Characterizing Participants in the ClinSeq Genome Sequencing Cohort as Early Adopters of a New Health Technology

Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group

(2014) Stacy W. Gray et al.   GENETICS IN MEDICINE

Diagnostic Clinical Genome and Exome Sequencing

(2014) Leslie G. Biesecker et al.   NEW ENGLAND JOURNAL OF MEDICINE

Design, methods, and participant characteristics of the Impact of Personal Genomics (PGen) Study, a prospective cohort study of direct-to-consumer personal genomic testing customers

(2014) Deanna Alexis Carere et al.   Genome Medicine

Preferences for results delivery from exome sequencing/genome sequencing

(2013) Martha F. Wright et al.   GENETICS IN MEDICINE

Hypothesis-generating research and predictive medicine

(2013) L. G. Biesecker   GENOME RESEARCH

The Economics of Genomic Medicine

(2013) W. Gregory Feero et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

A Genetic Counselor’s Guide to Using Next-Generation Sequencing in Clinical Practice

(2013) Flavia M. Facio et al.   Journal of Genetic Counseling

Effects of informed consent for individual genome sequencing on relevant knowledge

(2012) KA Kaphingst et al.   CLINICAL GENETICS

Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study

(2012) Flavia M Facio et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

(2012) Juli Murphy Bollinger et al.   GENETICS IN MEDICINE

Motivators for participation in a whole-genome sequencing study: implications for translational genomics research

(2011) Flavia M Facio et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Varieties of Uncertainty in Health Care

(2011) Paul K. J. Han et al.   MEDICAL DECISION MAKING

Effect of Direct-to-Consumer Genomewide Profiling to Assess Disease Risk

(2011) Cinnamon S. Bloss et al.   NEW ENGLAND JOURNAL OF MEDICINE

Motivations and Perceptions of Early Adopters of Personalized Genomics: Perspectives from Research Participants

(2011) S.E. Gollust et al.   Public Health Genomics

The Behavioral Response to Personalized Genetic Information: Will Genetic Risk Profiles Motivate Individuals and Families to Choose More Healthful Behaviors?

(2010) Colleen M. McBride et al.   Annual Review of Public Health

Consumer perceptions of direct-to-consumer personalized genomic risk assessments

(2010) Cinnamon S Bloss et al.   GENETICS IN MEDICINE

Personal genomics and individual identities: motivations and moral imperatives of early users

(2010) Michelle L. McGowan et al.   NEW GENETICS AND SOCIETY

Personality, Socioeconomic Status, and All-Cause Mortality in the United States

(2009) Benjamin P. Chapman et al.   AMERICAN JOURNAL OF EPIDEMIOLOGY

The ClinSeq Project: Piloting large-scale genome sequencing for research in genomic medicine

(2009) L. G. Biesecker et al.   GENOME RESEARCH

CDKN2A/p16 Genetic Test Reporting Improves Early Detection Intentions and Practices in High-Risk Melanoma Families

(2008) L. G. Aspinwall et al.   CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION

A systematic review of perceived risks, psychological and behavioral impacts of genetic testing

(2008) Jodi T Heshka et al.   GENETICS IN MEDICINE