Known unknowns: building an ethics of uncertainty into genomic medicine

Research participant interest in primary, secondary and incidental genomic findings

(2016) Jennifer T. Loud et al.   GENETICS IN MEDICINE

A prospective evaluation of whole-exome sequencing as a first-tier molecular test in infants with suspected monogenic disorders

(2016) Zornitza Stark et al.   GENETICS IN MEDICINE

Patient hopes for diagnostic genomic sequencing: roles of uncertainty and social status

(2015) Cynthia M Khan et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Parlez-vous VUS?

(2015) Gregory M. Cooper   GENOME RESEARCH

Genomic Testing: a Genetic Counselor’s Personal Reflection on Three Years of Consenting and Testing

(2015) Julia Wynn   Journal of Genetic Counseling

Parents’ Perspectives on Variants of Uncertain Significance from Chromosome Microarray Analysis

(2015) Lesli A. Kiedrowski et al.   Journal of Genetic Counseling

Characterizing Participants in the ClinSeq Genome Sequencing Cohort as Early Adopters of a New Health Technology

(2015) Katie L. Lewis et al.   PLoS One

How do research participants perceive “uncertainty” in genome sequencing?

(2014) Barbara B. Biesecker et al.   GENETICS IN MEDICINE

Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group

(2014) Stacy W. Gray et al.   GENETICS IN MEDICINE

How Can Psychological Science Inform Research About Genetic Counseling for Clinical Genomic Sequencing?

(2014) Cynthia M. Khan et al.   Journal of Genetic Counseling

Role of fear in overdiagnosis and overtreatment--an essay by Iona Heath

(2014) I. Heath   BMJ-British Medical Journal

“Nothing is Absolute in Life”: Understanding Uncertainty in the Context of Psychiatric Genetic Counseling from the Perspective of those with Serious Mental Illness

(2013) Catriona Hippman et al.   Journal of Genetic Counseling

Policy challenges of clinical genome sequencing

(2013) C. F. Wright et al.   BMJ-British Medical Journal

SOLIDARITY IN CONTEMPORARY BIOETHICS - TOWARDS A NEW APPROACH

(2012) BARBARA PRAINSACK et al.   BIOETHICS

Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study

(2012) Flavia M Facio et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Conceptual, Methodological, and Ethical Problems in Communicating Uncertainty in Clinical Evidence

(2012) Paul K. J. Han   MEDICAL CARE RESEARCH AND REVIEW

Genetic counselling and ethical issues with chromosome microarray analysis in prenatal testing

(2012) George McGillivray et al.   PRENATAL DIAGNOSIS

Genetic counseling does not fulfill the counselees' need for certainty in hereditary breast/ovarian cancer families: an explorative assessment

(2012) Joël Vos et al.   PSYCHO-ONCOLOGY

Varieties of Uncertainty in Health Care

(2011) Paul K. J. Han et al.   MEDICAL DECISION MAKING

The role of hope in adaptation to uncertainty: The experience of caregivers of children with Down syndrome

(2011) Megan Truitt et al.   PATIENT EDUCATION AND COUNSELING

Motivations and Perceptions of Early Adopters of Personalized Genomics: Perspectives from Research Participants

(2011) S.E. Gollust et al.   Public Health Genomics