The unique burden of rare cancer caregiving: caregivers of patients with Erdheim–Chester disease

Phenotypes and survival in Erdheim-Chester disease: Results from a 165-patient cohort

(2018) Fleur Cohen-Aubart et al.   AMERICAN JOURNAL OF HEMATOLOGY

The Effect of Cancer Patients’ and Their Family Caregivers’ Physical and Emotional Symptoms on Caregiver Burden

(2018) Safora Johansen et al.   CANCER NURSING

Physical symptoms in long-term survivors of rare cancer

(2018) Nora K. Horick et al.   Journal of Cancer Survivorship

Trajectories of mental and physical functioning among spouse caregivers of cancer survivors over the first five years following the diagnosis

(2017) Sylvie Lambert et al.   PATIENT EDUCATION AND COUNSELING

Exploring the cancer caregiver's journey through web-based Meaning-Centered Psychotherapy

(2017) A.J. Applebaum et al.   PSYCHO-ONCOLOGY

Caring for caregivers and patients: Research and clinical priorities for informal cancer caregiving

(2016) Erin E. Kent et al.   CANCER

The Spectrum of Caregiving in Palliative Care for Serious, Advanced, Rare Diseases: Key Issues and Research Directions

(2016) Lynn S. Adams et al.   JOURNAL OF PALLIATIVE MEDICINE

Measuring the quality of life of people at the end of life: The McGill Quality of Life Questionnaire–Revised

(2016) S Robin Cohen et al.   PALLIATIVE MEDICINE

The financial impact of head and neck cancer caregiving: a qualitative study

(2016) Myles Balfe et al.   PSYCHO-ONCOLOGY

How Are Spousal Depressed Mood, Distress, and Quality of Life Associated with Risk of Depressed Mood in Cancer Survivors? Longitudinal Findings from a National Sample

(2015) K. Litzelman et al.   CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION

The supportive care needs of parents caring for a child with a rare disease: A scoping review

(2015) Lemuel J. Pelentsov et al.   Disability and Health Journal

Consensus guidelines for the diagnosis and clinical management of Erdheim-Chester disease

(2014) E. L. Diamond et al.   BLOOD

Caregiver Burden

(2014) Ronald D. Adelman et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Physical, Psychosocial, Relationship, and Economic Burden of Caring for People With Cancer: A Review

(2013) Afaf Girgis et al.   Journal of Oncology Practice

Rare cancers are not so rare: The rare cancer burden in Europe

(2011) Gemma Gatta et al.   EUROPEAN JOURNAL OF CANCER

Relationship of family caregiver burden with quality of care and psychopathology in a sample of Arab subjects with schizophrenia

(2010) Muhammad A Zahid et al.   BMC Psychiatry

End-of-Life Discussions, Goal Attainment, and Distress at the End of Life: Predictors and Outcomes of Receipt of Care Consistent With Preferences

(2010) Jennifer W. Mack et al.   JOURNAL OF CLINICAL ONCOLOGY

Psychological and Social Profile of Family Caregivers on Commencement of Palliative Care

(2010) Peter L. Hudson et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Unmet supportive care needs, psychological well-being and quality of life in patients living with multiple myeloma and their partners

(2010) Alex Molassiotis et al.   PSYCHO-ONCOLOGY

Psychometric Properties of the Hospital Anxiety and Depression Scale in Family Caregivers of Palliative Care Patients

(2008) Karla Gough et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT