES
- European League Against Rheumatism recommendations for the management of psoriatic arthritis with pharmacological therapies
- (2011) L Gossec et al. ANNALS OF THE RHEUMATIC DISEASES
- Community Engagement in Research: Frameworks for Education and Peer Review
- (2010) Syed M. Ahmed et al. AMERICAN JOURNAL OF PUBLIC HEALTH
- What is involvement in research and what does it achieve? Reflections on a pilot study of the personal costs of stroke
- (2009) Christopher McKevitt et al. HEALTH EXPECTATIONS
Publish scientific posters with Peeref
Peeref publishes scientific posters from all research disciplines. Our Diamond Open Access policy means free access to content and no publication fees for authors.
Learn MoreFind the ideal target journal for your manuscript
Explore over 38,000 international journals covering a vast array of academic fields.
Search